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tTg 14 a year and a half ago, 21 this year. Awaiting biopsy results but GI said everything looked normal..

valeRD

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valeRD Newbie
valeRD
Posted

I do not have typical celiac disease symptoms. No diarrhea (generally), no anemia....I do have frequent constipation, abdominal pain, distension and awful flatulence. Comes and goes, and I cant associate it to any foods, even though SIBO and lactose intolerance also came back positive. Was diagnosed with osteoporosis at 30, but it got better with calcium supplements. My father is extremely lactose intolerant, but has immediate diarrhea following ingestion. Now that GI says everything looked normal I am concerned I am not going to get a clear diagnosis. And, honestly, where I live (not in the US), being lactose free is harder than gluten free if I am diagnosed as Lactose intolerant.....

 

Gastroenterologist was very confident that biopsies will not show celiac disease...

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valeRD Newbie
valeRD
Posted
  • Author

Anyone?? What are the chances I am celiac disease if my endoscopy looked extremely normal? What are the chances all my tests were false positive (tTg 21, + lactose intolerance, + SIBO) and i end up with no diagnosis? 

cyclinglady Grand Master
cyclinglady
Posted

My visual on my endoscopy was normal.  You have to wait for the pathologist’s report.  Besides the TTG, did you run other tests?  The TTG can be slightly elevated for other illnesses like Crohn’s.  

A lactose intolerant can be a result of celiac disease or you could be genetically predisposed.  A huge chunk of the world’s population is genetically lactose intolerant.  

valeRD Newbie
valeRD
Posted
  • Author

Thanks for your response...if I had crohns I would have diarrhea right?? The weird thing about the lactose intolerance test is that even though it came back positive, sometimes I eat foods with very high lactose content and experience no abdominal issues...nothing makes sense to me

cyclinglady Grand Master
cyclinglady
Posted

Just be patient, hard I know!  ?

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    • trents
      Medication

      By trents · Posted

      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
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      By knitty kitty · Posted

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    • Julie 911
      Medication

      By Julie 911 · Posted

      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Medication

      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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