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Who's From Michigan?


StrongerToday

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StrongerToday Enthusiast

Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?


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  • Replies 82
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mommida Enthusiast

I'm in Michigan, lower pennisula. Freezing my behind off today, even though I'm wearing long johns.

Laura

hkeener Newbie

I am in Michigan and newly diagnosed... I live in Ypsilanti.

StrongerToday Enthusiast
I am in Michigan and newly diagnosed... I live in Ypsilanti.

I'm in Ann Arbor! Have you checked out the yahoo/ann arbor group? It's at Open Original Shared Link

I just joined over the weekend. I hope you're feeling better! :D

Dangerkitten Newbie

Hi,

Another Michigander here :) just north of Lansing. The snow is just so pretty that I don't care about the cold. Makes me want to bake a nice fresh hot loaf of Bob's Red Mill bread.

Janet

pixiegirl Enthusiast

I live on Cape Cod now but I was born and raised in Bloomfield Hills, Michigan!!

Susan :)

redheadheather Explorer

Another Michigander (Michiganian?) here! NW Michigan to be exact.


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  • 4 weeks later...
linz boowie Newbie
Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?

Hi, Chesterfiled ( I94 and 23mile). Celiac since birth 45 years ago.

darlindeb25 Collaborator

I am a Lawn Guylander now (Long Island, New York) but grew up in Ashley, Michigan. Dangerkitten, Janet, I worked in St. Johns for years. My sister is celiac and a dietician in St. Johns. There is a very nice store in Lansing on the east side that is called "Food For Life". It has a wide variety of gluten free foods and I miss that store here. The owner has only the one store. Deb

Nancy W Newbie
I live on Cape Cod now but I was born and raised in Bloomfield Hills, Michigan!!

Susan :)

I was born in Detroit but my aunt lives in Bloomfield Hills! I wonder if you know her? She lives on echo lane. I live in Miami now but I really miss Michigan

ianm Apprentice

I grew up in the Mt Pleasant area and now live in Ann Arbor.

BabySnooks Rookie
Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?

Hi,

I am from Madison Heights, Michigan. Was gluten-free for 3 1/2 months, now am doing a gluten challenge. I don't know why, since blood work and endoscopy were positive. Who am I to argue with the doctor, I am really enjoying my vacation from being gluten free. LOL

Sharon

Guest Rad

Hi . . .

I grew up 30 miles northwest of Port Huron in the countryside. The nearest town is Jeddo. Am living in New Mexico now. But visit Michigan every other year; only during the beautiful summers.

Dianna

pixiegirl Enthusiast

Nancy! I lived very close to Echo Lane! I had a horse and road him down Echo to a kids camp that was there, they had tons of riding trails there. Small world, no?

Susan

alicegray27 Newbie

Westland MI.

gointribal Enthusiast

I'm from MI, in the Jackson area and I was hoping I could get some help about Celiac. I know if I have it for sure or not but the doctors are checking. I had some blood work done and the only thing that was "bad" was a persecntage in the gluten blood work that they did. I had a colonoscopy done and that was fine. I am have a EDG done next month and I don't know if I should go back on gluten? I have been gluten-free for about 4 months and I can totally tell when I get it in my diet. I am at a loss as to what steps to take, I think my doctor thinks its all in my head but she hasn't said no its not Celiac. Can someone offer some help?

StrongerToday Enthusiast

There are lots of places you can get some help, including this board. Read a lot of messages; post a lot of questions. There is no question too personal or gross (see some of the "poop" threads if you don't believe me!). Locally, I know there's a Lansing area group and a Tri-County group - I don't have the addresses off the top of my head but I"m sure you could google them. If you have trouble let me know.

IMO the diet challenge is proof enough for me. If I eat something and feel sick from it, then I shouldn't eat it. I don't need a piece of paper telling me what I can and can not eat; in my circumstances the paper is wrong. All my blood tests came back negative; but the one time I ate wheat again I was sick as a dog. I also can't process any dairy. I'm giving my GI tract some time to heal, then will try dairy again.

You may want to read Wheat Free/Worry Free and Dangerous Grains. Also, there's lots of good cookbooks out there too - those have been very helpful to me.

You'll find lots of good info and helpful people here, so welcome and good luck!

samrenee Newbie

Hello, I am from Big Rapids Michigan. Diagnosed 2 years ago this Feb 19. I am 40 years old and work for a title insurance company. I recently seperated from my husband of 7 years. I am looking for freinds. I have been alone since I was diagnosed, there are no close support groups for me, or anyone around me with celiac disease. I was also diagnosed with Microscopic Colitis. You can email me or I have yahoo messenger. My messenger Id is: lilith_of_malroy@yahoo.com

SofiEmiMom Enthusiast

Macomb Township, Michigan. Myself and my two young daughters have Celiac.

  • 2 weeks later...
Danielle Newbie

I am in Kalamazoo, MI here. Diagnosed a year ago this month. Life has changed drastically but, I am surviving. :D

printmaker81 Rookie

I'm originally from Georgia, but I am going to grad school at Cranbrook Academy of Art in Bloomfield Hills. Diagnosed about nine months ago and starting to feel like a real person again.

mommida Enthusiast

Cranbrook!!? You are really close to me. I'm about 6 minutes north from DTE/Pine Knob. Let me know if you need help.

Laura

  • 3 weeks later...
Guest lindzay
Hi, Chesterfiled ( I94 and 23mile). Celiac since birth 45 years ago.

hello me i changed my userID. I am now Lindzay.

  • 2 weeks later...
Shagalynn Newbie

Hi there. From Highland. Diagnosed 2-1/2 years ago. Can't wait for the warmer weather to break.

Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?
  • 3 weeks later...
annab Newbie

Giulio's Cucina Italiana, Gluten Free Dining in Michigan (Livonia)

Hello fellow Michiganders

I just found a great Italian restaurant in Livonia called Giulio's Cucina Italiana. They offer Gluten free entrees including different pastas with a great choice of sauces. Their website is www.giulios.us

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    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
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