Help! Need help interpreting my blood test results

[Lena Smith]

Hello!

Can anyone give me your opinion on my celiac test results? The nurse on the phone said everything looks okay, but I got a copy of the report and a few things were flagged! I am beyond confused and frustrated.

I have been struggling over the last 2 years with TERRIBLE fatigue, headaches, joint pain, bloating, and constant stomach pain with weekly diarrhea. I've tested negative for RA as well as other autoimmune disorders. My doctor thinks I may have celiac and ordered a test, however I do not have a follow up appointment for another month. Here are my results:

**IGM, QN, Serum: Ref Range (26-217); 270 (high)
IGG, QN, Serum: Ref Range (600-1600); 961
IGA, QN, Serum: Ref Range (86-252); 248
**Deamidated Gliadin Abs, IGA: Ref Range (0-18); 20 (high)
**Deamidated Gliadin Abs, IGG: Ref Range (0-18); 58 (high)
tTG IGA: Ref Range (0-3); 2
tTG IGG: Ref Range (0-5); 1

Any insight at all will be greatly appreciated!

[Lorjenn22]

the first test is the general test for bloodwork. when i got mine back it was right @ 26. i was in range. your number is not btwn 26-217 its out of range. that doesnt mean anything. i think its a negative but by your symptoms it could be a sensitivity! i would still consult your doctor! your iga is in range. that is probably a positive but for what i am not sure! dont dismiss these results! i hope u find out soon! ps the last 2 numbers are w in range that could also be positive. i would question the results i said could be positive. again im not doctor but i hv had vitamine defianciencies for years and kinda learned interpret bloodwork! speaking of has anyone tested your iron n vit D or B??  i dont c it on here. that would be something to treat whether its related to celiacs or not. good luck also was this fam doc or gastrial interology? they are the specialist ypu go to for celiacs! 

[cyclinglady]

3 hours ago, Lena Smith said:

Hello!

Can anyone give me your opinion on my celiac test results? The nurse on the phone said everything looks okay, but I got a copy of the report and a few things were flagged! I am beyond confused and frustrated.

I have been struggling over the last 2 years with TERRIBLE fatigue, headaches, joint pain, bloating, and constant stomach pain with weekly diarrhea. I've tested negative for RA as well as other autoimmune disorders. My doctor thinks I may have celiac and ordered a test, however I do not have a follow up appointment for another month. Here are my results:

**IGM, QN, Serum: Ref Range (26-217); 270 (high)
IGG, QN, Serum: Ref Range (Open Original Shared Link); 961
IGA, QN, Serum: Ref Range (86-252); 248
**Deamidated Gliadin Abs, IGA: Ref Range (0-18); 20 (high)
**Deamidated Gliadin Abs, IGG: Ref Range (0-18); 58 (high)
tTG IGA: Ref Range (0-3); 2
tTG IGG: Ref Range (0-5); 1

Any insight at all will be greatly appreciated!

Your nurse is wrong. It only takes one positive in the celiac blood panel.  It does not have to be the most common positive which is the TTG IgA.  There is a reason why there are several celiac tests!  

The next step is a referral to a Gastroenterologist to obtain intestinal biopsies.  Keep eating gluten until all testing is complete and you have the results in hand.  

I personally tested positive to only the DGP IgA, even in follow-up testing, so it was not a fluke.  I had some pretty moderate to severe patches of intestinal damage.  I do have another autoimmune disorder too -- Hashimoto's Thyroiditis.  Anemia was my main symptom at the time of my diagnosis.  The other tests are just Immunoglobulin serum tests.  In the case of celiac disease, they are ordered as control tests (to see if the celiac disease test results work).  Alone, they show you have normal or abnormal immune responses.  My IgA is always very high.   My doctor says my immune system is on hyper alert.  We are sure my Hashi's contributes to this result.  

Get to a GI.  Insist on it!  I assume this test was run by your primary.  If he/she refuses (it is because he/she is not knowledgeable about celiac disease).  Ask in writing.  That goes a long way!  

Open Original Shared Link

[frieze]

two +'s, one fairly strongly so.  need biopsies, keep eating gluten till then.

[squirmingitch]

13 hours ago, Lena Smith said:

**Deamidated Gliadin Abs, IGA: Ref Range (0-18); 20 (high)
**Deamidated Gliadin Abs, IGG: Ref Range (0-18); 58 (high)

These two are absolutely positive. These are more commonly referred to as DGP IGA and DGP IGG.

The nurse doesn't know what she's talking about. Everything does NOT look okay!

Get to a GI & get an endoscopic biopsy for celiac disease, keep eating gluten until all testing is complete.