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Neck pain

pcooley4195

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pcooley4195 Rookie
pcooley4195
Posted

Hello all, I have been gluten free for over 4 months after being confirmed Celiac through the biopsy, I was wondering if anyone suffered from Neck pain or had extremely sensitive teeth for no apparent reason(no cavities). Both these symptoms happened the same time my joints started to hurt roughly a year and a half ago. Not sure if I'm the only one. Thanks for your time. 

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ironictruth Proficient
ironictruth
Posted
9 hours ago, pcooley4195 said:

Hello all, I have been gluten free for over 4 months after being confirmed Celiac through the biopsy, I was wondering if anyone suffered from Neck pain or had extremely sensitive teeth for no apparent reason(no cavities). Both these symptoms happened the same time my joints started to hurt roughly a year and a half ago. Not sure if I'm the only one. Thanks for your time. 

Hello. I have not been diagnosed celiac but ncgs by a celiac specialist. I have a Marsh 1 on biopsy. 

I have pain in my right neck on and off.  It led to a thyroid uLtrasound which showed my isthmus is larger on that side And I have a very small nodule. But an endocrinologist ruled out any issues with the thyroid. It is not consistent like a muscle. My doc informed me the pain from gluten exposure can occur anywhere. My sibling, who is confirmed celiac, also had neck pain Which vanished on a gluten free diet.

It is funny, because I was just complaining Yesterday about a sensitive molar on that side.  I have had it for some time and have been to the dentist a couple of times since it started and he has done x-rays both times and cannot find anything!  I have just been sort of dealing with it. I am due back for a cleaning on Thurs.  for me I actually did have a cavity somewhere over on that side that he had set, and then reset, and then reset again, hoping the pain would go away.

 I also developed joint pain around the same time first in the knees and now In the elbows.

 stay on top of it, make sure you talk to your dentist, and if it doesn't resolve bring it up each time you there.

 It is so hard to know when you feel like your body is falling apart what's relevant and what's not. 

cyclinglady Grand Master
cyclinglady
Posted

Are you referring to bone or soft tissue?  You should consider getting your neck examed by a doctor.   It might not be related to celiac disease at all. 

As far as your teeth are concerned, celiac disease does have an impact.  Unfortunately, the damage is permanent.   Another possibility is neuropathy which for celiacs, can take a long time (over a year) to resolve.  

Four months into the diet?  It can take a long time to resolve symptoms.  Hang in there!  

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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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