Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

tips and recommendations


BirdieH

Recommended Posts

BirdieH Newbie

Hi, I am a grandmother whose grandson was just diagnosed with Celiac Disease at almost 14 years of age.  I homeschool him, so I am in charge of feeding him breakfast and lunch during the week.  He loves my spaghetti and goulash and was wondering if there are brands of gluten free pasta that are better than others.  I am willing to make him spaghetti squash (which is healthier) but would like to have the option when all my grandkids are here for him to eat like they are, but with gluten free noodles.  I bought Bob's Red Mill all purpose flour and made him pancakes today with my recipe except the flour difference and he was pretty thrilled with that.  He was relieved that his favorite syrup was gluten free and that didn't have to change.  This was my first day feeding him after his endoscopy and diagnosis.  Last night was the first day for him to be gluten free after his scope.  We are all researching pinterest, your website (which is extremely helpful) and reading labels.  This is all new to us.  Any tips, recommendations for brands on breads, pasta, pizza crust etc?  I am very willing to make, bake or cook and to help him learn the processes for himself as well.  Thank you for any advice in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
9 minutes ago, BirdieH said:

Hi, I am a grandmother whose grandson was just diagnosed with Celiac Disease at almost 14 years of age.  I homeschool him, so I am in charge of feeding him breakfast and lunch during the week.  He loves my spaghetti and goulash and was wondering if there are brands of gluten free pasta that are better than others.  I am willing to make him spaghetti squash (which is healthier) but would like to have the option when all my grandkids are here for him to eat like they are, but with gluten free noodles.  I bought Bob's Red Mill all purpose flour and made him pancakes today with my recipe except the flour difference and he was pretty thrilled with that.  He was relieved that his favorite syrup was gluten free and that didn't have to change.  This was my first day feeding him after his endoscopy and diagnosis.  Last night was the first day for him to be gluten free after his scope.  We are all researching pinterest, your website (which is extremely helpful) and reading labels.  This is all new to us.  Any tips, recommendations for brands on breads, pasta, pizza crust etc?  I am very willing to make, bake or cook and to help him learn the processes for himself as well.  Thank you for any advice in advance.

Barilla makes a gluten-free pasta that is corn and rice - we find that holds up well and would taste good with the goulash.    I find the Tinkyada pasta to be a bit too soft - but its good if you like soft.  Jovial makes good pastas.  gluten-free spaghetti seems to stick - so stir while cooking.  

I like to make the Chebe brand crust - it is a Brazilian cheese bread mix and any of thier mixes works for pizza crust (I don't add the cheese to the crust).  You might just experoment a little to see what you like and how much trouble you want to go to.  You can make a decent crust with the Bob's.

Chex cereals are gluten-free.  Van's makes great toaster waffles.  You might skip bread for a few weeks - kind of helps you forget what gluten bread is like.  If you live in a big enough city, you should be able to find things to try.  Some cities even have gluten-free bakeries.  

Annies makes a gluten-free mac and cheese that is similar to the good old Kraft mac and cheese.  

We have a grocery chain here in KC, HyVee, that carries a lot of gluten-free items.  Sometimes they have a gluten-free "fair" with samples of different things.  I think Whole Foods and Natural Grocers have done that too.  So keep an eye out for that.

 

 

kareng Grand Master

Have you read this section yet? 

 

You will want to get a new gluten-free only toaster and colander. Maybe get a different color and have that be the color of gluten-free in your house.   don't rinse fruit in your old colander if you used it for gluten pasta. Of course, he will need his own PB or butter tubs - you know there are always crumbs in them.  Get some duct tape in the color (Walmart has lots of colors) of the gluten-free toaster ( I use red because that seems to be a color you can find).  then put a piece of the tape on the lid of the PB so you will notice it if you grab it for a gluten sandwich.  

 

The point is that colanders and toasters are too hard to clean out every little hole of gluteny crumbs or pasta slime.  

Ennis-TX Grand Master

Did a bit of a list here but we normally suggest a whole foods only diet at first with as few ingredients as you can to boost healing. Many benefit from removing dairy for a few weeks to a few months. The damage to the villi in the intestines inhibits the utilization and production of the enzymes to break it down.
>.< When I first went gluten free years ago we made noodles out of deli meat cut into ribbons and zucchini noodles, and bean sprouts. But small town and lack of gluten free noddles back then. Bean sprout and deli meat noodles in a goulash sounds great....been years since I had some. I use a brand called Miracle Noodle for pasta, ziti, rice, angel hair, etc. it is a very low carb, grain free one you just rinse, boil 2 mins, rinse dry. I have carb issues so it works best for me.
https://www.celiac.com/forums/topic/121148-gluten-free-food-alternative-list-2018-q2/
PS Ideas for cheaper replacement of gluten free dedicated cookware. Those plastic disposable crockpot liners for doing crockpot stews, soups, roast etc. And Nordicware makes steamers, rice cookers, grill plates with covers, and omelette makers. And they are cheap to replace if you gluten them. Butcher paper makes a great dedicated clean prep surface and makes clean up super easy. Foil line baking sheets, baking dishes, etc. Again safe cook area and you just toss the foil for easy clean up.

tessa25 Rising Star

Here's my current list of favorites:

Note: insert the words "gluten free" in every item mentioned as some of the companies also sell non gluten free stuff. It's tedious to write that phrase all the time.

