Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cassin Intolerance?

VydorScope

Recommended Posts

VydorScope Proficient
VydorScope
Posted

Does there exist a test for Cassin Intolerence? I know theres one for lactose, but what about Cassin?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kasey'sMom Enthusiast
Kasey'sMom
Posted

A couple of months ago I did the YORK panel. They've redone the panels and have included casein in the the "Standard 96-Food IgG ELISA Panel." They have also started testing for Yogurt, Goat Milk, Cheddar Chesse, Cottage Cheese, Mozzarella Cheese, and Whey. I was suprised to find I didn't test positive. I geuss my problem must be lactose.

I wish they would have broken down as these indv. items when my dd was test this summer but at that time that just tested for cows milk as a whole. We will probably have her retested sometime next year.

:)

StrongerToday Enthusiast
StrongerToday
Posted

Great Smokies Labs will also break down many foods for sensitivity testing including casein, cheese, milk, goats milk, etc.

Emme999 Enthusiast
Emme999
Posted

I had the ELISA testing with US BioTek labs. The dairy section tested me for the following allergies (individually): Casein, Cheddar Cheese, Cottage Cheese, Mozzarella Cheese, Whey, Milk, Goat Milk and Yogurt.

I was off the chart on all of 'em! (Talk about an overachiever ;))

They can guide you to a doctor in your area that uses this laboratory if you go to their website. Good luck!

- Michelle :wub:

jenvan Collaborator
jenvan
Posted

Great plains also has casein and several forms of dairy on its intolerance tests as well. I was off the charts :)

VydorScope Proficient
VydorScope
Posted
  • Author

Okay.. great answers all! but can any of you provide a link? :D

jenvan Collaborator
jenvan
Posted

here is Great Plains Lab: Open Original Shared Link

here is list of tests, you can get descriptions of what each tests: Open Original Shared Link

i choose great plains b/c i could bill my insurance for it and it didn't cost me much at all. they have an allergy specialist/biochemist you can talk to on the phone also about results etc.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted
  • Author
here is Great Plains Lab: Open Original Shared Link

here is list of tests, you can get descriptions of what each tests: Open Original Shared Link

i choose great plains b/c i could bill my insurance for it and it didn't cost me much at all. they have an allergy specialist/biochemist you can talk to on the phone also about results etc.

Cool that one specifly has a means to bill BC/BS which is what i have :) THANKS!!!!! Now I just need to get my doc to prescribe it some how

jenvan Collaborator
jenvan
Posted

I basically told my doctor I wanted to do it :) He signed the form, they took my blood at the dr.s office and sent the package for me. If you order the tests, you need only call to do so first, they will send it to your house. You don't need drs signature till you send the labs in.

VydorScope Proficient
VydorScope
Posted
  • Author
I basically told my doctor I wanted to do it :) He signed the form, they took my blood at the dr.s office and sent the package for me. If you order the tests, you need only call to do so first, they will send it to your house. You don't need drs signature till you send the labs in.

I ordered the test kit, but cant find on thier site hte form? Is it in the kit?

jenvan Collaborator
jenvan
Posted

the kit comes with several forms you'll need to fill out...and one of those your doc will sign.

darkangel Rookie
darkangel
Posted

I had the ELISA tests run and it said I didn't react to anything but paprika and some obscure mold. :blink: Yet, I know from listening to my body I have very strong reactions to gluten and casein. It's frustrating, but I've found the tests aren't helpful for me. I never understood why, but I found this quote...

The only way to be absolutely sure of the diagnosis is to follow a program of elimination and provocation. Blood and skin testing may sometimes help, but they are expensive and are not reliable to diagnose delayed-onset food allergies or chemical sensitivities. Although some such tests are marketed by clinics and laboratories, I have found the rate of false positive and false negative results to approach 50%. Even with testing, it is still necessary to eliminate all (or most of) the offending foods for 30 days or more to confirm the results. Then to provoke symptoms by adding them back. It would be nice if there were an easier method. But I have not found one.

Open Original Shared Link

I've also been told that a large percentage of folks that have problems with gluten also have problems with casein.

VydorScope Proficient
VydorScope
Posted
  • Author
the kit comes with several forms you'll need to fill out...and one of those your doc will sign.

MOst Excellent. Site says 2-5days for delviery. Once that arrives I'll stop by my docs and see if i can get them to sign it. Worht a $20 copay if they will do it thats for sure! :D

bluelotus Contributor
bluelotus
Posted
I had the ELISA tests run and it said I didn't react to anything but paprika and some obscure mold. :blink: Yet, I know from listening to my body I have very strong reactions to gluten and casein. It's frustrating, but I've found the tests aren't helpful for me. I never understood why, but I found this quote...

Open Original Shared Link

I've also been told that a large percentage of folks that have problems with gluten also have problems with casein.

My doctor basically told me that the ELISA tests don't work (well, anyway), so he tried to steer me clear of them. Still haven't gotten any done, but I guess there are people out there that might argue for your intolerance to gluten, etc. since the tests don't seem to work for everyone. Who knows, certain things work for certain people. Best thing to do is to take everything with a grain of salt and just listen to your body. Vydorscope, good luck with the test!

Emme999 Enthusiast
Emme999
Posted
My doctor basically told me that the ELISA tests don't work (well, anyway), so he tried to steer me clear of them.

My (conventional) allergy doctor sent me away with a card for a psychologist :P

Here are some quotes from The Encyclopedia of Natural Medicine (Michael Murray, ND):

"The skin-prick test or skin-scratch test commonly employed by many allergists only tests for IgE mediated allergies. Since only about ten to fifteen percent of all food allergies are mediated by IgE, this test is of little value in diagnosing most food allergies."

also -

"Most nutritionally oriented physicians now employ blood tests to diagnose food allergies. Despite a tremendous amount of scientific support, for some reason the diagnosis of food allergy and blood testing is still somewhat controversial in conventional medical settings. ... A variety of blood tests is available to physicians, with the ELISA (enzyme-linked immunosorbent assay) test appearing to be the best and most popular laboratory method currently available (and reasonably priced). This test can measure IgE, IgG, IgG4 and IgA antibodies, therefore identifying both the immediate and delayed allergic reactions. ... One of the key advantages of the ELISA over other laboratory methods is its ability to measure IgG4 antibodies. This subclass of antibody was initially thought to act as a blocking antibody, thereby exerting protective effects against allergy. However, it now appears that IgG4 antibodies are actually involved in producing allergic symptoms."

Anyway - worked for me ;)

- Michelle :wub:

P.S. Note that I had a *very* LOW reaction to gluten containing grains in this test - So, it will not pick up celiac disease, since that's not an allergy ;) (But you guys already knew that :rolleyes: )

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.