Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

PLEASE does this look like DH

danielle.f

By danielle.f
in Dermatitis Herpetiformis

Recommended Posts

danielle.f Newbie
danielle.f
Posted

Hi .there. I'm so tired of feelig like absolute poo every day! I'm 21 and I have horrible skin, mucous in my stool, extreme stomach upset and fatigue every day! I get confused, spacey, lightheaded, dizzy, irritable feelings constantly it seems. My whole body always hurts. And my joints. If im not constipated, I have diarrhea. Gas. Bloating. Itchy rashy bumpy skin. Plus I'm always hungry it seems.  

 

Please tell me I'm on to figuring wth is wrong with me :( celiac isnt good it is a horrible diagnosis but I just need some answers. . Can I have your opinions please?  Thanks!

I dont know if my photos are going to work   .  Hopefully they do... :-/ 

 

2017-06-27_12.31.13.webp

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

It's difficult to tell from these images. DH is tiny, very itchy blisters. You might find this article helpful:

https://www.celiac.com/articles/24491/1/Living-with-Dermatitis-Herpetiformis/Page1.html

Jmg Mentor
Jmg
Posted
13 hours ago, danielle.f said:

celiac isnt good it is a horrible diagnosis but I just need some answers. . Can I have your opinions please?  Thanks!

This may sound weird as celiac is a serious auto immune disease... but... If you're diagnosed with celiac and follow the gluten free diet you could look forward to all of this:

13 hours ago, danielle.f said:

I'm so tired of feelig like absolute poo every day! I'm 21 and I have horrible skin, mucous in my stool, extreme stomach upset and fatigue every day! I get confused, spacey, lightheaded, dizzy, irritable feelings constantly it seems. My whole body always hurts. And my joints. If im not constipated, I have diarrhea. Gas. Bloating. Itchy rashy bumpy skin. Plus I'm always hungry it seems.

going away, without taking a pill or doing anything other than changing the way you eat. So don't be afraid of pursuing a diagnosis! Stay eating gluten, go to your doctors and ask them to test for celiac and to refer you to a dermatologist for the skin issues.

They can test your blood for markers. The Dermatologist can take a sample from your skin near the blisters (see admin's link) and you may get the answers you need.

Finally, if the tests are all negative and the doctors don't want to conduct any more you can go gluten free yourself to see if it helps. I tested negative but had many similar symptoms and they all cleared up on the diet. 

So, stay on gluten for now, get some tests underway and don't let anyone fob you off. You deserve some answers and you need to be assertive about your health and wellbeing when getting some.

Good luck!
 

Victoria1234 Experienced
Victoria1234
Posted

Your pics aren't very clear, but I can tell you it doesn't look like the dh I had, but that doesn't mean it's not dh. You need to be tested. Celiac isn't horrible at all once you manage it correctly with a gluten-free diet. And keep eating gluten until all your tests are done. You need a celiac panel blood test too.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748
    Estee
    Newest Member
    Estee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...