Fat Malabsorption

[Cooldude99]

Hi, been gluten & dairy free for 11 months and I still have fat malabsorption from the very beginning till present time. I have gone from 72kg to 59 kg, lost just about all fat on my body as well as muscle strength , weight has been stable at 59kg for last 8 weeks 

I have loose stools that still float and have a  really foul smell along with excess and mostly  uncontrollable  flatulence (also foul smelling) which seems to be getting worse. 

I am not celiac but I believe I have gluten intolerance and damaged gut which I believe is the underling cause of my hypothyroidism. Have noticesd much improvement in cognitive function, cold intolerance , rhinitis allergy, itching,  & overall energy levels as well virtually no acne any more.

Have not been taking thyroid meds for 11 months either. 

Have some blood tests last month; ferritin, Fbc, vitamin d, bone profile, Lft, c- reactive protein, b12 & folate. Glucose, thyroid ft, u & es, lipid profile. Thyroid 7.1 and b12 low but not critically. Other test are ok

I wonder if anybody can comment as to whether this is normal

i eat meat, mainly organic chicken, wild salmon 3 times a week, as well as fresh veg & pulses.no processed food no refined oils, no refined sugar, no fried food, no refined carbs, no tea/ coffee & drink/ cook using only mineral water for the last 3 years.

thanks

 

 

 

 

 

 

 

 

Edited March 4, 2018 by Cooldude99
Add info

[Ennis-TX]

1 hour ago, Cooldude99 said:

Hi, been gluten & dairy free for 11 months and I still have fat malabsorption from the very beginning till present time. I have gone from 72kg to 59 kg, lost just about all fat on my body as well as muscle strength , weight has been stable at 59kg for last 8 weeks 

I have loose stools that still float and have a  really foul smell along with excess and mostly  uncontrollable  flatulence (also foul smelling) which seems to be getting worse. 

I am not celiac but I believe I have gluten intolerance and damaged gut which I believe is the underling cause of my hypothyroidism. Have noticesd much improvement in cognitive function, cold intolerance , rhinitis allergy, itching,  & overall energy levels as well virtually no acne any more.

Have not been taking thyroid meds for 11 months either. 

Have some blood tests last month; ferritin, Fbc, vitamin d, bone profile, Lft, c- reactive protein, b12 & folate. Glucose, thyroid ft, u & es, lipid profile. Thyroid 7.1 and b12 low but not critically. Other test are ok

I wonder if anybody can comment as to whether this is normal

i eat meat, mainly organic chicken, wild salmon 3 times a week, as well as fresh veg & pulses.no processed food no refined oils, no refined sugar, no fried food, no refined carbs, no tea/ coffee & drink/ cook using only mineral water for the last 3 years.

thanks

 

 

 

 

 

 

 

 

I can not digest animal fats myself, they float and get puked up later, animal meat is the same for me, fish and crab can pass but come out undigested in the stool. We learned this year it is related to my pancreas not producing the enzymes to break them down in combination with a weaker stomach acid in the evenings. Got a small article on enzymes here https://www.celiac.com/forums/topic/119919-digestive-enzymes/

 

[cyclinglady]

1 hour ago, Cooldude99 said:

Hi, been gluten & dairy free for 11 months and I still have fat malabsorption from the very beginning till present time. I have gone from 72kg to 59 kg, lost just about all fat on my body as well as muscle strength , weight has been stable at 59kg for last 8 weeks 

I have loose stools that still float and have a  really foul smell along with excess and mostly  uncontrollable  flatulence (also foul smelling) which seems to be getting worse. 

I am not celiac but I believe I have gluten intolerance and damaged gut which I believe is the underling cause of my hypothyroidism. Have noticesd much improvement in cognitive function, cold intolerance , rhinitis allergy, itching,  & overall energy levels as well virtually no acne any more.

Have not been taking thyroid meds for 11 months either. 

Have some blood tests last month; ferritin, Fbc, vitamin d, bone profile, Lft, c- reactive protein, b12 & folate. Glucose, thyroid ft, u & es, lipid profile. Thyroid 7.1 and b12 low but not critically. Other test are ok

I wonder if anybody can comment as to whether this is normal

i eat meat, mainly organic chicken, wild salmon 3 times a week, as well as fresh veg & pulses.no processed food no refined oils, no refined sugar, no fried food, no refined carbs, no tea/ coffee & drink/ cook using only mineral water for the last 3 years.

thanks

 

 

 

 

 

 

 

 

I am not a doctor or a dietitian, but it sounds like you are starving yourself (but I do not know how tall you are, but losing muscle is NOT good).   Why are you NOT taking your thyroid hormone replacement?  It is not a medication, but a replacement.  Hypothyroidism can cause havoc in all areas of your body.  What does your doctor say?  What  is the cause of  your hypothyroidism?  Is it autoimmune?  

What is the cause of your fat malabsorption?  Were you ever tested for celiac disease or other autoimmune disorders?  

The first thing I would do is treat your thyroid.  I have been gluten free for 5 years and my celiac disease is in remission, but I still have Hashimoto’s Thyroiditis and I must take my thyroid hormone replacement for the rest of my life.  

Edited March 4, 2018 by cyclinglady

[Cooldude99]

 

On 3/4/2018 at 8:49 PM, Ennis_TX said:

I can not digest animal fats myself, they float and get puked up later, animal meat is the same for me, fish and crab can pass but come out undigested in the stool. We learned this year it is related to my pancreas not producing the enzymes to break them down in combination with a weaker stomach acid in the evenings. Got a small article on enzymes here https://www.celiac.com/forums/topic/119919-digestive-enzymes/

 

thanks for the info, I don't have any trouble keeping the fats down. I did not have these issues before I went gluten and diary free.

