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Gluten Exposure for Celiac

DebLee Salzman

By DebLee Salzman
in Super Sensitive People

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DebLee Salzman Newbie
DebLee Salzman
Posted

Celiac diagnosed in 1992. Ate Domino's gluten free pizza (1 small slice every evening for 2 weeks)

Experiencing severe bone pain similar to pre-diagnosis. Wondering how long it will last. 

Anyone else have this following gluten exposure?

DebLee

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kareng Grand Master
kareng
Posted
3 hours ago, DebLee Salzman said:

Celiac diagnosed in 1992. Ate Domino's gluten free pizza (1 small slice every evening for 2 weeks)

Experiencing severe bone pain similar to pre-diagnosis. Wondering how long it will last. 

Anyone else have this following gluten exposure?

DebLee

Eating a Dominos pizza with all the possible CC is something I would not do.  I don't think having a reaction to it makes you "super sensitive".

Ennis-TX Grand Master
Ennis-TX
Posted
5 hours ago, DebLee Salzman said:

Celiac diagnosed in 1992. Ate Domino's gluten free pizza (1 small slice every evening for 2 weeks)

Experiencing severe bone pain similar to pre-diagnosis. Wondering how long it will last. 

Anyone else have this following gluten exposure?

DebLee

LOL sorry but really? You trust that, dominos, papa johns, and pizza hut ALL say they can not 100% guarantee their gluten-free pizza are celiac safe. THEY USE the same prep areas, same ingredient bins, same ovens and in many cases the same cutters and spoons used to spread the sauces and cut the pizza. I doubt the employees would even bother changing gloves between pizzas during rush.   Seriously if you want a gluten free pizza....gut a premade one in the freezer section from UDI, Dayia, RealGoodPizza or a crust from cappellos or califlower foods and make your own....Here please save yourself here is a list. BTW Pizza hut uses UDI crust and just tops them with their sauce etc....CCing in most cases and delivering them. Also the REAL good pizza will mail you cases of their pizzas fully made. Califlour foods and capello will mail you empty crust by the case. SO you can order them if  local stores do not carry them.


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*^Grain Free Pizza crust to make your own with using eggs, coconut and arrowroot for a base crust blend. The Naked pizza crust is dairy free. Order frozen by the case and they ship them to you.
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^Gluten free hot pockets? YES they make them for when you need the old instant hotpocket, odd craving but I know they hit sometimes.
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DebLee Salzman Newbie
DebLee Salzman
Posted
  • Author

I know-pretty dumb. I'm usually very careful. I didn't check into it. Thanks for reply. DebLee

cyclinglady Grand Master
cyclinglady
Posted

Hey Deb,

In theory (based on some studies), your small instestine should heal pretty fast (within weeks), but often there is collateral damage that can take longer (like your bone pain).  For me, personally, a gluten exposure can set me back three to six months.  My antibodies can last over a year.  And worse, I now developed autoimmune gastritis and hives.  Yikes!  

I had  some hip and rib cage pain when I was first diagnosed.  Two months later I fractured some vertebrae.  I had been undiagnosed for so long, that I developed osteoporosis.  I assume that once on a gluten free diet, your pain should diminish based on a strict adherence to the diet and  your previous experience.  

I hope you feel better soon!  

GFinDC Veteran
GFinDC
Posted

Maybe get your vitamin D levels checked.  And take some K-2. K-2 is supposed to help vitamin D absorb into bones.  Oh, and skip the Dominos next time! :)

We all make mistakes at times,.

Awol cast iron stomach Experienced
Awol cast iron stomach
Posted

Ouch I am sorry . I know how painful bone,  joint, muscle pain can last weeks for me . Hopefully you'll be able to clear it quickly if otherwise you have been healthy this season.

As others suggested some TLC , vitamins, mineral to assist may help. I find accupuncture helpful too or massage.

As for a gluten-free pizza I can no longer have them due to additional intolerances to milk. I in past days found sabatassos gluten free pizza carried at my local Costco pretty yummy if you can find it.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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