Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who's From Michigan?


StrongerToday

Recommended Posts

StrongerToday Enthusiast

Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 82
  • Created
  • Last Reply
mommida Enthusiast

I'm in Michigan, lower pennisula. Freezing my behind off today, even though I'm wearing long johns.

Laura

hkeener Newbie

I am in Michigan and newly diagnosed... I live in Ypsilanti.

StrongerToday Enthusiast
I am in Michigan and newly diagnosed... I live in Ypsilanti.

I'm in Ann Arbor! Have you checked out the yahoo/ann arbor group? It's at Open Original Shared Link

I just joined over the weekend. I hope you're feeling better! :D

Dangerkitten Newbie

Hi,

Another Michigander here :) just north of Lansing. The snow is just so pretty that I don't care about the cold. Makes me want to bake a nice fresh hot loaf of Bob's Red Mill bread.

Janet

pixiegirl Enthusiast

I live on Cape Cod now but I was born and raised in Bloomfield Hills, Michigan!!

Susan :)

redheadheather Explorer

Another Michigander (Michiganian?) here! NW Michigan to be exact.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
linz boowie Newbie
Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?

Hi, Chesterfiled ( I94 and 23mile). Celiac since birth 45 years ago.

darlindeb25 Collaborator

I am a Lawn Guylander now (Long Island, New York) but grew up in Ashley, Michigan. Dangerkitten, Janet, I worked in St. Johns for years. My sister is celiac and a dietician in St. Johns. There is a very nice store in Lansing on the east side that is called "Food For Life". It has a wide variety of gluten free foods and I miss that store here. The owner has only the one store. Deb

Nancy W Newbie
I live on Cape Cod now but I was born and raised in Bloomfield Hills, Michigan!!

Susan :)

I was born in Detroit but my aunt lives in Bloomfield Hills! I wonder if you know her? She lives on echo lane. I live in Miami now but I really miss Michigan

ianm Apprentice

I grew up in the Mt Pleasant area and now live in Ann Arbor.

BabySnooks Rookie
Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?

Hi,

I am from Madison Heights, Michigan. Was gluten-free for 3 1/2 months, now am doing a gluten challenge. I don't know why, since blood work and endoscopy were positive. Who am I to argue with the doctor, I am really enjoying my vacation from being gluten free. LOL

Sharon

Guest Rad

Hi . . .

I grew up 30 miles northwest of Port Huron in the countryside. The nearest town is Jeddo. Am living in New Mexico now. But visit Michigan every other year; only during the beautiful summers.

Dianna

pixiegirl Enthusiast

Nancy! I lived very close to Echo Lane! I had a horse and road him down Echo to a kids camp that was there, they had tons of riding trails there. Small world, no?

Susan

alicegray27 Newbie

Westland MI.

gointribal Enthusiast

I'm from MI, in the Jackson area and I was hoping I could get some help about Celiac. I know if I have it for sure or not but the doctors are checking. I had some blood work done and the only thing that was "bad" was a persecntage in the gluten blood work that they did. I had a colonoscopy done and that was fine. I am have a EDG done next month and I don't know if I should go back on gluten? I have been gluten-free for about 4 months and I can totally tell when I get it in my diet. I am at a loss as to what steps to take, I think my doctor thinks its all in my head but she hasn't said no its not Celiac. Can someone offer some help?

StrongerToday Enthusiast

There are lots of places you can get some help, including this board. Read a lot of messages; post a lot of questions. There is no question too personal or gross (see some of the "poop" threads if you don't believe me!). Locally, I know there's a Lansing area group and a Tri-County group - I don't have the addresses off the top of my head but I"m sure you could google them. If you have trouble let me know.

IMO the diet challenge is proof enough for me. If I eat something and feel sick from it, then I shouldn't eat it. I don't need a piece of paper telling me what I can and can not eat; in my circumstances the paper is wrong. All my blood tests came back negative; but the one time I ate wheat again I was sick as a dog. I also can't process any dairy. I'm giving my GI tract some time to heal, then will try dairy again.

You may want to read Wheat Free/Worry Free and Dangerous Grains. Also, there's lots of good cookbooks out there too - those have been very helpful to me.

You'll find lots of good info and helpful people here, so welcome and good luck!

samrenee Newbie

Hello, I am from Big Rapids Michigan. Diagnosed 2 years ago this Feb 19. I am 40 years old and work for a title insurance company. I recently seperated from my husband of 7 years. I am looking for freinds. I have been alone since I was diagnosed, there are no close support groups for me, or anyone around me with celiac disease. I was also diagnosed with Microscopic Colitis. You can email me or I have yahoo messenger. My messenger Id is: lilith_of_malroy@yahoo.com

SofiEmiMom Enthusiast

Macomb Township, Michigan. Myself and my two young daughters have Celiac.

  • 2 weeks later...
Danielle Newbie

I am in Kalamazoo, MI here. Diagnosed a year ago this month. Life has changed drastically but, I am surviving. :D

printmaker81 Rookie

I'm originally from Georgia, but I am going to grad school at Cranbrook Academy of Art in Bloomfield Hills. Diagnosed about nine months ago and starting to feel like a real person again.

mommida Enthusiast

Cranbrook!!? You are really close to me. I'm about 6 minutes north from DTE/Pine Knob. Let me know if you need help.

Laura

  • 3 weeks later...
Guest lindzay
Hi, Chesterfiled ( I94 and 23mile). Celiac since birth 45 years ago.

hello me i changed my userID. I am now Lindzay.

  • 2 weeks later...
Shagalynn Newbie

Hi there. From Highland. Diagnosed 2-1/2 years ago. Can't wait for the warmer weather to break.

Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?
  • 3 weeks later...
annab Newbie

Giulio's Cucina Italiana, Gluten Free Dining in Michigan (Livonia)

Hello fellow Michiganders

I just found a great Italian restaurant in Livonia called Giulio's Cucina Italiana. They offer Gluten free entrees including different pastas with a great choice of sauces. Their website is www.giulios.us

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,558
    • Most Online (within 30 mins)
      7,748

    Ortega
    Newest Member
    Ortega
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
    • knitty kitty
      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.