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Does It Get Better?


StrongerToday

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key Contributor

Ev,

Good for you!!! Guess I should stop pouting and go cook! LOL! IT does save money not eating out.

Monica


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StrongerToday Enthusiast

It's funny - I was never one to cook either... but... a girls gotta do what a girls gotta do!! Do you have any good cookbooks? I search my library for them and try to make at least one new thing every week or two. A lot of these dishes I'm sure no one could tell they were GFDF either!

jenvan Collaborator

Lisa-

I agree with Tiffany, if you have DH, you have Celiac...and the benefits are just as valuable to you as to the rest of us--and just as crucial. You may not have some of the worse symptoms yet, but it is only a matter ot time before the damage catches up with you...I do believe that. I'm glad I was able to encourage you a bit. Please let us know when you do revisit the subject--many of us care about you and the decision you make!

frustratedneicey Apprentice

I am an anxiety riddled mess most days, so I know how it feels. Sometimes medicines can help, but you did mention maybe therapy. A really good therapist can work with you and teach you some great coping skills. I finally found a good one I just started seeing recently. Find someone who will work with you, that works with people who have chronic illness. As everyone knows, this is a grieving process, and good coping skills will go a long way. I only go once every two weeks, so it is not so bad. I am a divorced mother of 3, with a boyfriend and his child, and I am also ill with what they are coming closer to diagnosing as MS. I go through alot of emotional and physical turmoil to get to my appointments, but,you will find time, believe me. It's worth it!!!

Idahogirl Apprentice

Thank you for all of the encouragement! I have been diagnosed with celiac, I was just saying that if I don't take my dapsone, I would be miserable on the outside, so even if I wanted to cheat or quit, it wouldn't be worth it.

I have a great therapist-Jesus! He gets me through a lot.

Lisa

jenvan Collaborator

Amen to Jesus Lisa :) Your prayer for the new year could be perserverance. Maybe the verse from James 1 can become your verse for 06..."Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything." Merry Christmas!

key Contributor

Jen,

I try and claim that promise too. Many times when I have reached the end of my rope, I have literally begged GOd to help me and He hasn't failed me yet, but I have been at some pretty low points, so if someone needs a therapist or medicine, then I think they should. Sometimes when I get real low, I believe it is because I am not taking care of myself. I have three small children and homeschool. My daily exercise routine keeps me happy!

monica


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jenvan Collaborator

Monica-

Sounds like you have a full house and a full plate! Glad to hear He hasn't failed you yet...me neither :) I totally agree on not taking care of oneself--when I haven't taken time--I get run down, burned out and moody quickly! (My dh can vouch for that!) Merry Christmas!

christianne Newbie

I would like to add my thoughts on effexor as well. I had tried, I think< just about every pill out there. I didn't want to rely on Xanax b/c it is so addictive. Effexor has been a life saver for me. I function in life without the panic attacks and my moods are more even. If you are having anxiety, don't feel weird about taking medication for it. The difference you will feel in your quality of life will be so much better. Effexor has been great for me, unfortunately, though, there is no generic for it and it can be expensive - even with insurance. Good luck!

darlindeb25 Collaborator

What does steak, cheese, and/or tuna have to do with Celiac disease or gluten intolerance? I'm new to this forum and just recently finding out about Celiac and possibly tying it to my ailments. Are these foods related somehow?

I wanted to add my thoughts to this. I dont eat any beef anymore, it's too hard on my stomach--beef is one of the toughest foods to digest. Cheese can be a problem for anyone with a problem with dairy--thank God I never had that intolerance. Tuna can be bad for the celiac who cant tolerate soy--there are a few brands that do not use soy for their vegetable broth in the tuna--I buy Bumble Bee brand tuna in the foil packets--no soy.

As for the panic, it does get better, if you are meaning true panic attacks. Panic attacks are caused by a chemical imbalance and once you get the gluten out of your system and the vitamins and minerals start working again, usually the chemical imbalance gets better too. My panic is almost gone--rarely I will still have a panic attack, but I think it is more an enviromental problem then chemical. Keep at it, things do get better. Deb

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    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
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