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been 6 days since my daughter had her biopsies done

tarab87

By tarab87
in Related Issues & Disorders

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tarab87 Rookie
tarab87
Posted

hi all it's been 6 days since my 7 year old daughter had her biopsies done. the wait for results is the hardest part the "not knowing" 

they said it would be no more then 10 days for the results. 

what should I expect from here? 

her blood test so far showed TTG at 91 and EMA positive 

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KathleenH Enthusiast
KathleenH
Posted

I'm no expert and I was only recently diagnosed but heres what I would think... I feel like if her blood work came back indicating celiacs and they cared enough to do an endoscopy than chances are are her biposies will show celiacs. Also if it doesnt maybe she's gluten intolerant? But like I said I'm no doctor lol. What helped me in the meantime of waiting for my results was looking up new recipes to make and going to the supermarket to look at gluten free alternatives. I did this to find stuff I like to substitute as my old favorites just incase they came back positive. Hope she starts feeling better! 

tessa25 Rising Star
tessa25
Posted

When I had a TTG greater than 100 and a positive EMA  my doctor said "you have celiac. I'm going to do an endoscopy, but you have celiac". LOL This was based on > 10 being considered high.

That means no more wheat, rye, or barley ever again. Someone more experienced and more well spoken than me will be by here in a bit I'm sure, but here's my quick list of yummy gluten-free equivalents so she won't feel different other than eating her own versions of things.

 

Note: insert the words "gluten free" in every item mentioned as some of the companies also sell non gluten free stuff. It's tedious to write that phrase all the time.

Get a chest freezer to store all of your frozen gluten-free foods. Makes things easier.

Bread: Canyon bakehouse without question is the most realistic tasting bread.
Canyon bakehouse plain bagels are practically indistinguishable from regular bagels.
Canyon bakehouse white bread makes fantastic toast. It has a very slight sweet taste to it. My friend says it tastes like normal bread. The only difference to me is the sweetness.
Canyon bakehouse deli rye is great if you like rye bread sandwiches. Toasted is best.
Canyon bakehouse multigrain tastes exactly like multigrain bread and does not need to be toasted.
Schar baguettes are fantastic.
Katz makes an English muffin that, after toasted, reminds me of a real one provided it has stuff on it like butter. I think that's the brand.
Etalia has a good boule (sp?) if you prefer artisan bread.

Pizza crust:
Shar makes a good thick and chewy crust.
Udis makes a good thin and crispy crust.
Etalia makes a great New York crust.

Pasta:
Barilla makes the only good pasta that I know of. Spaghetti cooks the best.
RP has a frozen pasta that I'm going to try next.

Flour:
Pamelas all-purpose flour is great for making gravy and batter for fried foods.

Cereal:
Envirokidz Gorilla Munch cereal is an equivalent to corn Pops.

Cookies:
Glutino and Kinnikinnik make a decent Oreo equivalent.
Mi Del makes a great ginger snap.
Goodie Girl mint slims - great girl scout mint cookie equivalent

Cake:
Betty Crocker chocolate cake tastes the same, but you have to get the time exactly right. It is a very small window of time. Too long and it's too dry.

 

 

 

 

 

cyclinglady Grand Master
cyclinglady
Posted

I just want to add to Tessa's comment about the freezer.  I have a big upright freezer in the garage.  It is a lifesaver!  Besides, the usual frozen meat, etc.  I have some gluten-free prepared meals on hand that I made for those busy days when I can not cook.  I also have a variety of cupcakes, cookies, etc. to grab when we are attending parties.  I buy the CanyonHouse bread in bulk (get a discount) from my local Sprouts (cheaper version of Whole Foods).  It comes frozen and I store in my freezer.  I also cook beans in bulk and divide and freeze.  I have been making lots of beans in anticipation of summer (no sense heating up the house  with a simmering pot of beans).  

It is hard to wait!  Be sure to follow-up.  My GI forgot to let me know right away (he was very apologetic), but I had already gone gluten-free (hubby had been gluten-free for 12 years, so it was an easy switch).  Even if negative (damage patches can be missed), I would talk to her GI about trialing  the diet.  

tarab87 Rookie
tarab87
Posted
  • Author

thank you all for the replies and advise it's greatly appreciated I will be taking it all on board. 

I really do love this site, reading people's stories and advice there wen needed. 

Thank you 

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