Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe pain lower right side and back


Nicole12181

Recommended Posts

Nicole12181 Newbie

I hope I’m posting in the correct place... 

I’m looking for answers for my 84 year old grandmother who was diagnosed with celiac disease about 8 years ago. Her health was beyond poor when she was finally diagnosed, and though much better, she still continues to struggle in many ways. 

One of the most troublesome symptoms she experiences is SEVERE pain in her lower right abdomen, through to her back. And this is not a woman who likes to admit she’s in pain, or has a low tolerance for such. If she says it’s bad, it is. 

Today it was so bad she actually went to the ER. Something she avoids at all costs. But I know she’s frightened they’re missing something serious as this is not her first time with such pain. In fact, she has had this off and on for years now, though it has become more severe/frequent.

I just kept thinking this is related to her celiacs disease, as I know for a fact she is not strict about her diet. 

She had an ultrasound today. Nothing. She’s had multiple scans, etc over the years. Nothing. Typically they tell her she has a bladder infection and put her on antibiotics. But she does not have a bladder infection every time the attack’s occur. She also had her gallbladder removed long ago. 

I hate watching her suffer with no answers. I’ve sat in the ER with her in the middle of the night while she’s moaning in pain. 

Could this possibly all be from her celiac disease? Does anyone else get severe pain through to their back? I’d so love to be able to tell her that it could all be the result of her not being strict about avoiding gluten. That there is a relatively easy solution.. 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cristiana Veteran

Hello Nicole

My thoughts would go straight away to some sort of issue with the ovaries, or appendix, but presumably these things have been checked?  Has she had a colonoscopy in recent months?

In my own case I've had pain on the left side, in the groin and pelvic area, which goes through to my back (not the spine area but just around the hip).  I've been told it is a sacroliac joint problem.  Having had a sigmoidoscpy and scans on my ovaries I have had to accept that diagnosis.

The pain is definitely worse if I lift heavy objects, or eat dairy.  In the case of the latter, I think the bloating that dairy causes just puts a lot of pressure in the area and adds to the pain.  That's a theory - it has never been explained.

I am strict with my diet but have had this pain regardless. 

So just a thought really - could it be to do with her hip/back, and the pain is referring to the front?

I really hope she gets the answers she needs so badly.

 

Jmg Mentor

Hi Nicole,

i had severe back pain centred on the left side of my back for many years. I thought it was due to an old back injury but it turned out that going strictly gluten free cured it and I now suspect the disk prolapse was a symptom of gluten rather than the cause of the back pain. 

Disclaimer, I'm not diagnosed celiac.

if I slip on the diet the pain can return. Your grandma is probably unlikely to change at this age, but she has every incentive to stick strictly to the diet as the pain is horrible and it's difficult to escape it. It blighted my life for many years and cost me a great deal.

best of luck to you both :)

matt

sddave Enthusiast

Pains/cramping in the gut 'can' cause back pain.   It did for me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,351
    • Most Online (within 30 mins)
      7,748

    blacksilkroses
    Newest Member
    blacksilkroses
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.