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Does Celiac Disease Affect The Kidneys?


silvermoth

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silvermoth Rookie

Curious if Celiac affects the kidneys in any way? I had a bout of intense pain under my right rib cage that lasted almost 2 days. This pain was worse than child birth and constant. I ended up in the ER several times since this incident. I've had several ultrasounds, two CT scans, MRI of pelvis and abdomen, HIDA scan, colonoscopy and endoscopy. By the time I had the colonoscopy and endoscopy I was only eating gluten on occasion and I was in the hospital for 3 days fasting for various tests. I read your intestines can heal pretty fast making it so a biopsy would be negative- which in my case was negative. During this time I had many urinalysis done and something was always abnormal in them- blood in urine, high wbc, bacteria.. After this bout of pain I haven't been the same since. I always have pain in my ribs on each side (I've noticed the pain turns to burning and tingling pain if I eat gluten or dairy) After my second MRI (done with a brand new machine) I was told I have a "lymphocele" behind my left kidney- not attached. This radiologist was asked to look over all my previous scans and sure enough it's been there since day one. I read these can be a misdiagnosed urinoma. It got me thinking, I've had all these abnormal urinaysis test results, along with bubbles in urine, white mucusy strings and at times feeling of being kicked in the bladder especially at night. I'm told this would not cause my pain as it's only 2cm, but I beg to differ! I now have constant discomfort in my ribs and if I eat gluten my pains become worse. I usually get symptoms a day after, but I've had bad symptoms happen quickly (ate out at a restaurant that claimed to have strict gluten kitchen practices) I got bad cramping about 10 minutes into my dinner and felt like someone kicked me in the ribs days after. I made grain-free chocolate chip cookies for my family and I two days ago and I think I've been glutened yet again. I used Enjoy Life mini chocolate chips which have never bothered me before and Bob's Red Mill almond flour. I also used garbanzo bean brine in place of eggs as I'm intolerant of eggs. For the past 2 days I've felt like someone is pressing in my chest and my heart feels like it's fluttering (my husband checked several times, and it's beating fine) and I have a odd pit in my stomach almost like an excited feeling with burning, random bouts of pain in my abdomen and flank pain. I feel so weak and tired like I have the flu or an infection, I keep getting muscle aches and spasms in my upper back and neck and annoying headaches. I'm so scared it's affecting my kidneys yet again, but I have no idea if it even affects the kidneys or not. If anyone has been through anything similar or can tell me if Celiac affects they kidneys I would greatly appreciate it. Thanks so much. 


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Victoria5289 Apprentice
On 5/10/2017 at 7:26 AM, silvermoth said:

Curious if Celiac affects the kidneys in any way? I had a bout of intense pain under my right rib cage that lasted almost 2 days. This pain was worse than child birth and constant. I ended up in the ER several times since this incident. I've had several ultrasounds, two CT scans, MRI of pelvis and abdomen, HIDA scan, colonoscopy and endoscopy. By the time I had the colonoscopy and endoscopy I was only eating gluten on occasion and I was in the hospital for 3 days fasting for various tests. I read your intestines can heal pretty fast making it so a biopsy would be negative- which in my case was negative. During this time I had many urinalysis done and something was always abnormal in them- blood in urine, high wbc, bacteria.. After this bout of pain I haven't been the same since. I always have pain in my ribs on each side (I've noticed the pain turns to burning and tingling pain if I eat gluten or dairy) After my second MRI (done with a brand new machine) I was told I have a "lymphocele" behind my left kidney- not attached. This radiologist was asked to look over all my previous scans and sure enough it's been there since day one. I read these can be a misdiagnosed urinoma. It got me thinking, I've had all these abnormal urinaysis test results, along with bubbles in urine, white mucusy strings and at times feeling of being kicked in the bladder especially at night. I'm told this would not cause my pain as it's only 2cm, but I beg to differ! I now have constant discomfort in my ribs and if I eat gluten my pains become worse. I usually get symptoms a day after, but I've had bad symptoms happen quickly (ate out at a restaurant that claimed to have strict gluten kitchen practices) I got bad cramping about 10 minutes into my dinner and felt like someone kicked me in the ribs days after. I made grain-free chocolate chip cookies for my family and I two days ago and I think I've been glutened yet again. I used Enjoy Life mini chocolate chips which have never bothered me before and Bob's Red Mill almond flour. I also used garbanzo bean brine in place of eggs as I'm intolerant of eggs. For the past 2 days I've felt like someone is pressing in my chest and my heart feels like it's fluttering (my husband checked several times, and it's beating fine) and I have a odd pit in my stomach almost like an excited feeling with burning, random bouts of pain in my abdomen and flank pain. I feel so weak and tired like I have the flu or an infection, I keep getting muscle aches and spasms in my upper back and neck and annoying headaches. I'm so scared it's affecting my kidneys yet again, but I have no idea if it even affects the kidneys or not. If anyone has been through anything similar or can tell me if Celiac affects they kidneys I would greatly appreciate it. Thanks so much. 

Its ok I don't think it's gluten problems yet

  • 2 weeks later...
silvermoth Rookie
On 5/17/2017 at 9:08 AM, Victoria5289 said:

Its ok I don't think it's gluten problems yet

I'm not really sure what you mean? 

Victoria1234 Experienced
1 hour ago, silvermoth said:

I'm not really sure what you mean? 

Don't pay any attention to that reply.

By the way I am so sorry you are suffering so much. I have no answers for you at all but hopefully someone will! When is the next time you see your doctor?

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    • pilber309
      I eat a lot of dairy but its intermittent is this burning so I would assume it would happen all the time. Plus I have been tested for lactose intolerance  etc and I am fine and the other symptoms of that I don't get. As a aside  my dad died last month after a long illness so I wonder if the stress of that might be a influence as a bodily reaction to stress.
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      You should be fine.  You may start feeling better within a few days.  Someone who is very low in thiamine may notice improvement within hours.   Did you get the NeuroMag  or another magnesium supplement?
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      Yes Bobs redmill cgf oatmeal I started when I became gluten-free. So taking all 3 with breakfast should work? Will I notice any reactions getting used to these or should I be fine. Thanks
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      Hello, @pilber309, welcome to the forum! Are you currently consuming dairy?   You mentioned something about lots of yogurt and cheese, but did you cut it out or are you eating lots of it?   Could you clarify please? Some people with Celiac react to casein, the protein in dairy the same as to gluten with antibodies and villi damage. 
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