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Type 1 diabetes and positive coeliac blood tests.

Lindsey1978

By Lindsey1978
in Related Issues & Disorders

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Lindsey1978 Apprentice
Lindsey1978
Posted

Hi everyone. My 14 yr old son has just been diagnosed with type 1 diabetes. They did a coeliac screen as well and just got the results back. Ttg 745 should be below 20. 

Igg 50 should be below 20. 

My youngest son has been tested for coeliac previously with inconclusive results but has responded well to a gluten feee diet. 

The drs have mentioned that it could be a false positive due to his diabetes and I'm just wondering if anyone else has been in this position? Even with diabetes his results seem very high for a false positive. 

Many advice or similar stories would be greatly appreciated. 

Thanks. 

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GF-Cheetah Cub Contributor
GF-Cheetah Cub
Posted

My 14 year-old daughter was diagnosed with type 1 diabetes at the age of 10.   3 months later she was also diagnosed with celiac.   Her ttg was sky high (it seems your son's ttg is also sky high).   Our endo offered to formally diagnosed my daughter with celiac without an endoscopy, because she has never seen anyone with that high of a ttg number to not be celiac.   But we did not want to believe that my daughter was celiac too, and we scheduled an endoscopy.  She was formally diagnosed with celiac 2 weeks after the endoscopy.

Type 1 and celiac are both auto-immune disease.   I was told that about 10% of type 1s have celiac, and that is why they have this standard procedure to screen for celiac in type 1s.  

I think you should schedule an endoscopy as soon as possible before going to a gluten free diet.   I think it is better to be certain, rather than always be second guessing about this in the years to come.

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