Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

On A Lectin-free Diet Too?

Lovinglife

By Lovinglife
in Coping with Celiac Disease

Recommended Posts

Lovinglife Rookie
Lovinglife
Posted

Hello Beautiful People,

I hope that this post finds you in a good place.

I was wondering if anyone is on (of course) a gluten-free diet AND a lectin-free diet. I am embarking on this journey for medical reasons. (I hope it clears up joint pain, stiffness and soreness that I've been having for a few weeks.)

If you are on both these diets, please let me know:

1) What you do eat? Any cool dishes? Any particular food that provides a good bunch of nutrients/vitamins? What is a good supplement that you use?

2) Why did you began this lectin-free diet? To cure a pain or something else?

3) How has this diet positively or negatively effected your body? (IE. are bowel movements normal? what is the energy level?)

4) Did you have professional help starting this diet? (IE. did you got a dietician, nutritionist, a particularly knowledgeable doctor?)

  • 3 years later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa79 Enthusiast
Lisa79
Posted

I was just doing a seach on Lectin Free diets and came across this older post. Just wondering if anyone had tried this. I was just doing some searching on the net and found some really interesting things that link Lectin Sensitivity to celiac other allergies, anxiety, stress, acne and much much more.

Anyone else know much about Lectin?

Thanks

Lisa :)

RollingAlong Explorer
RollingAlong
Posted

I really don't know much about them but the Paleo diet is a place to start your research. Or consider the bernstein diabetes forum. They eat a low carb diet which ends up being almost ompletely lectin free by default. There is some discussion of lectins there, and great recipes.

Lisa79 Enthusiast
Lisa79
Posted

Thanks for the reply, much appreciate it, will check out the sites you mentioned. :)

  • 1 month later...
BBadgero Newbie
BBadgero
Posted
Thanks for the reply, much appreciate it, will check out the sites you mentioned. :)

Lisa79... I am heading down that path right now! Been gluten-free the best that I can since 2006 and it has helped for the most part. Recently I've noticed, for whatever reason, sensitivities to other foods. On this site there is a great link to Dr. Krispin's Lectin Report (www.krispin.com/lectin.html). I started out just eating by way of Dr. Cordain's Paleo Diet, but as you can read in Dr. Krispin's work, there are other potential foods out there that could be causing issues.... nightshades (white potatos, tomatos, eggplants, and peppers) and all beans (legumes) are huge potential culprits... I was also surprised to see that ALL grains could cause issues, not just wheat, barley, rye, and oats.... and then no dairy either (in any form). This pretty much sums up the article, but I think it is a must read for sure.... as far as good dishes.... hmmm...

I pop a can of tuna in olive oil for a quick lunch, and then have some walnuts with honey on top for dessert. I suspect I must cut out coffee too, but will just substitute green tea (will take some getting use to). I only buy fresh meat counter meats and fish, and once in a while I'll eat Hormel's Natural Deli meat....

For snacks, I do a ton of veggies and fruits.

Hope this helps.

BBadgero Newbie
BBadgero
Posted
Hello Beautiful People,

I hope that this post finds you in a good place.

I was wondering if anyone is on (of course) a gluten-free diet AND a lectin-free diet. I am embarking on this journey for medical reasons. (I hope it clears up joint pain, stiffness and soreness that I've been having for a few weeks.)

If you are on both these diets, please let me know:

1) What you do eat? Any cool dishes? Any particular food that provides a good bunch of nutrients/vitamins? What is a good supplement that you use?

2) Why did you began this lectin-free diet? To cure a pain or something else?

3) How has this diet positively or negatively effected your body? (IE. are bowel movements normal? what is the energy level?)

4) Did you have professional help starting this diet? (IE. did you got a dietician, nutritionist, a particularly knowledgeable doctor?)

Lisa79, almost forgot about the supplement part. Don't know if you know about Dr. Kenneth Cooper (father of aerobics movement), but just started to take 1000mg of Vit. D a day and 1gram of omega 3 oil a day. Along with this, I do take 4 oz. of a juice called MonaVie and I feel that I am pretty good vitamin wise, etc.... but for the most part, the paleo way of eating is pretty much a great way to get most of what you need...

  • 3 years later...
johnathon32905 Newbie
johnathon32905
Posted

I've just started going lectin free and I'm finding its in almost everything.  Depending upon the list you look at some of the things in the paleo diet contain lectins in them.  I had an awesome breakfast this morning, it was sweet potatoes sauteed in olive oil with onion, and a porridge made from butternut squash with a touch of olive oil and molasses.  Im trying to come up with more recipes as this was my first if anyone has any to share I'd appreciate it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748
    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Lkg5
      Unexpected gluten exposure risk from cultivated mushrooms

      By Lkg5 · Posted

      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.