Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened, It can Happen.


Ennis-TX

Recommended Posts

Ennis-TX Grand Master

I been having gluten issues in my house, something minor but been present for the past 4 days. Seems even buying only foods labeled gluten free and supposedly gluten free is not always enough, and even the most cautious of can have stuff happen. I have yet to narrow down the exact source but it was something in my Pudding/Icecream/Shake base that I use for keeping weight on. After 3 days of elimination I know it is something in it and seems I keep throwing up and being fogged all night with rotating D&C, swollen lymph nodes, numbness, twitch. Not on the floor, or loss of movement so it can not be much. I am out of EZ Strips but I opened up a Nima I got and tested my batch to come back "Low Gluten" ....ok not as comforting as knowing the range like a EZ-Strip would let on but I know it means something is there. SO I threw it all out and made a new batch, but I forgot to clean the immersion blender head aside from rinsing and I forgot to run the spatula in the dishwasher, So either this contaminated my new batch (which also came back "Low Gluten" or my greatest fear is one of my ingredients is contaminated. I think the beets in my last batch which I bought from some off brand prepacked and sliced were the ones that did it. But this batch only has Silk Cashew Milk, Almonds, Nutiva Coconut Flour, So Delicious Coconut yogurt, Xclear Xylitol, NuNaturals Pure Stevia, Chia Company Chia Seeds, Pomona Pectin, Eden Agar Agar, and a tiny bit of LorAnn oils Vanilla Icecream Syrup, LorAnn Oils Honey Extract, Big Tree Coconut Sugar.

I spent all of yesterday scrubbing my kitchen with bleach, I mean everything handles, knobs, racks, buttons, walls, counters, ridges of counters and inside the fridge, all my containers I had touched, the spice bottles, oven, I even threw the dish drying rack inside the dishwasher and power scrubbed my sinks.

Bit about my pudding batches and the trials of finding the gluten.

First two days my pudding did not bother me after making it. day 3 I added the beets to it, and I rotated in strawberries into my diet, I also got new head of cabbage, bags of fresh red and green leaf lettuce, opened a new bag of beanitos, and a new block of Daiya Smoked Gouda Dairy Free Cheese.     My first thoughts after getting sick that night was the strawberries, it was the first time in 7 months I could get fresh ones and maybe I had a intolerance or they were contaminated (the fruit section is near the bakery). So Next day no strawberries and vomiting and sick again that night, and I did not have the 2 beanitos a day I crush over my salad or the cheese in it  so, maybe it was the salad and cabbage, I threw them out. Next day sick AGAIN. OK NOW, I checked and was out of EZ Strips, and got out the Nima thingy and looked up out to use it. put a bit of my pudding in and....."Low Gluten" WELL THERE YOU GO. Threw it all in the trash then then next morning crazy cleaning and new pudding batch (Forgetting to clean the blender head and take apart and dish wash the spatula also only rinsing them).....Well this time it tested low gluten but When I eat it I do not feel sick/vomit, just a tad tired and feel like sitting around all evening odd twitch and swollen lymph nodes. I figure the so called low gluten range it test is on the lower limits (Nima Claims low gluten is 15-15,000ppm). Wish I had a more exact answer, and I wish I had the money to test ALL my ingredients to be sure, but I will figure out next batch in a week. Unfortunately I go so much money in this current batch I can not afford to throw it out or I will starve (I make this in 4L batches loaded with expensive almonds, yogurt, etc. and eat it all week between meals in smoothies, or turn it into ice cream in the machine), >.< Might see about getting my numbers checked again end of this week, it is a tolerable gluten challenge lol. Joking aside and trying to cheer myself up, seems even the best most seasoned of us gluten-free warroiors can mess up, guess we are only human.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tessa25 Rising Star

To save money on test vials you can put 4  ingredients in the Nima at a time. Then at least you've narrowed it down to 4.

