Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Supplement and Foods you Take


Ennis-TX

Recommended Posts

Ennis-TX Grand Master

I thought it would be a interesting topic to bring up supplements and foods we take to deal with our issues. I am going to omit exact dosages on these as I had to adjust them according to my needs, less on some, more on others and on pretty much all of them break the dosage up and take it in 2-3 parts throughout the day to avoid the slumps.  Also my diet is a low carb diet high in fats and proteins, I have multiple odd allergies and do not digest carbs well.  NOTE this is just off the top of my head there will be constant edits as I recall others and perhaps notations on them.

Neocell Beauty Infusion - Collagen, Biotin, Vitamin C, ALA, Hyaluronic Acid
Braggs/Kal Nutritional Yeast - B vitamins niacin
Liquid Health Stress & Energy - Various vitamins, mineral,s B- vitamins
Liquid Health Neurological Support - Various vitamins, minerals, b -vitamins
Doctors Best Magnesium Powder - Magnesium
Jarrow Digestive Enzymes - Enzymes
Jarrow IBS Support - a light Probiotic
Jarrow BCAA - Help prevent muscle break down, take when needed and during the night
Jarrow Joint Support
Spicely Organics Cinnamon - circulation (and addicted to it)
Aloe Vera Juice

NOTE protein powders are used on a rotation and blended always to 1-2 servings
Nutra Key V-Pro Protein Powder
MRM Veggie Elite
Omega Nutrition Pumpkin Protein
Jarrow Hemp Protein
Jarrow Rice
Jarrow Optimal Blend
MRM Meal Replacement (on the go in a shaker with a side of veggies and seeds/nuts)
Growing Naturals Pea Protein - Use in cooking often as a thickening agent

Almond Milk/cashew mil on rotation - Fats, Vitamin D, vitamin E, calcium
Almonds/Almond Butter - fats Vitamin E
Avocados
Nutivia Coconut flour in at least 2 meals a day for fats/fiber
Hershey Special Dark cocoa (only gluten-free one)
Big Tree Farms Tru-Raw Cocoa
Leafy Greens on Rotation for various vitamins kale/cabbage/collard greens/romaine
Other Veggies on Rotation Broccoli/cauliflower/pumpkin puree/bell peppers/green beans/okra/brussel sprouts/onions
Always eating tomatoes
So Delicious Unsweetened Coconut Yogurt - fats and probiotics
Egg Beaters/Egg whites every breakfast and in stirfrys made into noodles by cooking in thin sheets then cutting into strips
Pacific Bone Broths
Pacific vegetable Broths
Kelp Noodles
Nori

GERBS Allergen Friendly Foods (seeds eaten on rotation)
Flax Seeds
Ground Flax Seeds
Whole Pumpkin Seeds
Whole Hemp Seeds
Dried Figs
Dried Dates

Always drinking Republic of tea teas


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Meat- any meat.  Beef, chicken, fish, pork.  Polar sardines and canned mackeral for Vitamin D.
Veggies- corn, peas, broccoli, lettuce, rice (Quaker rice cakes and Jif Natural peanut butter for breakfast), sweet potatoes, greens, cauliflower, cabbage, beans (Bush's canned beans seem the most digestable for me), avocado, watermelon, cantalope, pumpkin.
eggs fried or boiled or in another food.
nuts- any nuts
fruit
seeds

So Delicious brand coconut ice cream bars if it is on sale and it's summer and hot.

Luigis Italian Ice for hot weather.

Sometimes I buy Udi's bread but mostly I eat Mission brand corn tortillas for bread.

I could but seldom do use any milk subs.  I can use almond milk ok.

I have had Bob's Mighty Tasty gluten-free Hot Cereal and am alright with it, but haven't had it in quite a while.
Daiya cheese like substance.

Daily supplements

Nutrigold Vitamin D 5000 IU daily.
Lisonopril 2.5 mg daily.  Blood pressure medicine.
Countrylife Chelated magnesium 250 mg. daily or so.

Occasional supplements

Naturemade B-complex, sometimes a Naturemade B-12.
Betaine HCL for digestion help.
Vitacost Ginseng extract complex 800 mg.
Solgar Glucosamine, hyaluronic acid, chondroitin, MSM pill.
ARO creatine raw 2250 mg.
Vitacost Rhodiola Rosea 700 mg.
Natural sources raw thyroid.
Brazil nuts occasionally for selenium.

Medicines

Kamchatka vodka or Titos corn vodka.
Redbridge gluten-free beer.
Maybe some cider but rarely

Additional medicines

Pepto Bismol for gut pain
Aspirin for any pain
Milk of Magnesia for constipation
Vitacost Dpp-4 for digestion.

Celestial Seasonings peppermint tea, Bengal Tea, and others.

