Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Post-diagnosis depression


mewnicorns

Recommended Posts

RMJ Mentor

You asked how I keep from being hungry if I go to restaurants/parties and don’t eat.  I just eat ahead of time.

There used to be a thread going here where people posted what they were cooking for dinner that night.  It all sounded delicious, and not as if people were depriving themselves at all!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cheerymarie Apprentice

Omg I just saw an add for hungry root which is apparently vegan and gluten free meal delivery service and i thought of you !! Hope it works out 

mewnicorns Apprentice
10 hours ago, Cheerymarie said:

Omg I just saw an add for hungry root which is apparently vegan and gluten free meal delivery service and i thought of you !! Hope it works out 

Thanks! I've actually tried them before but I'm not a huge fan of zoodles and other vegetable noodle dishes. I wish you could buy their ingredients separately because their sauces were really good. I love soba noodles and Banza pasta so I will probably rely on those a lot (though some soba noodles are blended with wheat, so I'll need to find pure buckwheat noodles). I have an appointment with a dietician who specializes in both vegan/vegetarian diets and celiac disease on Tuesday so I am hoping she can help me figure out a grocery list for the first time I go shopping for gluten-free stuff. I just have no idea what to buy because it's not as simple as swapping out all the gluten-containing things I eat for the gluten-free versions. That would be super unhealthy, and not everything has a counterpart. This is going to be really hard but I know I'm going to figure it out because I have to. I'm not happy about it, but I can do it.

mewnicorns Apprentice
13 hours ago, RMJ said:

You asked how I keep from being hungry if I go to restaurants/parties and don’t eat.  I just eat ahead of time.

There used to be a thread going here where people posted what they were cooking for dinner that night.  It all sounded delicious, and not as if people were depriving themselves at all!

I might be able to do that on the weekends or if I know the plans ahead of time. Sometimes plans materialize spontaneously, or on a weekday, which is rough. I'm usually hungry after work, but I definitely don't have time to go home, eat, and come back out to the city. I think this is just going to be one of those things I won't be able to figure out until I figure it out. 

Wheatwacked Veteran

The single most important thing is to get off wheat. The beginning is the hardest. I think that since you have been eating a wheat diet since birth a few more weeks to break the Wheat Addiction will not cause harm. Shopping is easy. You read the label. If it has wheat, find something else. Tuna salad with Fritos was a favorite of mine, also watermelon. Your tastes in food will evolve once you've broken the addiction. Follow a sensible diet, just leave out the wheat. You were seeing an endocrinologist for low thyroid. and that seems a common symptom among celiac.  now that you are off wheat it will improve as the nutrition you ingest actually gets absorbed. Get your iodine level and D3 level checked. Iodine is critical to thyroid function vitamin D is involved in mood and most Americans are deficient of both. I eat a sheet of sushi seaweed every day for iodine. 10,000 iu. vitamin D3 lightened up my life again. You were lucky to get the new doctor. You might have spent years being misdiagnosed and mistreated.

kareng Grand Master
2 minutes ago, Wheatwacked said:

The single most important thing is to get off wheat. The beginning is the hardest. I think that since you have been eating a wheat diet since birth a few more weeks to break the Wheat Addiction will not cause harm. Shopping is easy. You read the label. If it has wheat, find something else. Tuna salad with Fritos was a favorite of mine, also watermelon. Your tastes in food will evolve once you've broken the addiction. Follow a sensible diet, just leave out the wheat. You were seeing an endocrinologist for low thyroid. and that seems a common symptom among celiac.  now that you are off wheat it will improve as the nutrition you ingest actually gets absorbed. Get your iodine level and D3 level checked. Iodine is critical to thyroid function vitamin D is involved in mood and most Americans are deficient of both. I eat a sheet of sushi seaweed every day for iodine. 10,000 iu. vitamin D3 lightened up my life again. You were lucky to get the new doctor. You might have spent years being misdiagnosed and mistreated.

Celiacs need to avoid more than wheat.  We need to avoid rye- that's pretty easy as it isn't in much and usually combined with wheat.   Barley/ barley malt is another thing we need to avoid.  That is in a few things.  Oats must be labeled gluten-free or else they are presumed to contain some accidental wheat.

Estes Contributor

After almost two years I have found eating at home to be enjoyable and delicious.  A few of my keys to this are a great source of recipes:  www.iowagirleats.com

and a way to stay organized:  www.plantoeat.com helps take me recipes and create a calendar and shopping list.  Please contact me if you plan to sign up for this.  I will give you my real name so you can have access to my recipes so you don’t have to go through the work of uploading.  It may also get me a discount if you use my name as a referral.

I also have a grocery store that will deliver for free if my total is over 100 and they have an amazingly easy website.

it took me a while to get here but it is very delicious and my heart and tummy are satisfied.  I would love to answer questions about the above resources.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Matthias replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Scott Adams replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Matthias
      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
    • Scott Adams
      I agree with @trents, but thank you for bringing this up here!
    • Jane02
      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.