Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hearing? celiac disease Related?

VydorScope

By VydorScope
in Related Issues & Disorders

Recommended Posts

VydorScope Proficient
VydorScope
Posted

When my son was born he had one of them there infant hearing tests, and passed with the absolute best score possible. He is around 2 1/2 years old now, and is not speaking yet, at all. So via a program with the state we have 2 speech tutors come to our house weekly to work with him (on 2 dif days) been that way for several months now, and at our request they sent an audolgist to our house to test his hearing. He failed!!! :( His left ear got about the worst score you can rate on the meter. They redid the test with several weeks inbetween and used different equipment to be sure. So now we have an apt with an ENT to check him out...

Does this happen with celiac disease? Any relation? Probably not I guess.. but man.. poor kid been through enough already!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
When my son was born he had one of them there infant hearing tests, and passed with the absolute best score possible. He is around 2 1/2 years old now, and is not speaking yet, at all. So via a program with the state we have 2 speech tutors come to our house weekly to work with him (on 2 dif days) been that way for several months now, and at our request they sent an audolgist to our house to test his hearing. He failed!!! :( His left ear got about the worst score you can rate on the meter. They redid the test with several weeks inbetween and used different equipment to be sure. So now we have an apt with an ENT to check him out...

Does this happen with celiac disease? Any relation? Probably not I guess.. but man.. poor kid been through enough already!

Poor lil guy! Since he had great hearing at first and then it deteriorated, something must have happened, and I can see how you would blame celiac. All I know is that I've had congestion for months now and I think it is related to my consistant low poisening of myself w/ gluten (I ignored the word malt for years). My dr said that it'll take 12 to 18 months to reverse the symptoms. Anyhow, on the positive side, you are taking a proactive approach w/ your son's hearing. I suffered from repeated ear infections when in grade school and have suffered permanent loss of high and some low frequencies. Remember, this was before the term "glue ear" was around and the seriousness of congestion in the ears wasn't fully understood. But it did give me some empathy with the hearing empaired.

Annette

VydorScope Proficient
VydorScope
Posted
  • Author
Poor lil guy! Since he had great hearing at first and then it deteriorated, something must have happened, and I can see how you would blame celiac. All I know is that I've had congestion for months now and I think it is related to my consistant low poisening of myself w/ gluten (I ignored the word malt for years). My dr said that it'll take 12 to 18 months to reverse the symptoms. Anyhow, on the positive side, you are taking a proactive approach w/ your son's hearing. I suffered from repeated ear infections when in grade school and have suffered permanent loss of high and some low frequencies. Remember, this was before the term "glue ear" was around and the seriousness of congestion in the ears wasn't fully understood. But it did give me some empathy with the hearing empaired.

Annette

THe Audiologist looked in his ears and did not see anything wrong, but insisted that a ENT might see something she did not. My wife wears a hearing aid as a reminder of the FOUR TIMES she had tubes in her ears as a child. My son has only had one ear infection in his life, and that was cleared up easily with Amoxilyn or somthing like that. An antibotic.

He is extremly smart (expect speech scores way above age level on all tests), and does not act like he can not hear. I have been wondering if he is just smart enough to compensate some how. I know he can hear some cause he reacts to sounds that he could not possible know (like the dog barking in a different room) with out being able to hear.

nettiebeads Apprentice
nettiebeads
Posted

It's true that the younger one is, the easier it is for them to develop compensenting skills. I'm glad the audiologist recommended an ENT. I wish I had been sent to one years ago by my gp. But then again, this was the same gp that dx'd my celiac disease via the diet challenge.

And wasn't it in one ear that his hearing seems to be acutely affected? And btw, I think he's getting even cuter. Thanks for updating his pic.

Annette

VydorScope Proficient
VydorScope
Posted
  • Author
It's true that the younger one is, the easier it is for them to develop compensenting skills. I'm glad the audiologist recommended an ENT. I wish I had been sent to one years ago by my gp. But then again, this was the same gp that dx'd my celiac disease via the diet challenge.

And wasn't it in one ear that his hearing seems to be acutely affected? And btw, I think he's getting even cuter. Thanks for updating his pic.

Annette

Thanks! hehe you can alwys find updated pics at teh website in my sig. :D

At the first hearing test his right ear passed, but since its a pass/fail kind of thing theres no way to now if its "bearly passed" or perfect. He left ear failed. Same pass/fail concept.

At th retest he failed the left agian, and the right was not retested.

Guest nini
Guest nini
Posted

my daughter had the hearing test at birth and passed with flying colors, at her 3 year well check up she failed her hearing test... on further exploration her allergies were aggravating her sinus cavities and blocking her ears... they put her on Claritin for a while. It helped and she passed the hearing test next time around. After she went gluten-free though we were were able to take her off the Claritin as her other allergies weren't as severe. I still need to give her benedryl on occasion, but not Claritin every day.

Are his Dr.s looking at environmental allergies? That may be the culprit. Good luck.

oh and the reason that my daughter had the test at birth is because my husbands oldest sister is deaf, and since there was a "family history" they were obligated to test.

VydorScope Proficient
VydorScope
Posted
  • Author
my daughter had the hearing test at birth and passed with flying colors, at her 3 year well check up she failed her hearing test... on further exploration her allergies were aggravating her sinus cavities and blocking her ears... they put her on Claritin for a while. It helped and she passed the hearing test next time around. After she went gluten-free though we were were able to take her off the Claritin as her other allergies weren't as severe. I still need to give her benedryl on occasion, but not Claritin every day.

Are his Dr.s looking at environmental allergies? That may be the culprit. Good luck.

oh and the reason that my daughter had the test at birth is because my husbands oldest sister is deaf, and since there was a "family history" they were obligated to test.

Docs have not looked in to anything yet, we just begining this. So far all thats been done is the 2 tests by the auidologist.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debbiewil Rookie
debbiewil
Posted

Um, I know 2 people with celiac who also lost hearing. One had numerous associated diseases - Addison's, diabetes, etc., and whether the hearing loss came directly from the celiac, or from the host of related problems, I don't know. The other person really had no associated symptoms. She started losing her hearing in her twenties, and while she had some symptoms of celiac, of course it wasn't diagnosed for several more years. So there does seem to be some connection, but whether the hearing loss was directly related to celiac, or because of some nutrient deficiencies or more susceptibility to colds, infections, etc. because of the celiac, I don't know.

Debbie

pixiegirl Enthusiast
pixiegirl
Posted

I'm hearing impaired and I have Celiac, I wasn't diagnosed until last year and my hearing loss is from childhood so I'm not sure they are related, but just wanted you to know.

Susan

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748
    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.