Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Signs of Celiac disease? Short 5th finger?


MarkInes

Recommended Posts

MarkInes Newbie

Hi everybody! 

I was wondering when did you start noticing that it was Celiac disease, what was your first symptom? We just got back with the lab results from doctor and he confirmed that my 4yo son has Celiac disease and the doctor made a comment how we didn't notice that before because his pinky finger is so short compared to the others, and are not even (his left 5th finger is shorter than the right one). My right pinky finger is shorter too, but I never got tested. Should I? Anybody experienced same? Thanks! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
56 minutes ago, MarkInes said:

Hi everybody! 

I was wondering when did you start noticing that it was Celiac disease, what was your first symptom? We just got back with the lab results from doctor and he confirmed that my 4yo son has Celiac disease and the doctor made a comment how we didn't notice that before because his pinky finger is so short compared to the others, and are not even (his left 5th finger is shorter than the right one). My right pinky finger is shorter too, but I never got tested. Should I? Anybody experienced same? Thanks! 

I haven't seen finger length on the list of reasons to test for Celiac.  But having a first degree relative with Celiac is a reason to be tested every few years.

Ennis-TX Grand Master

Never heard of the finger issues myself either odd one......

It is a mostly genetic disease, and a odd one at that is that the gene can stay dormant in someone for years then become activated due to various reasons. Regardless as mentioned first degree relatives should be tested. Celiac in some people is silent not showing any outward symptoms for years but doing damage internally. A lot of times symptoms show up gradually and progress in a way you do not consider them to be all that odd again til the damage is done or progresses to a level sufficient enough to grab your attention.

If anything if the rest if the house hold test positive or someone else in the house test positive it would be a better reasons to change the whole house over to gluten-free making it much easier to manage meals and prevent cross contamination with no gluten in the house. So worth checking, if your new to this I will go ahead and link the newbie 101 thread there is a huge learning curve with gluten-free and avoiding CC but becomes second nature after a few months. We suggest a whole foods diet, no dairy or oats in addition for the first few months to jump start the healing process and simply it. I will give a list of gluten free food alternatives, places to get foods/groceries online, and how to order by UPC into your local grocery store.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

 

cyclinglady Grand Master

I think that is just a clinical observation on his part.  I had a Cardiologist once ask me during an examination (executive wellness check), if I ever had a heart murmur.  I said no and asked why.  He said that he noticed that people with really straight backs tend to have heart murmurs.  My back was very straight.   I told him both my brothers have heart murmurs.  He asked if they needed a cardiologist.  He had three kids at Unversity at the same time!  ?

I have the smallest adult pinky anyone has seen.  (Measured during big family parties with a bunch of little kids and you do all kinds of silly things to entertain each other......) My hands are stubby and the rest of me is little too.  Stunting?  Who knows?  But I am happy to blame celiac disease!  

Encourage all first degree relatives to get tested even if symptom free.  Google it.  

Glad that you know how to treat your son.  Hope he recovers fast!  

Jmg Mentor
3 hours ago, MarkInes said:

Hi everybody! 

I was wondering when did you start noticing that it was Celiac disease, what was your first symptom? We just got back with the lab results from doctor and he confirmed that my 4yo son has Celiac disease and the doctor made a comment how we didn't notice that before because his pinky finger is so short compared to the others, and are not even (his left 5th finger is shorter than the right one). My right pinky finger is shorter too, but I never got tested. Should I? Anybody experienced same? Thanks! 

Hi :)

This site almost always has the goods! Check this thread out:

It was first noted by an English Gastroenterologist and is known as Bralys sign!

Ennis-TX Grand Master

LOL I found a old poll someone did on this it is quite amusing, I looked at mine, my pinky on one hand is just below the ring finger top joint and my right hand it is 1/8th inch shorter. Odd things you never notice.

 

knitty kitty Grand Master

Yup, short pinkies here.  

Anyone have a tall forehead?

Open Original Shared Link

Leonardo da Vinci meets celiac disease.

