Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Group


tambrown

Recommended Posts

tambrown Newbie

Hello, I was diagnosed with Celiac disease about 6 years ago. I've been living gluten free and doing well for the most part but lately my energy etc. has been running low. 

I can't figure out here if you still have your support meetings. I didn't live in Norfolk, when I was first diagnosed but do now. Do you still meet? If so, when are your meetings?

 

I need to adjust something I believe. 

 

Bye for now


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
4 hours ago, tambrown said:

Hello, I was diagnosed with Celiac disease about 6 years ago. I've been living gluten free and doing well for the most part but lately my energy etc. has been running low. 

I can't figure out here if you still have your support meetings. I didn't live in Norfolk, when I was first diagnosed but do now. Do you still meet? If so, when are your meetings?

 

I need to adjust something I believe. 

 

Bye for now

I am not sure who you are addressing this to?  Celiac. Com does not run support groups ( other than this site).  Perhaps you could google "Celiac support New York" to find info on the one closest to you.

You could start a topic explaining your issues & people may have some suggestions or experiences to share.

tambrown Newbie
2 hours ago, kareng said:

I am not sure who you are addressing this to?  Celiac. Com does not run support groups ( other than this site).  Perhaps you could google "Celiac support New York" to find info on the one closest to you.

You could start a topic explaining your issues & people may have some suggestions or experiences to share.

 

tambrown Newbie

hey thanks for the reply. 

 

When I went to the link for Norfolk celiac support, this came up. I figured out after that it is a general national organization. 

thank you for your time. 

cyclinglady Grand Master

@tambrown

When was your last celiac disease follow-up with your GI?  You current problems might not be related to celiac disease at all.  

Learn more about follow-up care:

Open Original Shared Link

I hope you feel better soon!  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,525
    • Most Online (within 30 mins)
      7,748

    Alil Qt
    Newest Member
    Alil Qt
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.