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23 and Me- Celiac Gene Testing

desirun

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desirun Explorer
desirun
Posted

Has anyone done this genetic test yet?  My daughter has Celiac, and hoping this is an accurate/less expensive way to determine if my husband or I are the gene carriers for the rest of our family.  Any thoughts/knowledge on results vs. traditional blood genetic testing?

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kareng Grand Master
kareng
Posted
11 minutes ago, desirun said:

Has anyone done this genetic test yet?  My daughter has Celiac, and hoping this is an accurate/less expensive way to determine if my husband or I are the gene carriers for the rest of our family.  Any thoughts/knowledge on results vs. traditional blood genetic testing?

You might find out you both are.  :D

 

why not just do the regular gene test?  Then you know they test the correct things.  And if our doctor orders it, you might get your insurance to pay for it

desirun Explorer
desirun
Posted
  • Author
2 minutes ago, kareng said:

You might find out you both are.  :D

 

why not just do the regular gene test?  Then you know they test the correct things.  And if our doctor orders it, you might get your insurance to pay for it

True, we could both be!  TTG testing approved, genetics are not in our case.  

Vegasgirl2007 Newbie
Vegasgirl2007
Posted

I did the 23 and Me test when it first came out (before the issues with the FDA that caused it to be changed up bit) just out of general curiosity-nothing to do with celiac disease. It showed that I had a substantially higher likelihood of having Celiac Disease than normal. I’m not sure how it words things now. A couple of years later, I was diagnosed after having problems for years but never putting the pieces together and never having a doctor that recognized the problem. I ended up decideing that I needed to lead a doctor in that direction and eventually found one who tested me for it.

  • 2 months later...
Sienna2013 Apprentice
Sienna2013
Posted

It's not error-proof and doesn't test all variants; it reported, correctly, that I have one of the variants, and kid2 has one of the variants, but kid1's report did not note a higher risk (and she is oh-so-celiac - off the charts TTG IGA when diagnosed). So, don't take a negative report as an all-clear - it's limited in scope, and honestly I wish their materials were clearer about this. 

  • 1 month later...
jetladuke Newbie
jetladuke
Posted

We found out that our 10 year old daughter has celiac disease about a month ago.  My cousin asked how our 23& me profile looked for it, I had totally forgotten about it.  Anywhooooo my husband and daughter both have one of the markers but not both.  They do however test for different genes than what the Dr mentioned wanting to test so we might opt to do that too.  

The nice thing about the 23&me test is that it isn't something that your Dr has or that your insurance can use against you for higher rates, etc.  having a diagnosis of chronic diseases makes you a higher cost to insure.  

RMJ Mentor
RMJ
Posted

Does the current 23andMe test give results for celiac?  I know they had to stop saying so much about health due to the FDA.  Some people take their 23andMe raw data and put it into other websites to get health results.

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