Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Neck pain


pcooley4195

Recommended Posts

pcooley4195 Rookie

Hello all, I have been gluten free for over 4 months after being confirmed Celiac through the biopsy, I was wondering if anyone suffered from Neck pain or had extremely sensitive teeth for no apparent reason(no cavities). Both these symptoms happened the same time my joints started to hurt roughly a year and a half ago. Not sure if I'm the only one. Thanks for your time. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ironictruth Proficient
9 hours ago, pcooley4195 said:

Hello all, I have been gluten free for over 4 months after being confirmed Celiac through the biopsy, I was wondering if anyone suffered from Neck pain or had extremely sensitive teeth for no apparent reason(no cavities). Both these symptoms happened the same time my joints started to hurt roughly a year and a half ago. Not sure if I'm the only one. Thanks for your time. 

Hello. I have not been diagnosed celiac but ncgs by a celiac specialist. I have a Marsh 1 on biopsy. 

I have pain in my right neck on and off.  It led to a thyroid uLtrasound which showed my isthmus is larger on that side And I have a very small nodule. But an endocrinologist ruled out any issues with the thyroid. It is not consistent like a muscle. My doc informed me the pain from gluten exposure can occur anywhere. My sibling, who is confirmed celiac, also had neck pain Which vanished on a gluten free diet.

It is funny, because I was just complaining Yesterday about a sensitive molar on that side.  I have had it for some time and have been to the dentist a couple of times since it started and he has done x-rays both times and cannot find anything!  I have just been sort of dealing with it. I am due back for a cleaning on Thurs.  for me I actually did have a cavity somewhere over on that side that he had set, and then reset, and then reset again, hoping the pain would go away.

 I also developed joint pain around the same time first in the knees and now In the elbows.

 stay on top of it, make sure you talk to your dentist, and if it doesn't resolve bring it up each time you there.

 It is so hard to know when you feel like your body is falling apart what's relevant and what's not. 

cyclinglady Grand Master

Are you referring to bone or soft tissue?  You should consider getting your neck examed by a doctor.   It might not be related to celiac disease at all. 

As far as your teeth are concerned, celiac disease does have an impact.  Unfortunately, the damage is permanent.   Another possibility is neuropathy which for celiacs, can take a long time (over a year) to resolve.  

Four months into the diet?  It can take a long time to resolve symptoms.  Hang in there!  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,999
    • Most Online (within 30 mins)
      7,748

    Wendy Jo
    Newest Member
    Wendy Jo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.