Always ill

[Katsnkids]

Hey.. I was welcomed into your club at the beginning of this week.. (lucky us!) I was just wondering.. is the reason why I am always Ill, anything to do with it? I was viral for a month about ) weeks ago, two weeks slightly feeling better and then a common cold started in Sunday.. nothing to write about.  I stopped gluten on Monday, wed, I thought I was over my cold, and then by Thursday I went massivly down hill and now feel awful.. headache, light headed, so so tired and achy... The consultant rang last night and said my blood results were really high! (Although I didn’t get a number) she has referred me to the nutritionist apparently urgently.. but who knows how long that will take! 

do you think this is just really bad luck and timing, or could it be anything to do with celiac? 

Many thanks again.. 

[Ennis-TX]

Celiac is autoimmune disease, where your immune system reacts and attacks your own body when it detects the gluten proteins. SO it would make sense you might get more sick with it as you body is already fighting the gluten.

BTW did they finish testing? They normally will follow a blood test with a endoscope to check for damage to your small intestine. Double check with your doctor if they will give you a diagnosis on blood test alone or if they will refer you to a GI for then endo and biopsy. Open Original Shared Link

 

If your confirmed and done with testing read up here there are some things you will have to do cleaning out your kitchen, replacing some appliances, colanders, wooden utensils, scratched pans/pots, condiment jars, and clean out the kitchen of gluten foods. https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

[Katsnkids]

Thank you for your response..Yes I had th endoscope and it came back with damage to my villi(?)

im just waiting for an app with nutritionalist to see what measures they suggest..i haven’t started anything like the kitchen clear out yet.. just eating gluten free.. how essential is this? because my oh thinks it’s an over reaction (prob because I didn’t have any pain symptoms from eating gluten)  he hasn’t been the most sympathetic!! (??) 

[Ennis-TX]

18 minutes ago, Katsnkids said:

Thank you for your response..Yes I had th endoscope and it came back with damage to my villi(?)

im just waiting for an app with nutritionalist to see what measures they suggest..i haven’t started anything like the kitchen clear out yet.. just eating gluten free.. how essential is this? because my oh thinks it’s an over reaction (prob because I didn’t have any pain symptoms from eating gluten)  he hasn’t been the most sympathetic!! (??) 

Quite....gluten is smaller then a germ, it is a protein like blood, and your body is reacting to it destroying your intestines trying to kill it. IT can and often will go on to effect other organs and cause other issues, it will give you higher chances of cancer, lymphoma, allergies, nutrient deficiencies, other immune diseases. We have lost members to all of these before. The diet is strict, and you can not cheat. OH and your symptoms....you will probably start noticing them on exposures after going gluten free. Many of us are "Numb" to or do not notice the issues as we have lived with them for years, remove it and start healing, then reintroduce in the tiniest amounts and your immune system flips out and you then notice things.

But do not fret, once on the diet your chances of complications drops dramatically, and diet is a easy cure compared to other diseases. And nipping it now before other complications.....I wish I had. I have a whole list of complications from allergies, other AI disease that came about, and nerve and brain damage from my immune system attacking mine in reaction called gluten ataxia that came about late.

For now start a whole foods only diet, keep it simple til you heal and learn to read labels, remove dairy as damaged vili impair your ability to break down lactose, and avoid oats as many are contaminated. Cheap easy starts, line your baking dishes with foil, crock pot liners, using butcher/freezer paper to lay down for fixing your meals on safe prep areas and makes cleaning up super easy. Nordic ware makes some omelette makers, rice cookers, steamers, and grill plates with splatter covers so you can get those instead of replacing all the pans etc for now. And later will save you when fixing food at hotels etc when traveling.

Simple meals like sheet pan meals, baked dishes, crock pot meals, stews, soups, omlettes, salads are easy go to meals,

Here is a list of some alternatives so you know it is not all abysmal. I update and make a new list a few times a year so keep a eye out. https://www.celiac.com/forums/topic/121148-gluten-free-food-alternative-list-2018-q2/
 

[Wheatwacked]

5 hours ago, Katsnkids said:

my oh thinks it’s an over reaction

When my son was born in 1976, everyone, including the medical community tried to convince my wife that his exploding belly that I referred to then as Biafra baby belly was a result of her anxiety and a course of Valium for her would cure him. It did not.  Eventually we found the only doctor in the region knowledgeable in Celiac. The boy was biopsied and after a few months of Nutramigen and thereafter a Gluten free diet he recovered.

When you see the nutritionist inquire about your deficiencies in the essential vitamins and minerals. It is quite common. Just for starters ask him about iodine, vitamin D, iron, magnesium, lutein and zinc. According to the NIH in 2013, the American population experienced a decrease of 50% iodine intake between 1970 and 1990. Caused by the baking industry switching from iodine to bromine as a flour conditioner, one slice of bread supplied the minimum daily requirement of iodine and today has none; a reduction in the use of iodized table salt because of the food industries excessive use of non iodized salt (thank you Mrs. Dash); and flocking away from dairy products (the iodine used to sterilize the milking machinery turns out to be a significant source of dietary iodine). Vitamin D, well, we don't go sunbathing anymore. At least until your nutrition is fixed Cold-Eze (New England Journal of Medicine), will help with your viruses. The last cold I had was in 2004. On top of the general population's deficiencies you, as part of your Celiac Disease, likely have malabsorption syndrome, and as such you are at risk to be deficient in almost all of them.

Sushi seaweed (Nori) one sheet has 400 mcg of iodine. That is 400% of the minimum ( equal to 4 slices of 1969 bread), but it is still only 40% of the recommended upper limit. Iodine deficiency is treated by the medical community with Thyroxine instead of iodine. Why?

The Journal of Clinical Endocrinology & Metabolism, Volume 83, Issue 10, 1 October 1998,

Low UI concentrations (<5 μg/dL) were found in 11.7% of the 1988–1994 population, a 4.5-fold increase over the proportion in the 1971–1974 population. The percentage of people excreting low concentrations of iodine (UI, <5 μg/dL) increased in all age groups. In pregnant women, 6.7%, and in women of child-bearing age, 14.9% had UI concentrations below 5 μg/dL. The findings in 1988–1994, although not indicative of iodine deficiency in the overall U.S. population, define a trend that must be monitored.