Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prickly Itchy Skin after going gluten-free


alexandra064

Recommended Posts

alexandra064 Newbie

I have been suffering with various symptoms for about 9 months and have recently decided to try a gluten-free diet. My symptoms have been: constant bloating (i used to have quite a flat stomach but I now look about 5 months pregnant, morning, noon and night!), rapid weight gain with no change in diet and despite diet and exercise I cannot shift any of it (I went up from 123lbs to 142lbs in 9 months), stomach/digestive pain, night sweats, headaches and muscle aches (particularly in my right arm and shoulder), irritability, low testosterone (according to my GP) and acid reflux.  I have been to the doctor and had various tests and I don't have PCOS or a thyroid problem.

I have been gluten-free for 5 days now and this weird prickling sensation has started happening in patches on my skin. There is no rash or redness that I can see. The other day it was mainly on my lower back, but now it seems to be principally on my ankles/lower calf area and forearms. I know that there is something called peripheral neuropathy that is a symptom of being gluten intolerant, but it seems weird to get this after going gluten free??

I do think I am starting to feel better from going gluten free but part of me wonders whether it is my imagination because I am so desperate to find an answer to all my symptoms. Although last night was the first night in a long time where I didnt wake up clamy from nightsweats, which I guess is a positive.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Has your doctor done any celiac testing? If so what were the results and if not you should get back on gluten and get the panel run.  You should get full vitamin and mineral panels run. Sometimes pins and needles can be caused by low B12 which can happen with celiac. Have your doctor run a B12 level when he does the panel. If he has done one before have the results compared to see if the B12 level is dropping.  The body can lose the ability to utilize B12 before the lests will end up in the low numbers. Recent research shows you should supplement if less than 500. The level used to be around 200 to 250.

There are also other vitamin and mineral deficits that can cause this as well as the possibility of your being sensitive to something in processed gluten free foods to which you are sensitive. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,206
    • Most Online (within 30 mins)
      7,748

    S.Craigwell
    Newest Member
    S.Craigwell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.