Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Treatments for Post-Contamination GERD

NoelEstabrook

By NoelEstabrook
in Coping with Celiac Disease

Recommended Posts

NoelEstabrook Newbie
NoelEstabrook
Posted

I am posting this on behalf of my wife who has had Celiac for several years now (or rather, more likely non-celiac gluten sensitivity).  She has gotten very, very good at not getting contaminated, as she is EXTREMELY sensitive to gluten.  However, when she DOES get contaminated, she suffers from terrible acid reflux and GERD for 6-7 weeks post-contamination.

I have a couple questions.  First, does anyone else here experience this length of symptoms post-contamination?  Second, does anyone have any recommendations of anything she can try to reduce the gerd/reflux during her 6-7 week recovery period (we have tried DGL and a few other things, and nothing seems to do a whole lot of good).  Any help/advice appreciated.

Noel

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome! Everyone is different.  That said, I experienced GERD the last time I was exposed to gluten.  I have many drug allergies, so I basically toughed it out.  I elevated my head at night, did not eat hours before bedtime, avoided slouching, and waited to heal.  I also went to my safe gluten-free diet of soups and stews (easy-to-digest) until I healed.  

I am sure other members have some valuable tips.  ?

TexasJen Collaborator
TexasJen
Posted

About a year after my diagnosis of celiac, I developed GERD out of the blue. My symptoms don't appear to be related to CC but to be honest, I'm still not 100% sure. 

I have found, though, in addition to cyclinglady's recommendations, that eating small meals with mostly whole foods, avoiding alcohol, dairy and all coffee/tea really seems to help.

Hope she feels better soon!

  • 2 weeks later...
justsayno Newbie
justsayno
Posted

Well if diet doesn't work out, they'll want to put you on proton pump inhibitors for awhile. These have some detrimental side effects though.

NoelEstabrook Newbie
NoelEstabrook
Posted
  • Author

Thank you for the suggestions.  Over the last several years, she has tried all of those things.  And while they all work to varying degrees to ease the symptoms a little, it's still a hard road to hoe for 6-7 weeks.  Was looking specifically for something that might actually shorten the contamination period.

Not sure if this might help others or not, but quite by accident, she might have happened on a possible solution this week.  On occasion, she has taken Valium for anxiety.  It just so happens that she took one for a couple of days after her last contamination, and it seems to have taken her symptoms from about a 9 to a 3 almost immediately.  While not crazy about taking valium for several weeks when she gets contaminated, it sure beats suffering with the constant symptoms for weeks.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748
    Miyasato
    Newest Member
    Miyasato
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By knitty kitty · Posted

      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.