Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Post-diagnosis depression


mewnicorns

Recommended Posts

RMJ Mentor

You asked how I keep from being hungry if I go to restaurants/parties and don’t eat.  I just eat ahead of time.

There used to be a thread going here where people posted what they were cooking for dinner that night.  It all sounded delicious, and not as if people were depriving themselves at all!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cheerymarie Apprentice

Omg I just saw an add for hungry root which is apparently vegan and gluten free meal delivery service and i thought of you !! Hope it works out 

mewnicorns Apprentice
10 hours ago, Cheerymarie said:

Omg I just saw an add for hungry root which is apparently vegan and gluten free meal delivery service and i thought of you !! Hope it works out 

Thanks! I've actually tried them before but I'm not a huge fan of zoodles and other vegetable noodle dishes. I wish you could buy their ingredients separately because their sauces were really good. I love soba noodles and Banza pasta so I will probably rely on those a lot (though some soba noodles are blended with wheat, so I'll need to find pure buckwheat noodles). I have an appointment with a dietician who specializes in both vegan/vegetarian diets and celiac disease on Tuesday so I am hoping she can help me figure out a grocery list for the first time I go shopping for gluten-free stuff. I just have no idea what to buy because it's not as simple as swapping out all the gluten-containing things I eat for the gluten-free versions. That would be super unhealthy, and not everything has a counterpart. This is going to be really hard but I know I'm going to figure it out because I have to. I'm not happy about it, but I can do it.

mewnicorns Apprentice
13 hours ago, RMJ said:

You asked how I keep from being hungry if I go to restaurants/parties and don’t eat.  I just eat ahead of time.

There used to be a thread going here where people posted what they were cooking for dinner that night.  It all sounded delicious, and not as if people were depriving themselves at all!

I might be able to do that on the weekends or if I know the plans ahead of time. Sometimes plans materialize spontaneously, or on a weekday, which is rough. I'm usually hungry after work, but I definitely don't have time to go home, eat, and come back out to the city. I think this is just going to be one of those things I won't be able to figure out until I figure it out. 

Wheatwacked Veteran

The single most important thing is to get off wheat. The beginning is the hardest. I think that since you have been eating a wheat diet since birth a few more weeks to break the Wheat Addiction will not cause harm. Shopping is easy. You read the label. If it has wheat, find something else. Tuna salad with Fritos was a favorite of mine, also watermelon. Your tastes in food will evolve once you've broken the addiction. Follow a sensible diet, just leave out the wheat. You were seeing an endocrinologist for low thyroid. and that seems a common symptom among celiac.  now that you are off wheat it will improve as the nutrition you ingest actually gets absorbed. Get your iodine level and D3 level checked. Iodine is critical to thyroid function vitamin D is involved in mood and most Americans are deficient of both. I eat a sheet of sushi seaweed every day for iodine. 10,000 iu. vitamin D3 lightened up my life again. You were lucky to get the new doctor. You might have spent years being misdiagnosed and mistreated.

kareng Grand Master
2 minutes ago, Wheatwacked said:

The single most important thing is to get off wheat. The beginning is the hardest. I think that since you have been eating a wheat diet since birth a few more weeks to break the Wheat Addiction will not cause harm. Shopping is easy. You read the label. If it has wheat, find something else. Tuna salad with Fritos was a favorite of mine, also watermelon. Your tastes in food will evolve once you've broken the addiction. Follow a sensible diet, just leave out the wheat. You were seeing an endocrinologist for low thyroid. and that seems a common symptom among celiac.  now that you are off wheat it will improve as the nutrition you ingest actually gets absorbed. Get your iodine level and D3 level checked. Iodine is critical to thyroid function vitamin D is involved in mood and most Americans are deficient of both. I eat a sheet of sushi seaweed every day for iodine. 10,000 iu. vitamin D3 lightened up my life again. You were lucky to get the new doctor. You might have spent years being misdiagnosed and mistreated.

Celiacs need to avoid more than wheat.  We need to avoid rye- that's pretty easy as it isn't in much and usually combined with wheat.   Barley/ barley malt is another thing we need to avoid.  That is in a few things.  Oats must be labeled gluten-free or else they are presumed to contain some accidental wheat.

Estes Contributor

After almost two years I have found eating at home to be enjoyable and delicious.  A few of my keys to this are a great source of recipes:  www.iowagirleats.com

and a way to stay organized:  www.plantoeat.com helps take me recipes and create a calendar and shopping list.  Please contact me if you plan to sign up for this.  I will give you my real name so you can have access to my recipes so you don’t have to go through the work of uploading.  It may also get me a discount if you use my name as a referral.

I also have a grocery store that will deliver for free if my total is over 100 and they have an amazingly easy website.

it took me a while to get here but it is very delicious and my heart and tummy are satisfied.  I would love to answer questions about the above resources.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      IBS-D vs Celiac

    2. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.