Bread:
  - Canyon bakehouse without question is the most realistic tasting bread. They have white, fake rye, multigrain and bagels (the bagels are fantastic).
  - Schar baguettes are decent.
  - Katz makes an English muffin that, after toasted, reminds me of a real one provided it has stuff on it like butter. I think that's the brand.
  - Etalia has a good boule if you prefer artisan bread. (Colorado)

Pizza crust:
    - Schar makes a good thick and chewy crust.
    - Udis makes a good thin and crispy crust.
    - Etalia makes a great New York crust. (Colorado)

Pasta:
    - Barilla makes the best pasta. Tastes like normal pasta. Spaghetti cooks the best.
    
Flour:
    - Pamelas all-purpose flour is great for making gravy and batter for fried foods.

Cereal:
    - Envirokidz Gorilla Munch cereal is a yummy equivalent to corn Pops.

Cookies:
    - Goodie Girl mint slims - fantastic girl scout mint cookie equivalent
    - Kinnikinnik makes a decent Oreo equivalent.
    - Kinnikinnik makes a good nilla wafer
    - Mi Del makes a great ginger snap.

Cake:
    - Betty Crocker chocolate cake mix tastes the same, but you have to get the cooking time exactly right. It is a very small window of time. Too long and it's too dry.

Frozen meals:
    - Udi's Chicken Florentine is addictive and Broccoli Kale lasagna is a good white lasagna.

Restaurants (not from personal experience, just from research)
    - Chinese – PF Changs. Employees are supposedly trained in gluten free.
    - Burgers – In N Out. The only thing here that is not gluten free are the buns so it is very easy for them to do gluten free. They are also trained in it. They are only out west. Road Trip!
    - Outback steakhouse. Employees are supposedly trained in gluten free. How good they are depends on where you live.

 

 

 

gilligan Enthusiast

You've received a lot of good info from other posters.  A few of my favorites, including those already mentioned, are:

Glutino English Muffins - my niece discovered them! Yum!

Ronzoni, Barilla, and Jovial pasta - Jovial egg noodles are great!

Pamelas pancake mix

Glutino or Kinnikkinick sandwich cookies (very similar to Oreos)

Snyders pretzels - especially honey mustard

Freschetta and California Pizza Kitchen frozen pizzas

Udi's muffins

Udi's or Aldi's brand snickerdoodle cookies

Kinnikkinick vanilla wafers

Pocono Cream of Buckwheat hot cereal

Kind bars - the chocolate cherry is my favorite

Straw Propellar Instant Oatmeal or Muesli cups - pricey, but very yummy and quick.  I keep them on hand for a quick meal, eating on the go, and traveling.

Bread was the hardest thing for me to get used to.  Toasting it is a game changer. 

*Canyon Bakehouse bread was already mentioned, but they also make very good bagels.  They just came out with "Sweet Bread", similar to Hawaiian rolls.  I haven't been able to find it yet.

 

I've had great luck dining out at Outback, Chipotle, Jane Dough Deli, and Chic-Fi-La (grilled chicken sandwich, grilled chicken nuggets, and waffle fries). They always call it out and change gloves.  The bun comes sealed and is served that way so only you touch it.  When traveling, I always look for truck stops as they usually have individually packaged boiled eggs, sausage, cheese, fresh fruit cups, potato chips, and Kind bars.

 

squirmingitch Veteran

Careful on the gluten-free pastas when cooking because they cook a whole lot faster than gluten pasta does. You can overcook gluten-free pasta in a heartbeat!

Everyone has given some great suggestions. 

We adore this spice cake mix & you can also turn it into a carrot cake

Open Original Shared Link

Pizza & other goodies:

Open Original Shared Link

BROWNIES!!!!! BROWNIES!!!!!! BROWNIES!!!!