My digestive systems has been through alot of changes throughout the whole 11 month period thus far. I'm assuming that this is all part of the healing process as the gut begins to heal which I understand takes a long time (up to 2 years) for the gut to full heal.

As of today, my smelly flatulence has pretty much gone now. Although I have still got malabsorption judging by my stools.

I have made an appointment to the see the doctor regarding functioning of pancreas

[Cooldude99]

On 3/4/2018 at 8:57 PM, cyclinglady said:

I am not a doctor or a dietitian, but it sounds like you are starving yourself (but I do not know how tall you are, but losing muscle is NOT good).   Why are you NOT taking your thyroid hormone replacement?  It is not a medication, but a replacement.  Hypothyroidism can cause havoc in all areas of your body.  What does your doctor say?  What  is the cause of  your hypothyroidism?  Is it autoimmune?  

What is the cause of your fat malabsorption?  Were you ever tested for celiac disease or other autoimmune disorders?  

The first thing I would do is treat your thyroid.  I have been gluten free for 5 years and my celiac disease is in remission, but I still have Hashimoto’s Thyroiditis and I must take my thyroid hormone replacement for the rest of my life.  

 

Hi, thanks for your reply,

I am consuming more calories now in comparison to when I was on a normal diet. My appetite right now is much more  and I eat quite large amounts of food. The malabsorption I believe started at the same time as I went gluten & dairy free.

The main reason for me going gluten & dairy free was to see if this would cure my hypothyroidism as other users had commented that this had worked for them. I was diagnosed with hypothyroidism about 3 years ago. from what i can remember this is not caused by an hashimoto's and the celiac test also came back negative. 

I started taking every increasing amounts of levothryoxine over a period of about a year and half. However, i was not feeling that much better. I had some more mental energy and physical energy but nothing like before.

I believe that the human body can heal itself given the right conditions and so I embarked on going gluten free & dairy free as I suspected that the root of my issues lie with my gut/digestive system. In particular the theory of gut permeability over a long time and antibodies being released into my blood stream causing havoc with my endocrine system and in particular my thyroid function.

Since going gluten & dairy free and I have experienced a whole host of improvements;  much improved body temperature and in particularly my hands and feet which were always ice cold, much improved cognitive function/no more brain fog, general feeling of happiness and positivity that I have not felt for years. Although this has taken several months before I began to see an noticeable improvement

Together with these improvements I want to wean myself of thryoxine as I want my body to product/regulate it own thyroid hormones correctly as my guts heals.

My doctor does not have an issue with my coming off thryoxine for the time being as my TSH level is not that high ( as well as other levels being fine) and I will have this retested in around 3 months and hopefully this will drop closer to the optimal range (i feel confident I am on the right path). Prior to going gluten & diary free I tried going without thyroid medication for 4 months and my TSH jumped to 11.7 and I felt terrible.

I'm assuming the malabsorption is mainly due to the villi healing which must have been badly damaged in my small intestine. The weight loss I attribute to the first part of gut healing where the permeability of the gut is fixed (which how nutrients as well as other unwanted/undigested particles enter the bloodstream) however the villi being badly damaged cannot not absorb/breakdown the food

I am 5ft 9inches and my weight is exaclty 60kg and stable at the moment

I want to give this course of action at least some more time to develop. I could would never want to go back to the way I was before

On 3/4/2018 at 8:57 PM, cyclinglady said:

 

[puretax]

On 3/9/2018 at 10:23 PM, Cooldude99 said:

I'm assuming the malabsorption is mainly due to the villi healing which must have been badly damaged in my small intestine.

its been a few years since you made this post how are you now?

is the malabsorption issue resolved?

and if you dont mind me asking how long did it take you to get a diagnosis after experiencing symptoms?

[Wheatwacked]

Hi and welcome. The poster may not respond. 

It can take years. Doctors have to treat specific symptoms and malnutrition is at the bottom of their list. For example, gall bladder problems are frequently treated with surgery rather than treating the nutritional issue of not enough choline due to malabsorption caused by Celiac, or poor diet. There are over 200 symptoms associated with Celiac Disease and there is no treatment other than Gluten Free diet and vitamin and mineral replenishment.  These people can go years being treated for the wrong cause, never getting better because the root cause, Gluten, and the difficiencies caused by Gluten Sensitivity malabsorption are never addressed.

Quote

 

Gall Bladder, A Vital Organ That is Being Removed At Alarming Rates

Gall Bladder Syndrome is one of the most expensive, easily preventable conditions affecting Americans, causing a reported 3,000 deaths and over 800,000 hospitalizations annually. Over 500,000 people undergo surgery for gall bladder disease each year! Amazingly we bring this on ourselves, and with a few key lifestyle changes this condition could be virtually eliminated.

Choline – Used by doctors since 1947. Choline is essential to effectively metabolize fat, cholesterol, proteins, and carbohydrates. Experience has shown that SP Choline is been a Nutritional Essential for people who suffer severe gall bladder symptoms and/or after gall bladder removal.

• Belching
• Gas
• Indigestion
• Pain between the shoulder blades
• Pain in the abdomen (on right) under ribs and next to the belly button
• Bloating shortly after meals
• Intolerance of fatty foods
• Nausea and vomiting
• Constipation