Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whats the endoscopy like?


KathleenH

Recommended Posts

KathleenH Enthusiast

Hi guys, tomorrow is my endoscopy what should I expect? They didnt really tell me.  Do they fully sedate you or is it more like a twilight zone? How long does it take? How long will I feel loopy after? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tessa25 Rising Star

If you've ever been put under, it's like that. You go into the hospital, put on the gown, get an IV inserted, wait. Get wheeled into the operating room, put under, wake up in recovery. Always feels weird to me going to sleep in the operating room and waking up in a different room 1 second later. :) Easy peasy.

 

KathleenH Enthusiast
10 minutes ago, tessa25 said:

If you've ever been put under, it's like that. You go into the hospital, put on the gown, get an IV inserted, wait. Get wheeled into the operating room, put under, wake up in recovery. Always feels weird to me going to sleep in the operating room and waking up in a different room 1 second later. :) Easy peasy.

 

Okayy so it is like real anethesia? I know sometimes with colonoscopys they do like a light sedation. I was kinda hoping for that. Haha I always cry from anesthesia.. just a weird reaction I have. This should be a breeze though Im not too worried.. I've had two other major surgeries this year. Hopefully with this diagnosis I can make changes to my diet and prevent future problems. Thanks for replying! 

GFinDC Veteran

I was totally out for my recent endoscopy + colonoscopy.  But for just an endoscopy, I am not sure what they do.  Your doctor's office can tell you.  If you request it, they may do full anesthesia.  But you will probably need someone to drive you home.

Jmg Mentor
10 minutes ago, KathleenH said:

Okayy so it is like real anethesia? I know sometimes with colonoscopys they do like a light sedation. I was kinda hoping for that. Haha I always cry from anesthesia.. just a weird reaction I have. This should be a breeze though Im not too worried.. I've had two other major surgeries this year. Hopefully with this diagnosis I can make changes to my diet and prevent future problems. Thanks for replying! 

Here in the UK I was offered a choice, light sedation or nothing more than a spray for the throat. I went with the latter so that I could drive myself home afterwards. 

tessa25 Rising Star

I was given Propofol(sp?). That's anesthesia. It's light because it's only for 15 minutes so any reaction you typically have should be less of a reaction.

KathleenH Enthusiast
1 minute ago, tessa25 said:

I was given Propofol(sp?). That's anesthesia. It's light because it's only for 15 minutes so any reaction you typically have should be less of a reaction.

Hmm so it seems like everyone has a different experience. I guess ill find out tomorrow lol. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Went in they took my vitals, had me change into a gown, hooked me up to a IV, oxygen nose thing, and a machine to monitor my heart and BP. Wheeled me in had me lay on my side and used anesthesia via the IV to put me to sleep. Came out of it feeling great, no issues and felt oddly better rested then I do with a whole nights sleep.

All in all I would say the fasting, cleanse, and all the prep is 8-10 times worse the the procedure itself. I had no after effects with my digestive tract either.

TexasJen Collaborator

Generally, you are given conscious sedation for endoscopy (as opposed to general sedation). In general sedation, they give you meds enough to stop your own breathing. Then they hook you up to a ventilator. In conscious sedation, you are breathing on your own, but are usually given a medicine that helps you forget what happened. You can wake up during the procedure with either type (it's more likely with conscious sedation) but typically you don't remember it if you do. 

I didn't remember a thing. I was able to think mostly clearly within 5-10 min of waking up, felt well enough to stand up and walk to the car, but went home and slept for a couple of hours...... Woke up feeling a bit groggy for a couple more hours and hungry!

Good luck!

KathleenH Enthusiast

Hey guys so I had the endoscopy today. When my doctor was going into it he made it sound like all of a sudden he didnt think I had celiacs. He said my antigen levels were elevated but not super high.  When I woke up he told me that he didnt see anything that indicated celiacs with the naked eye. So he took like 5-6  biopsies  and he will see how those look. He said if it comes back negative they are going to do a DNA test to see how predisposed my DNA is. Why would he all of a sudden think I dont have it? I feel so sad today. I just want to feel better. :'( did any of you have a normal looking intestine but your biopsy was postive?

Ennis-TX Grand Master

The villi damage can not be directly seen but under a microscope. IF the damage is really bad there can be obvious signs such as flattened folds, discoloration, inflammation, ulcers, and mucus. NOW you could have non celiac gluten intolerance, which has many of the same sickening symptoms as celiac but the villi damage and very high antibodies might not be present. In which case a gluten-free diet is also the cure and needs to be strictly followed.    Either way you might try the gluten-free diet for a months and see how your improve.

plumbago Experienced
18 hours ago, Ennis_TX said:

The villi damage can not be directly seen but under a microscope. IF the damage is really bad there can be obvious signs such as flattened folds, discoloration, inflammation, ulcers, and mucus. NOW you could have non celiac gluten intolerance, which has many of the same sickening symptoms as celiac but the villi damage and very high antibodies might not be present. In which case a gluten-free diet is also the cure and needs to be strictly followed.    Either way you might try the gluten-free diet for a months and see how your improve.

The gastroenterologist who did my endoscopy met with me directly after the procedure and indicated that he strongly suspected Celiac based on what he had just seen. So I think sometimes docs can tell during the procedure whether there is villi blunting or not. Microscopic examination then confirms it.  There are youtube videos showing normal vs flattened villi.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,570
    • Most Online (within 30 mins)
      7,748

    Moody
    Newest Member
    Moody
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.