Open Original Shared Link

 

We like the Kinnickinnick Donuts too:

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nikki2777 Community Regular

I won't repeat most of these great suggestions, but I echo those about getting dedicated colander, cutting boards and toaster/toaster oven.  I don't have one color, but basically any item that has a color in my kitchen is gluten free.  Because knives double dip in them, get separate jars of mayo/jam/etc. and mark them, and butter - I keep a separate gluten-free butter dish.  I also put down parchment paper on the cookie sheets when I bake, as my husband bakes 'regular' cookies on them and there's just no way to keep them really clean.

Trader Joe's gluten-free bread (green packaging) is my favorite.  For dried pasta, I go for anything corn-based, but my favorites are Le Veneziane and Bionatura or something like that (orange and yellow packaging) - there are a couple of good 'fresh' pastas too if you want them, but can be hard to find.  The Snyders pretzels marked gluten free are very good.  I don't use jarred marinara sauce generally (I use olive oil and garlic), but when I do I check to make sure they're not sweetened with barley malt.

And keep a sharpie on hand to hand write on tape or packaging to tell people to keep their gluteny hands off and out of the gluten-free items.

Good luck!  It's great that you're treating this seriously.  It took a lot of convincing to get my mother to see that I wasn't just whining and she needed to be careful if I were to eat in her house.

 

 

 

  • 2 weeks later...
LilyR Rising Star

I have trouble with corn and brown rice flour and so far the only gluten-free pasta I can handle is Taste of Thai rice noodles.  They are made with white rice. They are pretty tasty.  They seem to get starchy though.  I make them and rinse in cold water. Then drizzle a tiny bit of olive oil on them and then reheat them when I am ready to use them.  I don't like the super skinny ones as much - they break up easily. I tend to only like those when adding to a stir fry. But the wider, flat ones are great.  I use them for spaghetti sauces, but have also cut them up to use in soups.  They sell them at my local grocery store in the Asian section with all the canned waterchestnuts, sprouts, soy sauces, etc. but you can find them online too 

Open Original Shared Link

 

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,981
    • Most Online (within 30 mins)
      7,748

