Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Doctor - Austin Texas

TexasJen

By TexasJen
in Doctors

Recommended Posts

TexasJen Collaborator
TexasJen
Posted

I am grateful to my doc for diagnosing me with celiac last year. It was not on my radar at all since I have no GI symptoms (I was anemic). However, he pretty much just referred me celiac.com, told me to start a gluten free diet and he'd see me in a year. He gave me no other advice and recommended no other tests ( I have since had that all done).

Any advice on a good GI doc for celiac patients in ATX or San Antonio?

Thanks in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jmg Mentor
Jmg
Posted

Are you quite sure you need one Jen? Your doctor already sounds better than the majority I've encountered. He knew enough about you to detect celiac from anemia for one thing. I don't think there's a great deal of a role for a doctor as you start the gluten-free diet. Checking levels after a year to see how your going is pretty standard. Maybe a referral to a dietician for advice on how to adapt to the diet would've been of help though. 

Sorry by the way, I don't have any useful info, just love Austin and couldn't help clicking :)

 

TexasJen Collaborator
TexasJen
Posted
  • Author

Well, that thought did occur to me.....After me asking him, he did give me the name of a dietician but she knew nothing about celiac specifically and had no experience. She wanted me drinking kale and almond mild smoothies all the time but couldn't address some very practical issues. :)

Some of my more atypical symptoms (fatigue, joint aches) aren't going away.  Since I don't have GI symptoms I don't know when I'm making errors. I think I'm doing a pretty good job at following the gluten-free diet, but I have suspected in retrospect, that I might be making some errors - still not sure though. I need some practical advice on how to proceed from here (i.e. only eat certified gluten-free foods and all natural foods? - There are some things I like - like cheeses, dried beans, coffee that could be cross contaminated but I really have no idea if that is the issue OR take the plunge and go dairy free?). If I do that, how long do I need to be dairy free to decide if that's the issues - is 2 months enough?  Since it often times take weeks to recover from been glutened, it's hards to tell where the problem is....

tessa25 Rising Star
tessa25
Posted

In my opinion, because you have no outward symptoms the only way to see if you're doing it right is to get your celiac blood test results so you know your starting point. After a few months retest the number that failed and see if it's going down. If it is then your doing it right.

Jmg Mentor
Jmg
Posted
1 hour ago, TexasJen said:

I need some practical advice on how to proceed from here

You may already have seen this: 

 

but if not there's lots of good advice in there. :)

Best of luck with your recovery!

cyclinglady Grand Master
cyclinglady
Posted

I think you GI has done a pretty good job (better than most).  I got pretty much the same thing from my GI.  However, I give him credit for finding celiac disease, when I went in for a routine colonoscopy and he saw that I had been anemic forever.  I did not have intestinal issues.  

Coffee, dried beans (sorted and washed), and cheese are all safe food choices provided you do not have any intolerances.  The only way to find out is to keep a food journal and give up foods that can impact joints (e.g. Night shades are common).  Reintroduce them and gauge your reactions.  Everyone is different, so there is no easy way to figure it out.  

Have other AI issues been ruled out after a year of being gluten-free?  Are your antibodies still high (can take years to go down), but are trending downward?

TexasJen Collaborator
TexasJen
Posted
  • Author

My numbers at the time of diagnosis were >100 for both IgA and IgG. When I was retested at 6months, IgA was 0 and IgG was 6 so I definitely made improvement. But, weirdly, in retrospect, there were some times when I had made some errors in my diet - minor but possible cross contamination or like drinking a tequila that wasn't 100% pure agave...

Thanks for the help!

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 months later...
Lexiola Newbie
Lexiola
Posted

Hi Jen,

 

 

I know this is late but my doctor just referred me to a GI for similar issues if you'd like the name. He's located in Austin, TX off James Casey Str I think?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.