 

Jmg Mentor
1 hour ago, Ennis_TX said:

Joking aside and trying to cheer myself up, seems even the best most seasoned of us gluten-free warroiors can mess up, guess we are only human

You deserve to feel well given the efforts you've put in to sorting your kitchen and diet. I hope you find the source and get better soon!

cyclinglady Grand Master

I hope you feel better soon!  

squirmingitch Veteran

UGH! I'm so sorry this has happened. I hope you recover quickly and find the source of the trouble.

Ennis-TX Grand Master

This brings up a very intriguing question about my body. If I walk through a bakery sometimes at a grocery store, I get the whole fog, swollen lymph, and anger. Now when I consumed that low gluten first pudding batch, I got lymph, vomiting, numbness, Diarrhea in the evening, constipation hard stools the next day,  and slight fog but no anger panic, and just a slight twitch instead of the full on the floor motor loss I got last time I got glutened eating out. Now the second batch of pudding also tested low gluten (I accidentally forgot to soap scrub and dishwasher the immersion blender and spatula only rinsing under hot water)   But I do not vomit when I eat it, the numbness is minimal, fog is almost non existent, but I have a twitch and the swollen lymph nodes D is absent but I am dealing with hard stools and constipation. Nima says the low gluten can mean 5-15,000 ppm, all my ingredients are labeled gluten-free so I assume it was the CC, And seems eating 2 cups of the pudding is not enough to trigger major symptoms, so I am going to say it must be on the lower end scale of that range.    I am finding this self study of the effects of gluten to very interesting when I am giving different forms, and doses. Fearful what this is going to do to my body for a week of very low doses but hopefully I do not set myself back too far.

20 hours ago, squirmingitch said:

UGH! I'm so sorry this has happened. I hope you recover quickly and find the source of the trouble.

Pretty sure it was the presliced and packaged beets, I was fine before adding them to the pudding batch on day 2. they were not labeled gluten-free and were a off brand generic company that also makes plenty of sauced/flavored/seasoned canned goods. (Hoping it was these god forbid it was something else) >.> I used a gluten-free cotton candy extract in the first batch but it was a off white yellow color so I used beets to make it pink and add sweetness >.< Made great pudding/ice cream cotton candy flavor but perfect in smoothies.....wish I did not have to throw it out.

Jmg Mentor
1 hour ago, Ennis_TX said:

I used beets to make it pink and add sweetness >.< Made great pudding/ice cream cotton candy flavor but perfect in smoothies.....wish I did not have to throw it out.

Next time maybe use fresh beets? They just need cooking for a little while to soften them up :)

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
Posterboy Mentor

enniss_tx,

This is a follow up post.

I just responded to another post about how taking betainehcl can help stomach function and when reading over the research (though I knew this) but couldn't quite pen it down at the time that the Beets you used can explain the issues you where having when you added beets.

see this article about recidification of your stomach where the drug companies studied to help medicine's work better and presumably digestion too would benefit using the same protocol they laid out.

Open Original Shared Link

I know from another post you said you were taking PPI's for gastric support.

By introducing the beets quoting " Betaine is a naturally occurring substance that can be found in a variety of foods including beets, spinach, and whole wheat foods."

On 2/14/2017 at 7:19 AM, Ennis_TX said:

day 3 I added the beets to it,

and then "all hell broke loose" my words.  They counter acted the PPI's causing your stomach to spike (but not enough to get truly to a high level enough) to digest your food.

So the splatter from too little acid make you sicker.

see this link where I explain this in more detail.

this best explains what happened I think at least to me.  When taking PPI's any acid (natural or otherwise) when it is too low can cause the same symptom's that today are/is commonly mistakenly confused for too much stomach acid.

Open Original Shared Link

It is called attachment rate and why it almost impossible for people to stop PPI's at least without taking BetaineHCL for gastric support as you when yourself off of them slowly.

Again I hope this is helpful.

posterboy,

Ennis-TX Grand Master

No the canned beets were contaminated. it was off brand from the local chain down here. They do a bunch of sauced veggie lines also, and I assume that is where it came from but I did have another can and test it by itself to confirm.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,911
    • Most Online (within 30 mins)
      7,748

    Cici123
    Newest Member
    Cici123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.