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Could be celiac


ShanelleXxX

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ShanelleXxX Newbie

Hi u have been experiencing very weird and miserable symptoms I’ve seen multiple drs and I just feel so alone and feel as though drs and even my family won’t take me seriously they try pin it in anxiety or depression cause I recently had a baby but I know for a fact it’s something more then that I’ve had doctors tell me it’s all in my head and I need to get over it and just focus on my baby but how can u do that when I feel this way 

my symptoms are 

* shortness of breath 

* body aches in back legs sometimes arms neck chest jaw  ect

* sweats 

* constipation 

* burning/sharp pain under left breast and chest 

*indigestion/heartburn 

*headaches

* bloated feeling/gas and burping 

*bubbling feeling in abdomen 

*anxiety when symptoms start occurring 

*im also low in iron and have dry skin

can anyone tell me if this sounds like celiac and what kind or f symptoms u had before being diagnosed in so depressed about all this could pregnancy have triggered it or made it worse 

I’m awaiting blood work I seriously don’t know what to do anymore I can’t take care of my son and I just want to feel physically and mentally better 


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cyclinglady Grand Master
6 hours ago, ShanelleXxX said:

Hi u have been experiencing very weird and miserable symptoms I’ve seen multiple drs and I just feel so alone and feel as though drs and even my family won’t take me seriously they try pin it in anxiety or depression cause I recently had a baby but I know for a fact it’s something more then that I’ve had doctors tell me it’s all in my head and I need to get over it and just focus on my baby but how can u do that when I feel this way 

my symptoms are 

* shortness of breath 

* body aches in back legs sometimes arms neck chest jaw  ect

* sweats 

* constipation 

* burning/sharp pain under left breast and chest 

*indigestion/heartburn 

*headaches

* bloated feeling/gas and burping 

*bubbling feeling in abdomen 

*anxiety when symptoms start occurring 

*im also low in iron and have dry skin

can anyone tell me if this sounds like celiac and what kind or f symptoms u had before being diagnosed in so depressed about all this could pregnancy have triggered it or made it worse 

I’m awaiting blood work I seriously don’t know what to do anymore I can’t take care of my son and I just want to feel physically and mentally better 

Welcome to the forum!  Congratulations on your new baby.  

I am sorry that you are not well.  The only way to know if you have celiac disease is to get tested.  Here are the blood tests that check for antibodies, but you HAVE to be on a gluten diet.  Do not go gluten free until all testing is done:

Open Original Shared Link

In the meantime, see if giving up dairy helps.  Celiacs are often temporarily lactose intolerant.  Then try adding yogurt, butter and hard cheeses back into your diet (these contain the least amount of lactose).  Try to get rest.   Sleep when baby sleeps.  See if family and friends can pitch in and help with household chores or watching baby while you rest.  

knitty kitty Grand Master
16 hours ago, ShanelleXxX said:

Hi u have been experiencing very weird and miserable symptoms I’ve seen multiple drs and I just feel so alone and feel as though drs and even my family won’t take me seriously they try pin it in anxiety or depression cause I recently had a baby but I know for a fact it’s something more then that I’ve had doctors tell me it’s all in my head and I need to get over it and just focus on my baby but how can u do that when I feel this way 

my symptoms are 

* shortness of breath 

* body aches in back legs sometimes arms neck chest jaw  ect

* sweats 

* constipation 

* burning/sharp pain under left breast and chest 

*indigestion/heartburn 

*headaches

* bloated feeling/gas and burping 

*bubbling feeling in abdomen 

*anxiety when symptoms start occurring 

*im also low in iron and have dry skin

can anyone tell me if this sounds like celiac and what kind or f symptoms u had before being diagnosed in so depressed about all this could pregnancy have triggered it or made it worse 

I’m awaiting blood work I seriously don’t know what to do anymore I can’t take care of my son and I just want to feel physically and mentally better 

Congratulations on the new baby!  Sorry you're not feeling well.  

Pregnancy can be very hard on the mother's body, sometimes leaving the mom depleted of certain vitamins and minerals like B12, calcium and iron.  

Here are a couple of articles that explain vitamin deficiencies after pregnancy.    

Open Original Shared Link

Open Original Shared Link

Did you have any anesthesia recently?  Anesthesia can cause vitamin B12 deficiency.  Clearing the nitrous oxide in anesthesia can deplete vitamin B12 stores.  Do your symptoms match any of the B12 deficiency symptoms?  

I hope your blood work includes vitamin D and B12 levels.  Anxiety and depression are often the first symptoms of deficiencies of these vitamins.  Also keeping a food journal might help pinpoint problematic foods.  The Autoimmune Paleo Protocol diet or the Fasano diet are beneficial.  

Hope this helps.  Keep us posted on your test results.  

 

 

 

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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