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inflammation of small intestine

sella

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sella Explorer
sella
Posted

I always thought celiac disease involved inflammation of the small intestine, but a GI doctor told me this was not true or it's not an inflammatory bowel condition. Was the doctor wrong?

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GFinDC Veteran
GFinDC
Posted

Hi,

Here is what Mayo clinic has to say about IBD:

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Inflammatory bowel disease (IBD) involves chronic inflammation of all or part of your digestive tract. IBD primarily includes ulcerative colitis and Crohn's disease. Both usually involve severe diarrhea, pain, fatigue and weight loss. IBD can be debilitating and sometimes leads to life-threatening complications.

notme Experienced
notme
Posted
On 11/4/2016 at 5:20 PM, sella said:

I always thought celiac disease involved inflammation of the small intestine, but a GI doctor told me this was not true or it's not an inflammatory bowel condition. Was the doctor wrong?

is this a new doctor, sella?  i remember you were going to switch.  sounds like you better keep looking...... :( 

 i feel your pain:  i've been gluten-free (dx'd FINALLY with celiac after 25 years of doctors telling me i had ibs/ibd/colitis but doing no tests at all to rule out anything else!!)  for 6 years, honestly finally starting to feel like i'm healing and my general practitioner is trying to give me DRUGS - no, thanks, i asked for something to try that wasn't that drastic.....  it's like i asked for a bb and he tried to give me a grenade.....  i pretty much called him stupid.  he doesn't like me anymore boo hoo....

ironictruth Proficient
ironictruth
Posted

There was just an article on here the other day, forget the title, references stages of celiac damage and inflammation was cited as occurring prior to villi blunting. 

plumbago Experienced
plumbago
Posted

What we know about Celiac is that it does involve inflammation of the small intestine leading to villi blunting. I mean, this is the Celiac prototype.

Crohn's can involve the whole GI tract while ulcerative colitis involves the colon (large intestine) and rectum if I am not mistaken.

cyclinglady Grand Master
cyclinglady
Posted
8 hours ago, plumbago said:

What we know about Celiac is that it does involve inflammation of the small intestine leading to villi blunting. I mean, this is the Celiac prototype.

Crohn's can involve the whole GI tract while ulcerative colitis involves the colon (large intestine) and rectum if I am not mistaken.

Yep, that's right per my research.  If you think about it, inflammation is a sign of most diseases.  

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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