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Gluten free stool related


Guelphgluten91

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Guelphgluten91 Newbie

Hi there, I've been on a gluten free diet for about 6 weeks now, as my doctor thinks I might be celiac (runs wild in my family, won't know until the biopsy though) anyway for the last few weeks I've noticed seed like spots in my stools. Sometimes only a couple, but more recently quite a bit throughout. I have taken a stool test and an currently waiting on the results, but I'm wondering if anyone else experienced this when they went gluten free? I eat relatively healthy, am not a big drinker, no smoking or drugs. I have been constipated too, but I feel that's from the lack of fiber (which I'm working on) anyway the seed like spots are the main concern. Thanks! 


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Victoria1234 Experienced

Not sure about the stools, but....why are you gluten free before your endoscopy? You need to be eating gluten for , I think, twelve weeks beforehand. You don't want to miss out on your diagnosis because of that. From what people say, the longer off gluten, the more difficult it is to go back on gluten as the body reacts more extremely, at least for some. 

Guelphgluten91 Newbie

I went gluten-free because I'm tired of feeling like carp/having to run to the bathroom, but know that I'll have to eat gluten for an accurate biopsy test. 

Victoria1234 Experienced
20 minutes ago, Guelphgluten91 said:

I went gluten-free because I'm tired of feeling like carp/having to run to the bathroom, but know that I'll have to eat gluten for an accurate biopsy test. 

Whew, glad you knew that already. When is your endoscopy? And glad you are feeling better!

Guelphgluten91 Newbie

That's the question! I heard an 8 month wait, but I need it bumped up due to travel plans. Its been a struggle.but this whole stool thing is freaking me out a bit

Ennis-TX Grand Master

Define spots? Like Bloody spots, just darker patches, or perhaps undigested foods? If undigested food I would suggest digestive enzymes, if blood it would depend on if dried dark tar blood or bright red as this would determine how far up it is and from there probably a colonoscopy to to find out where and what. What is your current diet?

BTW it is very easy to have a high fiber diet on a gluten-free meal plan I get 50-70g of fiber a day on average myself. I eat mostly seeds, and nuts though with a little bit of greens every meal. Along with a ton of protein powder and egg whites.

Jmg Mentor

If you're waiting on a stool test I guess you've spoken to the doctor already?

Parasites would be one possibility to check for

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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