Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 year olds test results in, mine ordered.

Breezy1

Recommended Posts

Breezy1 Explorer
Breezy1
Posted

So I went to the doctor as it’s been a week since my daughter had her blood work done. From reading posts on here I was under the impression it was 5 tests for celiac? I believe my daughter only had one. I will post a photo of her results. Also where the doc ordered my test it says “Gluten screen test with TTA screen please” will that be the full 5 tests? 

The doxtor said my daughters test is negative but I don’t know what to think if it was only one test. Her belly always hurts and she’s so exhausted. She just started pre school on Tuesday and had her second day today, both days she comes home is exhausted and goes right to sleep! 

For some reason it won’t let me attach the photo. The only test name  in this section is tissue transglutaminase Ab and her result was < 3 and reference range says 0-15

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Breezy1 Explorer
Breezy1
Posted
  • Author

I’d also like to add that when the doc got to the celiac part of her results (her liver and thyroid were tested too as well as tested for diabetes) he was like oh wait it does look like there’s some antibodies then he said but it seems to be in normal range. Then he printed it off for me so I can make her appointment with our family doctor 

cyclinglady Grand Master
cyclinglady
Posted
4 hours ago, Breezy1 said:

So I went to the doctor as it’s been a week since my daughter had her blood work done. From reading posts on here I was under the impression it was 5 tests for celiac? I believe my daughter only had one. I will post a photo of her results. Also where the doc ordered my test it says “Gluten screen test with TTA screen please” will that be the full 5 tests? 

The doxtor said my daughters test is negative but I don’t know what to think if it was only one test. Her belly always hurts and she’s so exhausted. She just started pre school on Tuesday and had her second day today, both days she comes home is exhausted and goes right to sleep! 

For some reason it won’t let me attach the photo. The only test name  in this section is tissue transglutaminase Ab and her result was < 3 and reference range says 0-15

It looks like she just had one celiac test, the TTG which was negative.  If you suspect celiac disease, you should ask for the rest of the panel.  Kids that young might not get a positive on the TTG (even old people like me).  Then there is the possibility that she is seronegative which affects about 10% of celiacs.  So, you can not rule out celiac disease yet!  

Something is wrong!  Keep advocating for her!  

 

 

Breezy1 Explorer
Breezy1
Posted
  • Author

I thought so! I will be asking her doctor when I make her appointment. Thank you :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to MagsM's topic in Related Issues & Disorders
      26

      Inflammation and Menier’s disease link?

      How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time.
    2. nataliallano
      - nataliallano replied to MagsM's topic in Related Issues & Disorders
      26

      Inflammation and Menier’s disease link?

      Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.
    3. Zuma888
      - Zuma888 replied to Zuma888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Hypothetical question about antibodies

      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
    4. Scott Adams
      - Scott Adams replied to Zuma888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Hypothetical question about antibodies

      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-...
    5. Betsy Crum
      - Betsy Crum replied to Betsy Crum's topic in Related Issues & Disorders
      4

      Chest pain from celiac

      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,235
    • Most Online (within 30 mins)
      7,748
    judycs
    Newest Member
    judycs
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Inflammation and Menier’s disease link?

      By trents · Posted

      How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time. 
    • nataliallano
      Inflammation and Menier’s disease link?

      By nataliallano · Posted

      Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.   
    • Zuma888
      Hypothetical question about antibodies

      By Zuma888 · Posted

      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
    • Scott Adams
      Hypothetical question about antibodies

      By Scott Adams · Posted

      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-IgA to normalize, which is why many doctors recommend waiting at least 6–12 months of strict gluten-free eating before retesting. For someone who’s been gluten-free for less than two years or hasn’t been meticulous about avoiding cross-contact, there’s absolutely a chance they’d still test positive, since even small amounts of gluten can keep antibodies elevated. This is partly why the gluten challenge (where you eat gluten before testing) exists—it’s designed to provoke a measurable immune response in people who’ve been gluten-free long enough for antibodies to drop. But you raise a great point: the challenge isn’t perfect, and false negatives can happen if the timing or amount of gluten isn’t sufficient to trigger a strong antibody response. This is why diagnosis often combines antibody tests with other tools like genetic testing or endoscopy. Your question highlights just how nuanced celiac testing can be! For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
    • Betsy Crum
      Chest pain from celiac

      By Betsy Crum · Posted

      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.  
×
×
  • Create New...