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Who's From Michigan?


StrongerToday

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StrongerToday Enthusiast

Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?


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  • Replies 82
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mommida Enthusiast

I'm in Michigan, lower pennisula. Freezing my behind off today, even though I'm wearing long johns.

Laura

hkeener Newbie

I am in Michigan and newly diagnosed... I live in Ypsilanti.

StrongerToday Enthusiast
I am in Michigan and newly diagnosed... I live in Ypsilanti.

I'm in Ann Arbor! Have you checked out the yahoo/ann arbor group? It's at Open Original Shared Link

I just joined over the weekend. I hope you're feeling better! :D

Dangerkitten Newbie

Hi,

Another Michigander here :) just north of Lansing. The snow is just so pretty that I don't care about the cold. Makes me want to bake a nice fresh hot loaf of Bob's Red Mill bread.

Janet

pixiegirl Enthusiast

I live on Cape Cod now but I was born and raised in Bloomfield Hills, Michigan!!

Susan :)

redheadheather Explorer

Another Michigander (Michiganian?) here! NW Michigan to be exact.


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  • 4 weeks later...
linz boowie Newbie
Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?

Hi, Chesterfiled ( I94 and 23mile). Celiac since birth 45 years ago.

darlindeb25 Collaborator

I am a Lawn Guylander now (Long Island, New York) but grew up in Ashley, Michigan. Dangerkitten, Janet, I worked in St. Johns for years. My sister is celiac and a dietician in St. Johns. There is a very nice store in Lansing on the east side that is called "Food For Life". It has a wide variety of gluten free foods and I miss that store here. The owner has only the one store. Deb

Nancy W Newbie
I live on Cape Cod now but I was born and raised in Bloomfield Hills, Michigan!!

Susan :)

I was born in Detroit but my aunt lives in Bloomfield Hills! I wonder if you know her? She lives on echo lane. I live in Miami now but I really miss Michigan

ianm Apprentice

I grew up in the Mt Pleasant area and now live in Ann Arbor.

BabySnooks Rookie
Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?

Hi,

I am from Madison Heights, Michigan. Was gluten-free for 3 1/2 months, now am doing a gluten challenge. I don't know why, since blood work and endoscopy were positive. Who am I to argue with the doctor, I am really enjoying my vacation from being gluten free. LOL

Sharon

Guest Rad

Hi . . .

I grew up 30 miles northwest of Port Huron in the countryside. The nearest town is Jeddo. Am living in New Mexico now. But visit Michigan every other year; only during the beautiful summers.

Dianna

pixiegirl Enthusiast

Nancy! I lived very close to Echo Lane! I had a horse and road him down Echo to a kids camp that was there, they had tons of riding trails there. Small world, no?

Susan

alicegray27 Newbie

Westland MI.

gointribal Enthusiast

I'm from MI, in the Jackson area and I was hoping I could get some help about Celiac. I know if I have it for sure or not but the doctors are checking. I had some blood work done and the only thing that was "bad" was a persecntage in the gluten blood work that they did. I had a colonoscopy done and that was fine. I am have a EDG done next month and I don't know if I should go back on gluten? I have been gluten-free for about 4 months and I can totally tell when I get it in my diet. I am at a loss as to what steps to take, I think my doctor thinks its all in my head but she hasn't said no its not Celiac. Can someone offer some help?

StrongerToday Enthusiast

There are lots of places you can get some help, including this board. Read a lot of messages; post a lot of questions. There is no question too personal or gross (see some of the "poop" threads if you don't believe me!). Locally, I know there's a Lansing area group and a Tri-County group - I don't have the addresses off the top of my head but I"m sure you could google them. If you have trouble let me know.

IMO the diet challenge is proof enough for me. If I eat something and feel sick from it, then I shouldn't eat it. I don't need a piece of paper telling me what I can and can not eat; in my circumstances the paper is wrong. All my blood tests came back negative; but the one time I ate wheat again I was sick as a dog. I also can't process any dairy. I'm giving my GI tract some time to heal, then will try dairy again.

You may want to read Wheat Free/Worry Free and Dangerous Grains. Also, there's lots of good cookbooks out there too - those have been very helpful to me.

You'll find lots of good info and helpful people here, so welcome and good luck!

samrenee Newbie

Hello, I am from Big Rapids Michigan. Diagnosed 2 years ago this Feb 19. I am 40 years old and work for a title insurance company. I recently seperated from my husband of 7 years. I am looking for freinds. I have been alone since I was diagnosed, there are no close support groups for me, or anyone around me with celiac disease. I was also diagnosed with Microscopic Colitis. You can email me or I have yahoo messenger. My messenger Id is: lilith_of_malroy@yahoo.com

SofiEmiMom Enthusiast

Macomb Township, Michigan. Myself and my two young daughters have Celiac.

  • 2 weeks later...
Danielle Newbie

I am in Kalamazoo, MI here. Diagnosed a year ago this month. Life has changed drastically but, I am surviving. :D

printmaker81 Rookie

I'm originally from Georgia, but I am going to grad school at Cranbrook Academy of Art in Bloomfield Hills. Diagnosed about nine months ago and starting to feel like a real person again.

mommida Enthusiast

Cranbrook!!? You are really close to me. I'm about 6 minutes north from DTE/Pine Knob. Let me know if you need help.

Laura

  • 3 weeks later...
Guest lindzay
Hi, Chesterfiled ( I94 and 23mile). Celiac since birth 45 years ago.

hello me i changed my userID. I am now Lindzay.

  • 2 weeks later...
Shagalynn Newbie

Hi there. From Highland. Diagnosed 2-1/2 years ago. Can't wait for the warmer weather to break.

Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?
  • 3 weeks later...
annab Newbie

Giulio's Cucina Italiana, Gluten Free Dining in Michigan (Livonia)

Hello fellow Michiganders

I just found a great Italian restaurant in Livonia called Giulio's Cucina Italiana. They offer Gluten free entrees including different pastas with a great choice of sauces. Their website is www.giulios.us

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    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    • Florence Lillian
      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) .  I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir and it has really started healing my Gut. It has been about 2 months now and I am doing so much better. It was trial and error getting the right PH in the Kefir ferment that agreed with my stomach, too little ferment, too much, I finally hit the right one for me. Milk Kefir has the most probiotics than any of the other. I can't find my notes right now but there are at least 30 probiotics in Kefir, Kombucha has about 5-7 and yogurt around 3 if I recall correctly.  I wish you all the best, I know how frustrating this condition can be. 
    • Charlie1946
      @cristiana Hi, thank you so much, I will look into those books for sure! And get bloodwork at my next appointment. I have never been told I have TMJ, but I have seen information on it and the nerve issue while googling this devil plague in my mouth. Thank you so much for the advice!
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