Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is The "real Deal" With Oats?

frustratedneicey

Recommended Posts

frustratedneicey Apprentice
frustratedneicey
Posted

Hello everyone. I have a question about oats. When I was first dx with Celiac, my GI sent me to a dietician. The dietician told me that oats contain gluten, but only oats harvested in the U.S. What are your thoughts on this subject? Can they be safe? Is there a particular brand? And if not, can anyone suggest a good alternative hot cereal. With winter on its way, I am getting a hankering for some good, hot cereal for breakfast. I have tried Cream of Rice, but, I find it rather bland. I have tried to add some things to make it more exciting, but I miss my Quaker oatmeal packets.

Thanks! Denise

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Oats are not safe in the US because they are contaminated with wheat. Quaker might as well = wheat.

A small portion of celiacs even react to the protein in even pure oats called avenin.

If you do try oats make sure they are pure. Pure= grown by themselves, transported by themselves, in a facility by themselves....no chance for contamination. Keep in mind that even some celiacs do get the intestine damage even from pure oats.

I personally stay away from them.

RiceGuy Collaborator
RiceGuy
Posted

I always liked the plain oats. Those flavored things didn't interest me. I like adding a bit of all-natural unsweetened apple sauce, or maybe a few raisins. Cinnamon is nice too. Mostly I like what margarine does for it though. Sometimes a pinch of salt too. I'm not into the sweet stuff, so I go very lightly on that.

Oats seem subject to more cross-contamination than other things like rice or corn. Apparently there are oats that have tested fairly gluten-free, but it also depends on your sensitivity. The level of gluten can also change as the machinery involved is cleaned and such. I haven't tried any oats yet, but I've been considering some organic ones. I just don't want to take any risks right now.

As for other cereals, there are a bunch. Here's some:

brown rice farina

millet grits

corn grits

quinoa flakes

amaranth

kasha (Roasted Buckwheat)

princessfuzzball Rookie
princessfuzzball
Posted
As for other cereals, there are a bunch. Here's some:

brown rice farina

millet grits

corn grits

quinoa flakes

amaranth

kasha (Roasted Buckwheat)

I have gotten sick from Quinoa... I always thought that it had gluten in it, maybe mine was just contaminated?

Guest Viola
Guest Viola
Posted

I've contacted a company that guarentees their oats as free from contamination. They are going to send me a sample to see if I can tollerate them. Apparently most Celiacs can eat uncontaminated oats, but a few have a problem digesting them.

We will see what happens when they arrive :rolleyes:

nettiebeads Apprentice
nettiebeads
Posted
I've contacted a company that guarentees their oats as free from contamination. They are going to send me a sample to see if I can tollerate them. Apparently most Celiacs can eat uncontaminated oats, but a few have a problem digesting them.

We will see what happens when they arrive :rolleyes:

Oooh, let me know! I miss my oats terribly. :( So filling and satisfying. Quinoa is a fair substitute, but not the same.

I have gotten sick from Quinoa... I always thought that it had gluten in it, maybe mine was just contaminated?

I haven't had any problems with quinoa. Maybe yours was contaminated. And completely off of the subject, is that an african grey?

Guest Viola
Guest Viola
Posted

Nettiebeads .. it's a Canadian company that I contacted, but I see you are in the US, so I'll try and find you the company that does the same in the US. I just emailed them and asked a few questions and they said they would send a sample. Hopefully you can do the same. I'll go look for the web site for you and post it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted

Here you go ... the US ones are from Wyoming.

www.glutenfreeoats.com

Rusla Enthusiast
Rusla
Posted

Whoops,

Shirley,

Let me know how it goes with those oats. My favorite cereal was always rolled oats and there are killer cookies I make with them. So, I will be really interested in them and where they can be bought.

Guest Viola
Guest Viola
Posted

Rusla, the uncontaminated oats in Canada come from somewhere in Quebec, so it will be awhile before I get them. I sure hope that I don't have a problem with them as it will be nice to add something new to my diet, and you're right, they are so great in baking. But years ago I used to love them for breakfast in the winter time. But I'll come back and post after they arrive and I've tried them :P

Rusla Enthusiast
Rusla
Posted

If they don't cause a problem I would so order them. Like you that was my favorite winter cereal.

darlindeb25 Collaborator
darlindeb25
Posted

I dont know that I trust oats, no matter where they came from. Maybe some dont react to oats, but then maybe they are still doing the same damage anyways. I dont react to barley, but it still is doing damage. I personally feel that some of us react to all glutens, not just the wheat, rye, barley and oats. I cant have soy or corn either. I also grew up with a father that worked in elevators. I dont know about other countries, but here in America, grains are put in the same bins when brought into the elevators and they arent cleaned out before hand--maybe sweap, but that hardly constitutes "clean". Deb

Guest Viola
Guest Viola
Posted

Kaiti .. where did you get the fact that even "pure" oats could cause intestinal damage? I was told that they could mimic the symptoms in some people without actually causing "Celiac intestinal damage"

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Thanks to both of you for your responses! Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In t...
    2. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
    3. lalan45
      - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things ...
    4. Russ H
      - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
    5. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748
    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      My journey is it gluten or fiber?

      By lalan45 · Posted

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      Anti-endomysial Antibody (EMA) Testing

      By Russ H · Posted

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      Just diagnosed today

      By Scott Adams · Posted

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.