Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

DH back after 8 years?


GabbyMax

Recommended Posts

GabbyMax Newbie

Hi everyone, I had 8 years free of DH, but it returned on Christmas night. This has me again questioning whether this could be something else as I was off of gluten ( suspecting it may be the culprit) for weeks before they did the blood test so I was negative, and I'm unwilling to go back on it to get the test done, for fear of this horrible rash returning. Has anyone else had DH disappear for many years, only to return? If so, have you thought whether "leaky gut" could be a contributor? With the last two outbreaks ( I've only had three, with many years between each one) I had alcohol (just one drink, but I don't often drink - I'm careful to avoid alcohol with hidden gluten sources) and not the healthiest meal - more fat and sugar than typical. Just trying to figure out "why now?"

A bit about this in case it is helpful: an allergist diagnosed me based on the rash, which I had covering my body for four months at that time, having failed to see any response from topical or injected steroids, or any other itch relief medication.  The rash goes from small pimple looking bumps, to larger bumps, some with fluid at the top. It is always symmetrical, insanely itchy and keeps me awake at night.  I have a gluten free house and am careful when I eat out, though I know I've been cross contaminated at times, with the symptoms ranging from nothing obvious to (most common) being really fatigued for several hours. 

If you have a similar experience or Just some thoughts, I would be most grateful for comments. 

Thank you!

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,012
    • Most Online (within 30 mins)
      7,748

    Anna Costa
    Newest Member
    Anna Costa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.