Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Celiac Disease Affect The Kidneys?


silvermoth

Recommended Posts

silvermoth Rookie

Curious if Celiac affects the kidneys in any way? I had a bout of intense pain under my right rib cage that lasted almost 2 days. This pain was worse than child birth and constant. I ended up in the ER several times since this incident. I've had several ultrasounds, two CT scans, MRI of pelvis and abdomen, HIDA scan, colonoscopy and endoscopy. By the time I had the colonoscopy and endoscopy I was only eating gluten on occasion and I was in the hospital for 3 days fasting for various tests. I read your intestines can heal pretty fast making it so a biopsy would be negative- which in my case was negative. During this time I had many urinalysis done and something was always abnormal in them- blood in urine, high wbc, bacteria.. After this bout of pain I haven't been the same since. I always have pain in my ribs on each side (I've noticed the pain turns to burning and tingling pain if I eat gluten or dairy) After my second MRI (done with a brand new machine) I was told I have a "lymphocele" behind my left kidney- not attached. This radiologist was asked to look over all my previous scans and sure enough it's been there since day one. I read these can be a misdiagnosed urinoma. It got me thinking, I've had all these abnormal urinaysis test results, along with bubbles in urine, white mucusy strings and at times feeling of being kicked in the bladder especially at night. I'm told this would not cause my pain as it's only 2cm, but I beg to differ! I now have constant discomfort in my ribs and if I eat gluten my pains become worse. I usually get symptoms a day after, but I've had bad symptoms happen quickly (ate out at a restaurant that claimed to have strict gluten kitchen practices) I got bad cramping about 10 minutes into my dinner and felt like someone kicked me in the ribs days after. I made grain-free chocolate chip cookies for my family and I two days ago and I think I've been glutened yet again. I used Enjoy Life mini chocolate chips which have never bothered me before and Bob's Red Mill almond flour. I also used garbanzo bean brine in place of eggs as I'm intolerant of eggs. For the past 2 days I've felt like someone is pressing in my chest and my heart feels like it's fluttering (my husband checked several times, and it's beating fine) and I have a odd pit in my stomach almost like an excited feeling with burning, random bouts of pain in my abdomen and flank pain. I feel so weak and tired like I have the flu or an infection, I keep getting muscle aches and spasms in my upper back and neck and annoying headaches. I'm so scared it's affecting my kidneys yet again, but I have no idea if it even affects the kidneys or not. If anyone has been through anything similar or can tell me if Celiac affects they kidneys I would greatly appreciate it. Thanks so much. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria5289 Apprentice
On 5/10/2017 at 7:26 AM, silvermoth said:

Curious if Celiac affects the kidneys in any way? I had a bout of intense pain under my right rib cage that lasted almost 2 days. This pain was worse than child birth and constant. I ended up in the ER several times since this incident. I've had several ultrasounds, two CT scans, MRI of pelvis and abdomen, HIDA scan, colonoscopy and endoscopy. By the time I had the colonoscopy and endoscopy I was only eating gluten on occasion and I was in the hospital for 3 days fasting for various tests. I read your intestines can heal pretty fast making it so a biopsy would be negative- which in my case was negative. During this time I had many urinalysis done and something was always abnormal in them- blood in urine, high wbc, bacteria.. After this bout of pain I haven't been the same since. I always have pain in my ribs on each side (I've noticed the pain turns to burning and tingling pain if I eat gluten or dairy) After my second MRI (done with a brand new machine) I was told I have a "lymphocele" behind my left kidney- not attached. This radiologist was asked to look over all my previous scans and sure enough it's been there since day one. I read these can be a misdiagnosed urinoma. It got me thinking, I've had all these abnormal urinaysis test results, along with bubbles in urine, white mucusy strings and at times feeling of being kicked in the bladder especially at night. I'm told this would not cause my pain as it's only 2cm, but I beg to differ! I now have constant discomfort in my ribs and if I eat gluten my pains become worse. I usually get symptoms a day after, but I've had bad symptoms happen quickly (ate out at a restaurant that claimed to have strict gluten kitchen practices) I got bad cramping about 10 minutes into my dinner and felt like someone kicked me in the ribs days after. I made grain-free chocolate chip cookies for my family and I two days ago and I think I've been glutened yet again. I used Enjoy Life mini chocolate chips which have never bothered me before and Bob's Red Mill almond flour. I also used garbanzo bean brine in place of eggs as I'm intolerant of eggs. For the past 2 days I've felt like someone is pressing in my chest and my heart feels like it's fluttering (my husband checked several times, and it's beating fine) and I have a odd pit in my stomach almost like an excited feeling with burning, random bouts of pain in my abdomen and flank pain. I feel so weak and tired like I have the flu or an infection, I keep getting muscle aches and spasms in my upper back and neck and annoying headaches. I'm so scared it's affecting my kidneys yet again, but I have no idea if it even affects the kidneys or not. If anyone has been through anything similar or can tell me if Celiac affects they kidneys I would greatly appreciate it. Thanks so much. 

Its ok I don't think it's gluten problems yet

  • 2 weeks later...
silvermoth Rookie
On 5/17/2017 at 9:08 AM, Victoria5289 said:

Its ok I don't think it's gluten problems yet

I'm not really sure what you mean? 

Victoria1234 Experienced
1 hour ago, silvermoth said:

I'm not really sure what you mean? 

Don't pay any attention to that reply.

By the way I am so sorry you are suffering so much. I have no answers for you at all but hopefully someone will! When is the next time you see your doctor?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,116
    • Most Online (within 30 mins)
      7,748

    rubyterrapin
    Newest Member
    rubyterrapin
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.