Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New celiac and Depression?


6throundpick

Recommended Posts

6throundpick Newbie

Hi all!

 

New to all of this. After doctor after doctor not knowing much and misdiagnosis after misdiagnosis (you get the idea here), we tried a gluten elimination diet and since then, physically, I was feeling TONS better. This feeling went on about a week, maybe 2, but I am now experiencing debilitating DEPRESSION and extreme disorientation. It has been difficult to decipher how I am feeling, outside of feeling a lack of control. I am reading that some of this is common, but do any of you have similar stories or advice to send my way? Did anyone else feel this way from withdrawal? I used to be bubbly and driven, I find myself now having difficulty getting out of bed, doing what I used to love and I have no appetite! Any words of wisdom?

 

:unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor

Hello and welcome to the forum :)

 

2 hours ago, 6throundpick said:

we tried a gluten elimination diet and since then, physically, I was feeling TONS better.

Did you have any celiac testing prior to going gluten free?  

2 hours ago, 6throundpick said:

 experiencing debilitating DEPRESSION and extreme disorientation

Until the moment you first connect that stuff in just about every processed food in the store to your mental health you would never believe that bread can make you depressed. Once you do connect the dots its a life changing event. It certainly was for me. 

It's not uncommon to have a rocky first few weeks on the diet. Celiac testing notwithstanding it's probably a sign you're on the right track, because otherwise why would removing gluten have such a profound effect on your mental health?

You have a choice, you can pursue a definitive answer, this would involve going back on gluten, more info on this here:

or stay on the diet and see how you go over a longer period of time. 

 

2 hours ago, 6throundpick said:

I used to be bubbly and driven, I find myself now having difficulty getting out of bed, doing what I used to love and I have no appetite! Any words of wisdom?

I suffered from depression for a very long time and the only thing which really impacted on it was going gluten free. It didn't lift it altogether however, being gluten-free is very helpful to my mental health but it doesn't make me immune from depression, sadly! It's a big subject but some useful steps:

Make sure you're taking a vitamin supplement each day

Eat well, lots of whole foods, make sure you're DEFINITELY not getting any gluten from hidden sources. If you're new to the diet its super easy to make mistakes. More info here via the post I linked to above (newbie thread).

Get sunshine each day if you can.

Walk, be active. 

Talk to people about it, here online but also in real life. Don't be afraid to let others know what you're going through and remember it will pass.

All the best,

Matt

 

 

  • 4 weeks later...
Emma123 Newbie
On May 3, 2017 at 11:14 AM, 6throundpick said:

Hi all!

 

New to all of this. After doctor after doctor not knowing much and misdiagnosis after misdiagnosis (you get the idea here), we tried a gluten elimination diet and since then, physically, I was feeling TONS better. This feeling went on about a week, maybe 2, but I am now experiencing debilitating DEPRESSION and extreme disorientation. It has been difficult to decipher how I am feeling, outside of feeling a lack of control. I am reading that some of this is common, but do any of you have similar stories or advice to send my way? Did anyone else feel this way from withdrawal? I used to be bubbly and driven, I find myself now having difficulty getting out of bed, doing what I used to love and I have no appetite! Any words of wisdom?

 

:unsure:

The absolute worst symptom of my celiac is DEBILITATING depression. For 7 years, horrible horrible horrible depression. I know the day after I eat gluten because my mood darkens significantly and I have an onslaught of negative thinking. 

The thing that finally got me off of the depression meds was that I switched to completely whole foods and I STARTED GOING TO THE GYM. On top of the gluten free diet, I cut anything processed, COFFEE (its so hard on the tummy and bad for leaky gut) anything with soy or dairy (occasionally irritates my stomach for some reason) and started taking a TON of supplements. 

Going to the gym was the hardest because I HATE working out but I have no anxiety or depression after 7 awful years, way more energy, and get toilet sick way less. 

Super weird. Don't understand it, but it saved me.

 

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,632
    • Most Online (within 30 mins)
      7,748

    junell
    Newest Member
    junell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I think going back to your GI isn't a bad idea - my visits to the GI did not stop following my diagnosis as I had annoying issues on and off for some time.  Thankfully he is a fantastic GI, with  a great sense of humour, so it wasn't a chore to see him again although I'd rather not have had to, obviously!  But I needed my mind to be put at rest as my symptoms didn't seem to go away overnight as I'd hoped they would.  Initially I recall he recommended I went Dairy Free for three weeks, and he told me it would take that time to see an effect.  At that time, even lactose free milk went straight through me, so it is important, I would say, to even avoid that during a Dairy Free trial. My ongoing symptoms were bloating which did respond a bit to that trial.   However, within about 18 months there was a return to a very sore stomach, plus various aches and pains.   It turned out some gluten was sneaking in with my iron supplement (I was buying Floradix instead of Floravital), but I also think the dishwasher, the oven and eating out were contributors, too. Before my numbers normalised (from memory, about eight years!) I had several follow up appointments and a few more tests, but things gradually did get better.  Having read many accounts on this forum over the years, I don't think it is uncommon for symptoms to get a bit worse before getting better, that was certainly the case with me.  Your gut is damaged so you may well have issues digesting other food in the short term. But do try to be as scrupulously gluten free as you can possibly be as a first step, and I'd definitely try a three week Dairy Free trial.   Your villi because they are damaged are not able to create the lactase required to digest dairy at this time so you may well see some improvement if you come off dairy for a while.  Perhaps keeping a food diary of what you eat, where you eat it, whilst a bit onerous to do, will help identify foods that are causing issues.  For a while, apart from oats, I found peas, lentils and soya products hugely aggravating.  Things should calm down.
    • Rejoicephd
      Thankfully those are normal. B12 was on the low end of the normal range when I first got diagnosed. When I last got it checked, it had come up a lot (455 last time checked).
    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/  I didn't notice any gluten ingredients in Kirkland Almond non-dairy beverage, however it does contain Locust Bean Gum. Some gums may cause IBS-type issues in some people with celiac disease or gluten sensitivity:    
    • trents
      Have you had B12 levels checked?
    • Rejoicephd
      For the past few months, I've been taking several supplements (a multi-vitamin, an iron supplement, a vitamin C supplement, and a magnesium supplement), all of which state that they are gluten free on the label.  
×
×
  • Create New...