Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hearing? celiac disease Related?

VydorScope

By VydorScope
in Related Issues & Disorders

Recommended Posts

VydorScope Proficient
VydorScope
Posted

When my son was born he had one of them there infant hearing tests, and passed with the absolute best score possible. He is around 2 1/2 years old now, and is not speaking yet, at all. So via a program with the state we have 2 speech tutors come to our house weekly to work with him (on 2 dif days) been that way for several months now, and at our request they sent an audolgist to our house to test his hearing. He failed!!! :( His left ear got about the worst score you can rate on the meter. They redid the test with several weeks inbetween and used different equipment to be sure. So now we have an apt with an ENT to check him out...

Does this happen with celiac disease? Any relation? Probably not I guess.. but man.. poor kid been through enough already!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
When my son was born he had one of them there infant hearing tests, and passed with the absolute best score possible. He is around 2 1/2 years old now, and is not speaking yet, at all. So via a program with the state we have 2 speech tutors come to our house weekly to work with him (on 2 dif days) been that way for several months now, and at our request they sent an audolgist to our house to test his hearing. He failed!!! :( His left ear got about the worst score you can rate on the meter. They redid the test with several weeks inbetween and used different equipment to be sure. So now we have an apt with an ENT to check him out...

Does this happen with celiac disease? Any relation? Probably not I guess.. but man.. poor kid been through enough already!

Poor lil guy! Since he had great hearing at first and then it deteriorated, something must have happened, and I can see how you would blame celiac. All I know is that I've had congestion for months now and I think it is related to my consistant low poisening of myself w/ gluten (I ignored the word malt for years). My dr said that it'll take 12 to 18 months to reverse the symptoms. Anyhow, on the positive side, you are taking a proactive approach w/ your son's hearing. I suffered from repeated ear infections when in grade school and have suffered permanent loss of high and some low frequencies. Remember, this was before the term "glue ear" was around and the seriousness of congestion in the ears wasn't fully understood. But it did give me some empathy with the hearing empaired.

Annette

VydorScope Proficient
VydorScope
Posted
  • Author
Poor lil guy! Since he had great hearing at first and then it deteriorated, something must have happened, and I can see how you would blame celiac. All I know is that I've had congestion for months now and I think it is related to my consistant low poisening of myself w/ gluten (I ignored the word malt for years). My dr said that it'll take 12 to 18 months to reverse the symptoms. Anyhow, on the positive side, you are taking a proactive approach w/ your son's hearing. I suffered from repeated ear infections when in grade school and have suffered permanent loss of high and some low frequencies. Remember, this was before the term "glue ear" was around and the seriousness of congestion in the ears wasn't fully understood. But it did give me some empathy with the hearing empaired.

Annette

THe Audiologist looked in his ears and did not see anything wrong, but insisted that a ENT might see something she did not. My wife wears a hearing aid as a reminder of the FOUR TIMES she had tubes in her ears as a child. My son has only had one ear infection in his life, and that was cleared up easily with Amoxilyn or somthing like that. An antibotic.

He is extremly smart (expect speech scores way above age level on all tests), and does not act like he can not hear. I have been wondering if he is just smart enough to compensate some how. I know he can hear some cause he reacts to sounds that he could not possible know (like the dog barking in a different room) with out being able to hear.

nettiebeads Apprentice
nettiebeads
Posted

It's true that the younger one is, the easier it is for them to develop compensenting skills. I'm glad the audiologist recommended an ENT. I wish I had been sent to one years ago by my gp. But then again, this was the same gp that dx'd my celiac disease via the diet challenge.

And wasn't it in one ear that his hearing seems to be acutely affected? And btw, I think he's getting even cuter. Thanks for updating his pic.

Annette

VydorScope Proficient
VydorScope
Posted
  • Author
It's true that the younger one is, the easier it is for them to develop compensenting skills. I'm glad the audiologist recommended an ENT. I wish I had been sent to one years ago by my gp. But then again, this was the same gp that dx'd my celiac disease via the diet challenge.

And wasn't it in one ear that his hearing seems to be acutely affected? And btw, I think he's getting even cuter. Thanks for updating his pic.

Annette

Thanks! hehe you can alwys find updated pics at teh website in my sig. :D

At the first hearing test his right ear passed, but since its a pass/fail kind of thing theres no way to now if its "bearly passed" or perfect. He left ear failed. Same pass/fail concept.

At th retest he failed the left agian, and the right was not retested.

Guest nini
Guest nini
Posted

my daughter had the hearing test at birth and passed with flying colors, at her 3 year well check up she failed her hearing test... on further exploration her allergies were aggravating her sinus cavities and blocking her ears... they put her on Claritin for a while. It helped and she passed the hearing test next time around. After she went gluten-free though we were were able to take her off the Claritin as her other allergies weren't as severe. I still need to give her benedryl on occasion, but not Claritin every day.

Are his Dr.s looking at environmental allergies? That may be the culprit. Good luck.

oh and the reason that my daughter had the test at birth is because my husbands oldest sister is deaf, and since there was a "family history" they were obligated to test.

VydorScope Proficient
VydorScope
Posted
  • Author
my daughter had the hearing test at birth and passed with flying colors, at her 3 year well check up she failed her hearing test... on further exploration her allergies were aggravating her sinus cavities and blocking her ears... they put her on Claritin for a while. It helped and she passed the hearing test next time around. After she went gluten-free though we were were able to take her off the Claritin as her other allergies weren't as severe. I still need to give her benedryl on occasion, but not Claritin every day.

Are his Dr.s looking at environmental allergies? That may be the culprit. Good luck.

oh and the reason that my daughter had the test at birth is because my husbands oldest sister is deaf, and since there was a "family history" they were obligated to test.

Docs have not looked in to anything yet, we just begining this. So far all thats been done is the 2 tests by the auidologist.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debbiewil Rookie
debbiewil
Posted

Um, I know 2 people with celiac who also lost hearing. One had numerous associated diseases - Addison's, diabetes, etc., and whether the hearing loss came directly from the celiac, or from the host of related problems, I don't know. The other person really had no associated symptoms. She started losing her hearing in her twenties, and while she had some symptoms of celiac, of course it wasn't diagnosed for several more years. So there does seem to be some connection, but whether the hearing loss was directly related to celiac, or because of some nutrient deficiencies or more susceptibility to colds, infections, etc. because of the celiac, I don't know.

Debbie

pixiegirl Enthusiast
pixiegirl
Posted

I'm hearing impaired and I have Celiac, I wasn't diagnosed until last year and my hearing loss is from childhood so I'm not sure they are related, but just wanted you to know.

Susan

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do...
    3. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, ...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back u...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748
    GR82BNTX
    Newest Member
    GR82BNTX
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.