    jennifergodshalk
    Newest Member
    jennifergodshalk
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It sounds like your gastroenterologist is becoming increasingly confident that celiac disease is the likely diagnosis based on both your older and newer lab results. Her suggestion to call each Monday for possible cancellations is actually a great strategy—especially given how long the wait is until your August 29th appointment. It’s also a good sign that she’s advocating for you to be seen sooner, which shows she’s taking your case seriously. The fact that some labs might not have been drawn yet due to overlap with your functional health doctor’s upcoming testing adds a layer of confusion, but that’s unfortunately common when multiple providers are involved. Hopefully, the GI’s remaining labs will still get processed, or she can reorder them if needed. As for the colonoscopy prep, it’s totally understandable that you're dreading it—many people rank it among the least pleasant medical experiences. You’re definitely not alone in preferring the pill prep option over the liquid kind, especially if you don’t drink Gatorade and had a rough experience with Miralax in the past. Hopefully, your doctor will approve the pill form, especially since you’ve tolerated other options poorly before. Fortunately, the upper endoscopy doesn’t require any bowel prep—just fasting, usually starting the night before—so that part should be easier to handle. It’s great that you’re already trying to boost your gluten intake, but yes, tracking gluten content can be surprisingly tricky. You’re right that the general rule for wheat-based products is to multiply the protein content by about 0.75 to estimate the gluten content. That means foods like oyster crackers, while convenient, may not pack enough gluten to help reach the recommended daily goal of around 10 grams before biopsy. It’s helpful that you caught that early, and switching to more gluten-dense foods like regular wheat bread, pasta, or wheat cereals might make it easier to hit your target. It’s not easy eating more gluten when you’re trying to manage symptoms or just not used to it, but doing so can make a big difference in ensuring your biopsies are accurate. You’re on the right track—hopefully with a little luck, you’ll get a cancellation and be seen sooner.
    • cristiana
      Thanks for sharing that film, @trents.  I am not sure how I missed that film as I see it is a few years old, but it is very good.  I think you should be fine if you take your own packed lunch and eat it from your own lunchbox etc.  Might be worth doing a lunchtime recce to see how cramped the room is before making a decision - for all you know, there may be other people  there who don't eat gluten?
    • cameo674
      The GI doc messaged me this afternoon that she believes that the new blood work added to the old is definitely  looking like a celiac diagnosis is in my future.  She wants to me to call into scheduling each Monday to see if I can get my August 29th appointment moved up due to cancellations.  I have never had a doctor recommend that.  She also said there were additional labs that she requested still out that have not come back yet; so, they may have been missed drawing those since the functional health doctor has a whole slew of labs that I am suppose to be waiting until August 27th to do. I am still waiting to hear on whether or not she will allow me to do pill prep versus the typical gatorade prep that I did 8 years ago for that colonoscopy.  I do not drink gatorade to begin with and that miralax prep kept me in the bathroom up until we drove to the procedure.  My younger brother said the pill form was fairly easy when the liquid form is hard to swallow. Colonoscopy prep is definitely close to number one on the list of things I never want to experience again if I could avoid it.  Number one is a different medication that caused severe cramping that had me in tears until it wore off.  Never having had an endoscopy, I have no idea of what that prep is like, but it cannot be worse right? I started munching on oyster crackers last night.  It is shocking how filling they are.  I just read that I need to pay attention to the protein content of the wheat bread product or I will miss the gluten goal of 10 g per day prior to testing.  The post said that I should look at the protein and multiple that number by .75 if it is a wheat flour product to see how much gluten is in it.  No more oyster crackers for me.  I would have to eat 10 oz bag everyday to meet my goal.  not going to happen.
    • Alibu
      Well, I've made if from the pre-diagnosis forum to here!  I've been diagnosed with "latent" or "potential" celiac and my doctor has suggested me to go gluten-free before my appointment with him in October (first available, LOL).  My ttg-iga was 152, my EMA was positive, I have the gene, but my biopsy was negative (and he took 12 samples), so it makes sense to go gluten free to see if I improve. I know the basics - I can find lists of things to avoid, I know about hidden dangers, etc. all of that.  Where I'm struggling is just STARTING.  I need to go shopping and stock up on some staples.  My goal is to not try to find gluten-free alternatives, but to focus on naturally gluten-free foods like proteins, veggies, fruits, and carbs like potatoes and rice.  However, the rest of the household will not be gluten-free, which is fine, I don't want them to for various reasons.  But I have SO much food in my house in the pantry and fridge and cabinets, and it feels like I need to get rid of a lot in order for me to start fresh, but at the same time, I can't get rid of everything. I guess it's just feeling overwhelming and I've never given up gluten before so this is going to be a huge shift for me and I feel like I need SPACE, but I can't quite have that. Any advice on just getting started and organizing myself would be great!  
    • Scott Adams
      It’s great that you were finally able to see a gastroenterologist—and even luckier to get in the same day as your referral! It sounds like your GI is taking a very thorough approach, which is reassuring given your complex symptoms and history. The confusion around your different tissue transglutaminase (tTG) antibody results is understandable. The variation between your December and June labs may be due to multiple factors, including differences in the lab performing the test (Quest vs. Mayo Clinic), the specific assay used, and the amount of gluten you had been consuming before each test. Antibody levels can drop significantly when gluten is reduced or eliminated from the diet, even partially, which might explain why your recent tTG IgA was now negative and your tTG IgG was borderline high. That’s likely why your GI mentioned it was “usually the reverse”—typically, tTG IgA is more commonly elevated in confirmed celiac, not IgG alone, especially when IgA levels are sufficient, as yours are. Your gene testing confirms that you carry HLA types (DQ2.2 most likely) that are permissive for celiac disease, meaning you can develop it, but not everyone with these genes will. These genes don’t explain why your symptoms are milder or different from others with celiac—many people have so-called "silent" or atypical presentations like yours, with issues like long-term heartburn, loose stools, nutrient intolerances, or just gradually adapting to symptoms over time. It’s not uncommon to assume these symptoms are just aging, medication side effects, or lifestyle-related until someone finally connects the dots. It’s a good thing your daughter advocated for you to be tested—many cases are missed for years because they don’t follow the “textbook” presentation. As for the immunoglobulin tests, your doctor likely ordered those to ensure your immune system is functioning normally, particularly your IgA level, since a deficiency can cause false-negative celiac blood tests. Since your IgA level is normal, your tTG IgA test should be reliable (assuming adequate gluten intake), but again, if you weren't eating enough gluten, that could explain the lower antibody levels now. The comprehensive metabolic panel and negative stool parasite results are additional pieces ruling out other causes of your symptoms, like infections or organ dysfunction. The upcoming endoscopy and colonoscopy should provide more definitive answers, especially with biopsies looking for celiac disease, eosinophilic esophagitis, and microscopic colitis. It’s completely valid to feel unsure about what you’re experiencing, especially when your symptoms have been lifelong or gradually worsening without being severe. You’re not alone—many adults with celiac or gluten-related disorders report subtle or chronic symptoms they’ve normalized. You’re doing the right thing by staying on gluten now through your procedure date in August. Try not to stress about reaching the full 6-slice equivalent each day, but do increase your gluten intake as much as tolerable (e.g., a couple of pieces of bread, pasta, crackers, etc.) to give the biopsy the best chance of detecting any damage. Good luck with your upcoming procedures—you’re closer than ever to answers and a clearer direction forward.
×
×
  • Create New...