Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prickly Itchy Skin after going gluten-free

alexandra064

Recommended Posts

alexandra064 Newbie
alexandra064
Posted

I have been suffering with various symptoms for about 9 months and have recently decided to try a gluten-free diet. My symptoms have been: constant bloating (i used to have quite a flat stomach but I now look about 5 months pregnant, morning, noon and night!), rapid weight gain with no change in diet and despite diet and exercise I cannot shift any of it (I went up from 123lbs to 142lbs in 9 months), stomach/digestive pain, night sweats, headaches and muscle aches (particularly in my right arm and shoulder), irritability, low testosterone (according to my GP) and acid reflux.  I have been to the doctor and had various tests and I don't have PCOS or a thyroid problem.

I have been gluten-free for 5 days now and this weird prickling sensation has started happening in patches on my skin. There is no rash or redness that I can see. The other day it was mainly on my lower back, but now it seems to be principally on my ankles/lower calf area and forearms. I know that there is something called peripheral neuropathy that is a symptom of being gluten intolerant, but it seems weird to get this after going gluten free??

I do think I am starting to feel better from going gluten free but part of me wonders whether it is my imagination because I am so desperate to find an answer to all my symptoms. Although last night was the first night in a long time where I didnt wake up clamy from nightsweats, which I guess is a positive.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Has your doctor done any celiac testing? If so what were the results and if not you should get back on gluten and get the panel run.  You should get full vitamin and mineral panels run. Sometimes pins and needles can be caused by low B12 which can happen with celiac. Have your doctor run a B12 level when he does the panel. If he has done one before have the results compared to see if the B12 level is dropping.  The body can lose the ability to utilize B12 before the lests will end up in the low numbers. Recent research shows you should supplement if less than 500. The level used to be around 200 to 250.

There are also other vitamin and mineral deficits that can cause this as well as the possibility of your being sensitive to something in processed gluten free foods to which you are sensitive. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,156
    • Most Online (within 30 mins)
      7,748
    Jodie W
    Newest Member
    Jodie W
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Probably celiac but also confused

      By knitty kitty · Posted

      HypOthyrOidism is HashimOtO's thyrOiditis.  HypeRthyRoidism is GRaves disease.
    • mermaidluver22
      Some inflammation in ileum with celiac?

      By mermaidluver22 · Posted

      @Scott Adams Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am not a typical celiac or a typical Crohn's, so it makes me feel very stuck. 
    • nanny marley
      Help needed

      By nanny marley · Posted

      Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who  told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle , but the colonoscopy itself , they advised me to seek something different ,due to the position I had to be in and the movements , so I will update Wen I know more , thankyou for asking appreciated 🤗
    • Scott Adams
      Some inflammation in ileum with celiac?

      By Scott Adams · Posted

      It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains elevated despite a strict gluten-free diet, this could indicate ongoing healing or subtle gluten exposure. The ileal inflammation might still be related to celiac, though it’s good your doctor is ruling out other conditions like Crohn’s, given the nonspecific biopsy findings. Some people with celiac do report ileal involvement, particularly if they have refractory disease or delayed healing. Keeping close follow-up with your GI and possibly revisiting your diet for hidden gluten sources could help. Hang in there—it’s a journey, and you’re doing great by staying proactive!
    • mermaidluver22
      Help needed

      By mermaidluver22 · Posted

      hi, how are u now? any answers?
×
×
  • Create New...