Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New celiac and Depression?


6throundpick

Recommended Posts

6throundpick Newbie

Hi all!

 

New to all of this. After doctor after doctor not knowing much and misdiagnosis after misdiagnosis (you get the idea here), we tried a gluten elimination diet and since then, physically, I was feeling TONS better. This feeling went on about a week, maybe 2, but I am now experiencing debilitating DEPRESSION and extreme disorientation. It has been difficult to decipher how I am feeling, outside of feeling a lack of control. I am reading that some of this is common, but do any of you have similar stories or advice to send my way? Did anyone else feel this way from withdrawal? I used to be bubbly and driven, I find myself now having difficulty getting out of bed, doing what I used to love and I have no appetite! Any words of wisdom?

 

:unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor

Hello and welcome to the forum :)

 

2 hours ago, 6throundpick said:

we tried a gluten elimination diet and since then, physically, I was feeling TONS better.

Did you have any celiac testing prior to going gluten free?  

2 hours ago, 6throundpick said:

 experiencing debilitating DEPRESSION and extreme disorientation

Until the moment you first connect that stuff in just about every processed food in the store to your mental health you would never believe that bread can make you depressed. Once you do connect the dots its a life changing event. It certainly was for me. 

It's not uncommon to have a rocky first few weeks on the diet. Celiac testing notwithstanding it's probably a sign you're on the right track, because otherwise why would removing gluten have such a profound effect on your mental health?

You have a choice, you can pursue a definitive answer, this would involve going back on gluten, more info on this here:

or stay on the diet and see how you go over a longer period of time. 

 

2 hours ago, 6throundpick said:

I used to be bubbly and driven, I find myself now having difficulty getting out of bed, doing what I used to love and I have no appetite! Any words of wisdom?

I suffered from depression for a very long time and the only thing which really impacted on it was going gluten free. It didn't lift it altogether however, being gluten-free is very helpful to my mental health but it doesn't make me immune from depression, sadly! It's a big subject but some useful steps:

Make sure you're taking a vitamin supplement each day

Eat well, lots of whole foods, make sure you're DEFINITELY not getting any gluten from hidden sources. If you're new to the diet its super easy to make mistakes. More info here via the post I linked to above (newbie thread).

Get sunshine each day if you can.

Walk, be active. 

Talk to people about it, here online but also in real life. Don't be afraid to let others know what you're going through and remember it will pass.

All the best,

Matt

 

 

  • 4 weeks later...
Emma123 Newbie
On May 3, 2017 at 11:14 AM, 6throundpick said:

Hi all!

 

New to all of this. After doctor after doctor not knowing much and misdiagnosis after misdiagnosis (you get the idea here), we tried a gluten elimination diet and since then, physically, I was feeling TONS better. This feeling went on about a week, maybe 2, but I am now experiencing debilitating DEPRESSION and extreme disorientation. It has been difficult to decipher how I am feeling, outside of feeling a lack of control. I am reading that some of this is common, but do any of you have similar stories or advice to send my way? Did anyone else feel this way from withdrawal? I used to be bubbly and driven, I find myself now having difficulty getting out of bed, doing what I used to love and I have no appetite! Any words of wisdom?

 

:unsure:

The absolute worst symptom of my celiac is DEBILITATING depression. For 7 years, horrible horrible horrible depression. I know the day after I eat gluten because my mood darkens significantly and I have an onslaught of negative thinking. 

The thing that finally got me off of the depression meds was that I switched to completely whole foods and I STARTED GOING TO THE GYM. On top of the gluten free diet, I cut anything processed, COFFEE (its so hard on the tummy and bad for leaky gut) anything with soy or dairy (occasionally irritates my stomach for some reason) and started taking a TON of supplements. 

Going to the gym was the hardest because I HATE working out but I have no anxiety or depression after 7 awful years, way more energy, and get toilet sick way less. 

Super weird. Don't understand it, but it saved me.

 

 

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,197
    • Most Online (within 30 mins)
      7,748

    Liburna
    Newest Member
    Liburna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.