Confusing results....

[Kelloramma]

I have my endoscopy and colonscopy in August and have to do the gluten challenge for 3 weeks.  No problem.  The GI specialist decided to do some liver tests as my ultrasound showed cirrhosis and hepatocellular disease.  Everything was normal except my ceruplasmin and IGM antiglobulins were low.  My original IGG was high but the other celiac panel was negative so I decide to go gluten free for 4 months.  For the most part my diarrhea and severe abdominal cramps and mucous are gone.  I get the odd flareup with I am associating with having gluten.  I also went for some non traditional food testing and it showed positive for wheat but the Gi specialist dismissed the results because they are scientifically valid.  That being said the burning has returned tonight and a buscopan is helping for the most part.

I spent hours coming the internet and there seems to be an association with low ceruplasmin and low IGM (although it is rare). Priot to going gluten my previous colonoscopy was negative for everything.

 I am 100% convinced it is Celiac...or some other wierd inflammatory bowel process.  Does anyone else have this similar situation.  To be honest, I have extreme anxiety about it being something else...

Thank you so much in advance for any relevant feedback you may have.  Please note:  I got the liver results on line from the lab and I have not consulted my doctor yet....Kelly. 

 

[tessa25]

I don't know how old your daughter is so I don't know how appropriate my response is. I would try to find a simple diet one day that doesn't give her any problems. Say a piece of chicken, potatoes, summer squash and butter. If, by the next afternoon, she doesn't have any pains  write it down in the logbook and add on a simple food or two the next day. If eating a few of the basics doesn't help at all, then perhaps two weeks is too short of a time to notice a difference. If she can go a few days without pain you now have a small list of foods that don't bother her at all. As long as you keep a log, if she eats something that bothers her you will know within a day or two and can put it in the bad column. Then just gradually add on foods. Within a couple of weeks you'll have a list of safe foods and a list of bad foods

 

[ironictruth]

I am sorry for what you are going through. 

What IGG test was originally high? 

How advanced is the liver disease? 

[Kelloramma]

10 hours ago, tessa25 said:

I don't know how old your daughter is so I don't know how appropriate my response is. I would try to find a simple diet one day that doesn't give her any problems. Say a piece of chicken, potatoes, summer squash and butter. If, by the next afternoon, she doesn't have any pains  write it down in the logbook and add on a simple food or two the next day. If eating a few of the basics doesn't help at all, then perhaps two weeks is too short of a time to notice a difference. If she can go a few days without pain you now have a small list of foods that don't bother her at all. As long as you keep a log, if she eats something that bothers her you will know within a day or two and can put it in the bad column. Then just gradually add on foods. Within a couple of weeks you'll have a list of safe foods and a list of bad foods

 

Hi...it is not my daughter it is me....and I have th gluten-free client down pat...just wondering about the weird test results.  My liver is fine and I am asymptomatic. 

35 minutes ago, ironictruth said:

I am sorry for what you are going through. 

What IGG test was originally high? 

How advanced is the liver disease? 

Hello,  I am actually much better now that when I was eating glucose.  The original diagliadin IGG was high and the other panel tests normal for celiac..I dont have any liver disease, no issues, all tests fine except the weird cirrhosis that showed up on a ultrasound (checking me for diverticulitis).  I have read that celiac can cause issues with liver due to malabsorption.  My B12 has been low for many years.   Don't be sorry...I am the closest I have ever been to getting a true diagnosis...just a bit nervous....Thank you

[tessa25]

Quote

Hi...it is not my daughter it is me....and I have th gluten-free client down pat...just wondering about the weird test results.  My liver is fine and I am asymptomatic. 

Sorry, my post belongs in someone elses  question. Must have posted it here by mistake.

[ironictruth]

2 hours ago, Kelloramma said:

Hi...it is not my daughter it is me....and I have th gluten-free client down pat...just wondering about the weird test results.  My liver is fine and I am asymptomatic. 

Hello,  I am actually much better now that when I was eating glucose.  The original diagliadin IGG was high and the other panel tests normal for celiac..I dont have any liver disease, no issues, all tests fine except the weird cirrhosis that showed up on a ultrasound (checking me for diverticulitis).  I have read that celiac can cause issues with liver due to malabsorption.  My B12 has been low for many years.   Don't be sorry...I am the closest I have ever been to getting a true diagnosis...just a bit nervous....Thank you

I ask because deamidated gliadin can show up positive in liver disease (including cirrhosis) even absent celiac. As can a b12 deficiency. So if your biopsy is negative, that may be a differential.

Good luck with the testing. Let us know how it turns out. 

 

[Victoria5289]

On 5/12/2017 at 9:10 PM, Kelloramma said:

I have my endoscopy and colonscopy in August and have to do the gluten challenge for 3 weeks.  No problem.  The GI specialist decided to do some liver tests as my ultrasound showed cirrhosis and hepatocellular disease.  Everything was normal except my ceruplasmin and IGM antiglobulins were low.  My original IGG was high but the other celiac panel was negative so I decide to go gluten free for 4 months.  For the most part my diarrhea and severe abdominal cramps and mucous are gone.  I get the odd flareup with I am associating with having gluten.  I also went for some non traditional food testing and it showed positive for wheat but the Gi specialist dismissed the results because they are scientifically valid.  That being said the burning has returned tonight and a buscopan is helping for the most part.

I spent hours coming the internet and there seems to be an association with low ceruplasmin and low IGM (although it is rare). Priot to going gluten my previous colonoscopy was negative for everything.

 I am 100% convinced it is Celiac...or some other wierd inflammatory bowel process.  Does anyone else have this similar situation.  To be honest, I have extreme anxiety about it being something else...

Thank you so much in advance for any relevant feedback you may have.  Please note:  I got the liver results on line from the lab and I have not consulted my doctor yet....Kelly. 

 

It's corhissis of the heart I believe is what your telling me it won't be right for any reason don't worry too much.