I also drink a lot of water.

ravenwoodglass Mentor

I take a good multi and sometimes add a seperate Biotin supplement that has some vitamin C in it.

When first diagnosed I also took a sublingual B12 as I had heavy nervous system impact.

On the rare times when I get glutened I take liquid Pepto to deal with any stomach pain and if I absolutely need to leave the house Immodium. I will also take an anti-inflammatory to help the joint and muscle pain.

I learned I had to be careful with some supplements when I started having odd symptoms from overdoing them.  I now make sure I take all supplements with me to the doctor when he is checking my levels and stop them for a week before the appointment so he gets an accurate level.

  • 2 months later...
Sara789 Contributor

I'd also be interested in WHERE people buy things: Online, local grocery store, etc?

Ennis-TX Grand Master

Did another post on that lol. Most supplement I get via Lucky Vitamin, Amazon depending on stock/price. Foods vary and would have to reference that post when I get home.

TexasJen Collaborator

I love Pumpkin seeds and have looked high and low for some that I like (I used to eat them out of the bins at the grocery store). I finally found some I like at Nuts.com so they are my new best friend.

We also buy the Wonderful Pistachios at Costco in bulk

I buy fiber supplements at our local grocery store

I use brand name Advil for headaches, body aches. 

I buy everything else at our local grocery store in Texas, HEB. They are awesome and have a great supply of GF foods - although mostly I make meals out of whole foods.

Ennis-TX Grand Master
5 hours ago, Sara789 said:

I'd also be interested in WHERE people buy things: Online, local grocery store, etc?

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

^ Scroll on this second post there even has UPC codes to order from you local grocery stores if you do not want ot shop online, But I have alot of online stores listed there not only the product pages. I use Lucky, Amazon, Thrive, Gerbs, Authentic, LorAnn, GlutenFreeOats and my local HEB store often.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 months later...
Ennis-TX Grand Master

Wanted to add a update since my UC dia. back in February I removed all fruit from my diet and grains. I now eat more nuts like walnuts, hazelnuts, etc. I also started eating more dairy free cheeses, and my keto cheese sauces, along with Julian Bakery Paleo bread which is now one of my stables. Supplement wise I added

Liquid Health D3
Jarrow Bromelain Enzymes (2 with each meal)
Papaya Enzyme Complex (4-6 with each meal)
Jarrow Plant Protein (on rotation with my previously mentioned blends of MRM and V-Pro)
1000mg liquid vitamin C twice a day
Nature Vitality Calm Magnesium on rotation with Doctors Best 3 times a day

Feeneyja Collaborator

I'm wondering how the psyllium husk in the bread makes you feel?  We follow SCD because of my daughter's SIBO and have steered clear of harsh fibers. But she's doing really well right now so I'm tempted to add the Julian's bakery paleo bread.  Thoughts?

Ennis-TX Grand Master
2 hours ago, Feeneyja said:

I'm wondering how the psyllium husk in the bread makes you feel?  We follow SCD because of my daughter's SIBO and have steered clear of harsh fibers. But she's doing really well right now so I'm tempted to add the Julian's bakery paleo bread.  Thoughts?

Honestly this was the reason I ignored the bread for years, my dietician said that using psylilum husk on a daily basis was bad. He compared it to scrubbing your intestines with a loofah sponge, and said it might be alright a few days a month but not daily in my case.     But  I find when cooking with it, it seems less harsh on my gut, I use it in my cheese sauce in very small amounts seems stewing it made it softer on my gut, And THEN thought perhaps the bread is alright, seems it is. They use the psylilum husk in place of gums as a binding agent, and mixing it in the batter and cooking it seems to make it much easier to digest. Only thing I can say is be careful not to over toast the bread, lol I sometimes do and end up soaking the pieces in my coffee, porridge, or soup.   I really love how easy it is on my stomach, FIRST time in my life I can recall ever eating bread and not feeling heavy at all hours later. I am always making my childhood favorite with it of cinnamon toast. I personally split the loafs up into slices and freeze them this way I can put stuff on them before toasting straight from the freezer. From the freezer, I spread Nutivia Butter Flavored coconut oil on them, both sides, sprinkle a blend of pyure or xylitol mixed with cinnamon over one side and toast it. Then put more on it lol. So great in the morning with a savory breakfast. Other times I toast them and make open sandwiches with avocado, egg whites, and a salmon bacon or a meat sub when I can afford it.

Feeneyja Collaborator

That's great to know. Thank you!  I think I will give it a try.   

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,066
    • Most Online (within 30 mins)
      7,748

    Lexxi Hartless
    Newest Member
    Lexxi Hartless
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
    • knitty kitty
      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
    • Heatherisle
      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
×
×
  • Create New...