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Pre diagnosis

Audi711

By Audi711
in Related Issues & Disorders

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Audi711 Newbie
Audi711
Posted

So I know topic has been explored before but here goes

trying to get a diagnosis 

brother type 1 diabetic at age 17

I had my gallbladder removed at 40 with resulting IBS

Anxiety off and on for years 

symmetrical blister like rash on palms for years. Comes and goes mostly mild 

I usually eat low carb diet to help with IBS

poor teeth enamel

all celiac test result Iga Tttg Ttta EMA were normal. But I was on a Gluten lite type diet. I  ate occasional gluten Probably 80%. Less than the average person. No special cross contamination precautions taken. Just picked the croutons out of the salad used regular shampoo shared utensils  etc ..

I was having an exacerbation of IBs symptoms and rash at the time of  celiac testing

are the blood test results like inaccurate  ?  Seems like if I was having symptoms the antibodies would be present  I don't know  

 

 

 

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cyclinglady Grand Master
cyclinglady
Posted

Welcome.  You might consider asking for the DGP celiac tests.  I personally have never had a positive on the TTG or the EMA -- even on follow-up testing, yet my biopsies revealed intestinal damage.  The other thing to consider is that some 10% of celiacs are seronegative.  

Learn more about the complete panel:

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Audi711 Newbie
Audi711
Posted
  • Author

Thanks cycling lady. The saga continues ....

Jmg Mentor
Jmg
Posted
  On 7/7/2017 at 4:17 AM, Audi711 said:

 Seems like if I was having symptoms the antibodies would be present  I don't know  

Expand Quote  

Stay on gluten. Keep pushing for answers. Get as comprehensive testing as you possibly can. If celiac is finally excluded do not discount the possibility that gluten is a problem for you nonetheless:

Open Original Shared Link

At that point you have nothing to lose and potentially much to gain from trialling the gluten free diet. 

Best of luck! :)

Audi711 Newbie
Audi711
Posted
  • Author

Thanks for the advice. Will do ?

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