Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Spencer88

Recommended Posts

Spencer88 Apprentice

Hi all! 

When I was first diagnosed with celiac at the beginning of October 2016 my liver numbers were elevated. They were around 63 and 150ish. My question are, has anyone else experienced elevated liver numbers when recently diagnosed with celiac, is that common? What are some things I can do to get those numbers back to normal? My birthday is in late December, I'd like to enjoy a drink or two. How long can I except before I see improvement enough to where I could enjoy a gin and tonic again? 

Thank you all for your support and advice! 

Spencer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PinkyGurl Explorer

Liver damage is very common in people with celiac.  Plan on no alcohol for a while.  Trust me it's not worth it, your body needs to heal.  Thankfully the liver is the one organ that can repair itself, but it can only do that if you help take care of it.  I wouldn't even think about drinking till your numbers are normal again, and even at that point I'd give it more time.  Your body has been threw war, time to let it heal.  Discuss with your MD taking a milk thistle supplement.  Milk thistle is a natural liver support supplement.  Just make sure anything you take states that it is gluten free.  I personally take Jarrow brand myself.

cristiana Veteran

My liver function tests showed I had elevated gamma globulin levels for about six months prior to diagnosis which worried my doctors.  They came down to normal after I adopted a strict gluten-free diet.  I have never drunk alcohol so it just goes to show that gluten alone can cause odd liver function tests! 

I have a book here, 'Celiac for Dummies', Wiley Publishing, that says that if you have newly diagnosed celiac disease, you have up to about a 40 per-cent likelihood that your liver enzyme levels (specifcially the transaminase levels) will be mildly elevated on a blood test. The authors then go on to say that it does not necesarrily mean that you have significant liver disease, and that the levels typically return to normal after a few months.

GFinDC Veteran

Cell apoptosis can cause elevated liver enzymes.  Cell apoptosis is when cells die in the body.  The dying cells can exude harmful chemicals into the blood stream.   Those chemicals can cause raised liver enzymes.  The liver results should return to normal after being on  the gluten-free diet a while.   For more and better info, search for cell apoptosis in celiac disease.  Here's a link to an article on liver issues and celiac disease.

https://www.celiac.com/articles/21501/1/Celiac-Disease-and-Liver-Disorders/Page1.html

squirmingitch Veteran

I was dx'd with a fatty liver pre-celiac dx. Went gluten free & liver is completely normal.

Scott Adams Grand Master

 I had an increase in my liver enzyme tests that turned out to be due to a cinnamon supplement I was taking… Once I stop taking it my liver was fine. After searching the Internet I discovered cinnamon can cause elevated enzymes in sensitive individuals. 

squirmingitch Veteran
34 minutes ago, admin said:

 I had an increase in my liver enzyme tests that turned out to be due to a cinnamon supplement I was taking… Once I stop taking it my liver was fine. After searching the Internet I discovered cinnamon can cause elevated enzymes in sensitive individuals. 

That's really interesting Scott. Good info.!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Spencer88 Apprentice

Thank you all! Great information here! Just got back from my first GI visit. I am getting more blood work done this Friday to rule out other possibilities and to see whats going on with my liver now. I can say that I had a full abdominal ultrasound, back and front, radiologist reported everything looked normal there. 

My GI wants to run these tests:

-Alpha-1-Antitrypsin blood

-Ana Blood Screen W/Reflex Titer 

-Ceruloplasmin 

-Iron + TIBC Panel 

-Metanephrines Urine Fractionated 

-Vitamin D 1,25 Dihydroxy 

-Vitamin D 25-Hydroxy  

Anyone else have these tests run? Is this normal protocol?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.