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News: Celiac.com: Pope says 'NO' to gluten free. But what about parishioners with celiac disease?


Scott Adams

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Scott Adams Grand Master

Pope Francis has reminded priests that gluten-free is not the way to go ... segment of the Catholics with celiac disease, which is a serious disease.

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Scarlettsdad Contributor

and I keep hearing how progressive this Pope is......simply ridiculous!

Besides my opinion, here's an Open Original Shared Link that states that there is some "wiggle room" for people with Celiac disease. 

In it, it states "After a decade of work, they came up with a Vatican-approved wafer, using wheat starch and water. It contains just .001 percent gluten, an amount low enough for most celiac sufferers, General Counselor Sister Ruth Starman told NPR."

Does anyone know if .001% gluten in a wafer would in fact be low enough? If so, could it even be trusted to be .001%??

 

 

 

BergieF Explorer
4 hours ago, Scarlettsdad said:

and I keep hearing how progressive this Pope is......simply ridiculous!

Besides my opinion, here's an Open Original Shared Link that states that there is some "wiggle room" for people with Celiac disease. 

In it, it states "After a decade of work, they came up with a Vatican-approved wafer, using wheat starch and water. It contains just .001 percent gluten, an amount low enough for most celiac sufferers, General Counselor Sister Ruth Starman told NPR."

Does anyone know if .001% gluten in a wafer would in fact be low enough? If so, could it even be trusted to be .001%??

 

 

 

I am Catholic and only receive wine, the blood of Christ.   Our priest makes sure that my kids and I are the first ones to receive communion from the chalice.  The wafer is considered low gluten.  

TexasJen Collaborator

Here's a good article to review.  Open Original Shared Link

TexasJen Collaborator
6 hours ago, Scarlettsdad said:

and I keep hearing how progressive this Pope is......simply ridiculous!

Besides my opinion, here's an Open Original Shared Link that states that there is some "wiggle room" for people with Celiac disease. 

In it, it states "After a decade of work, they came up with a Vatican-approved wafer, using wheat starch and water. It contains just .001 percent gluten, an amount low enough for most celiac sufferers, General Counselor Sister Ruth Starman told NPR."

Does anyone know if .001% gluten in a wafer would in fact be low enough? If so, could it even be trusted to be .001%??

 

 

 

 

 

 

 

 

 

. However, glutenfreewatchdog did an article on the low gluten hosts today. She tested a single host from the Benedictine sisters and found it to contain 0.0017 mg of gluten. Compare that to the 0.57mg found in a piece of gluten free bread. The amount of gluten you are exposed to is negligible if you take a low gluten host

Scarlettsdad Contributor

yes, thank you. Hopefully it's accurate. People are also sharing the fact that drinking the wine is also accepted. 

Scarlettsdad Contributor
6 hours ago, BergieF said:

I am Catholic and only receive wine, the blood of Christ.   Our priest makes sure that my kids and I are the first ones to receive communion from the chalice.  The wafer is considered low gluten.  

Thank you for this. My daughter is still a few years away from receiving her first Communion so I will definitely speak to my priest about this sort of accommodation. 


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TexasJen Collaborator

Here's another article when it's not safe to participate in communion. Spiritual communion. Open Original Shared Link

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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