Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

tanya  crape

Recommended Posts

tanya  crape Newbie

dont seem to be getting  any  working treatment creams steroids antibiotic nothing seems to be working please help

17619805_1612370868776323_769524839_n.webp

17619662_1612374872109256_2078366530_n.webp

17619584_1612367902109953_664404464_n.webp

17619540_1612371012109642_1120195787_n.webp

17619085_1612375168775893_735304483_n.webp

17619123_1612371062109637_1609452489_n.webp

17619416_1612371018776308_481908965_n.webp

17619060_1612374858775924_1596595210_n.webp

17619123_1612371062109637_1609452489_n.webp

17619085_1612375168775893_735304483_n.webp

17579933_1612375068775903_905520550_n.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome Tanya!  

I know you must be suffering so!  Do you know if this is a celiac rash?  I do not have DH, but many of our members do.  Here is more information and possible treatment:

Open Original Shared Link

Open Original Shared Link

 

squirmingitch Veteran

Tanya you are clearly suffering but you told us nothing really. Have you been dx'd with celiac disease? Or have you been dx'd with dermatitis herpetiformis? If so, are you eating gluten free? For how long have you been eating gluten free?

  • 2 weeks later...
knitty kitty Grand Master

Does the rash get worse when exposed to sunlight?  It looks like it is on your neck, hands, forearms, shins and feet.  Does the rash occur anywhere else? Or just to areas exposed to sunshine?

I had Pellagra, a vitamin deficiency disease caused by a lack of Niacin, B3.  I had a similar rash on exposed areas that worsened when I was outside in the sun.  The areas that had the rash also became pigmented darker, especially my arms and hands.  This is called the gauntlet of pellagra.  The rash around the neck is called Casal's necklace.  I was tried lotions, ointment, and creams but nothing helped.  If it is Pellagra,  (check with your doctor first) you'll need to take supplementary Niacin (nicotinamide), tryptophan, and a good B Complex vitamin.  

Other symptoms of Pellagra (the four D's of Pellagra) dermatitis, diarrhea, dementia and death.  Many doctors are not familiar with Pellagra and don't recognize the symptoms. Often Pellagra is associated with alcoholism because that causes malabsorption similar to Celiac Disease.  

I began to experience relief from the itching within a few days of starting niacin supplements.

Hope this helps.

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,119
    • Most Online (within 30 mins)
      7,748

    anagramcat
    Newest Member
    anagramcat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.