"Adults, but not children, with celiac disease show a forehead extension significantly greater than controls, but this test's specificity appears too low to be used in the screening of celiac disease."

Curiouser and curiouser...

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
MarkInes Newbie
On 19.7.2017 at 2:02 PM, MarkInes said:

Hi everybody! 

I was wondering when did you start noticing that it was Celiac disease, what was your first symptom? We just got back with the lab results from doctor and he confirmed that my 4yo son has Celiac disease and the doctor made a comment how we didn't notice that before because his pinky finger is so short compared to the others, and are not even (his left 5th finger is shorter than the right one). I Open Original Shared Link too, but I never got tested. Should I? Anybody experienced same? Thanks! 

I'm planing a health provision at my doctor's anyways. I'll talk to her about my son's examination at the hospital, too.
Actually I do not have any health issues, so I don't think that I have celiac. But I read that you should not live on a gluten free diet when you get tested. As with our son I'm now forced to cook glutenfree logically I'll eat a lot less gluten too. So I think it would make sense to pass the tests now. 

Better safe than sorry :)

Thanks for your answers. Best, MI
 

BlackShoesBlackSocks Enthusiast

Are pinkie fingers not short, lol? Hm, the only finger length science l've seen is based on hormonal influence.

 

Sex hormones in  the womb affecting the first and fourth finger. It can be correlated with certain conditions but not usually autoimmune.

 

The 'masculine' long ring finger in women can be more common in autistic women or women with ADHD, my ring is longer on both hands but l don't display anything overtly masculine or have those conditions. Sometimes it's also just genetic.

 

Maybe it would be interesting to see how many on the forum also have this.

Pegleg84 Collaborator

I suppose having short fingers, or one that's super short, could be a sign of stunted growth which could be a sign of Celiac, but I certainly have never heard of short pinkies as a sign of it. If you have short ones too it makes more sense to me that it's just a genetic trait, but who knows. I do have a pretty tall forehead, but so did my dad and his side of the family. We're all short, thin-haired, and big-foreheaded. Of course, a few of us do have Celiac so maybe they're onto something...

Regardless, yes! you should get tested along with the father and any other children. Celiac is inherited even if it skips a generation. It can be asymptomatic, or may not have been triggered yet. The earlier you find out, the better. You can also get genetic testing done to see if you or anyone else has the possibility of developing Celiac, so can watch for symptoms later in life.

For your little boy, he's catching it super early so as long as he stays gluten-free he'll grow up healthy without all the complications people with undiagnosed Celiac can develop through their lives. That's a good thing!

Get tested, and good luck!

 

 

celiac sharon Apprentice

"Braly's Sign was first described in 1953 by an English Gastroenterologist, Dr James Braly. The majority of Celiac patients have a short 5th finger and this is Braly's Sign. (J Pediatric Gastroenterology and Nutrition 2000; volume 31 (Suppl.3):S29. NEJM, August 18, 1999). 
In short (pardon the pun), the tip of the 5th finger (pinkie finger) is shorter than the crease of the last joint of the 4th finger (ring finger)."
 

I had read about this and found it interesting, I was shocked as I am not the petite celiac at all. I stand 5'11" and am overweight with very long feet and hands. Imagine my surprise when I discovered that I, in fact,  had a positive Braly's sign.   I'm not sure how useful it is as a diagnostic sign, more of a "clue" I would think in presence of other indicators. 

Celiac's Wifey Explorer

So because I have been obsessively thinking and reading about all things celiac lately, I mentioned this curious observation (and the forehead one which we both are entertained by!) to my celiac husband, and it happened to be while we were taking a snack break watching last week's Game of Thrones.

(Any other fans out there?)

We decided Little Finger (on the show) is probably such an a$# because he is an undiagnosed celiac, badly 'glutened,' with severe neurological/psychiatric complications.....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,548
    • Most Online (within 30 mins)
      7,748

    Lunaluv
    Newest Member
    Lunaluv
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.