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Facial swelling

Addy

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Addy Rookie
Addy
Posted

so glad I find this blog. I have been dealing with severe facial swelling  and sinus pressure for 3 years. Every time I eat my face disfigures and it makes me look really old as well. I was told my sinuses r fine, but my facial swelling effects my sinuses.  After reading this blog I decided to gluten free Monday. So it’s been 5 days. I don’t go to the gluten free section in stores, but i just stick to veggies, fruit and meat that are low in histamines. I have also started taking supplements: B6, vitamin C, Zinc,  digestive enzymes and probiotics. I feel a difference since a started this process, but I do still experience swelling in my face every time I eat. Now my swelling is not as bad as it has been but it’s still happening. When it happens I recheck my diet, seasonings i put in my food and drinks.  Can anyone give me any suggestions? How long did it take for your facial swelling go down?

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kareng Grand Master
kareng
Posted
2 hours ago, Addy said:

so glad I find this blog. I have been dealing with severe facial swelling  and sinus pressure for 3 years. Every time I eat my face disfigures and it makes me look really old as well. I was told my sinuses r fine, but my facial swelling effects my sinuses.  After reading this blog I decided to gluten free Monday. So it’s been 5 days. I don’t go to the gluten free section in stores, but i just stick to veggies, fruit and meat that are low in histamines. I have also started taking supplements: B6, vitamin C, Zinc,  digestive enzymes and probiotics. I feel a difference since a started this process, but I do still experience swelling in my face every time I eat. Now my swelling is not as bad as it has been but it’s still happening. When it happens I recheck my diet, seasonings i put in my food and drinks.  Can anyone give me any suggestions? How long did it take for your facial swelling go down?

Do you have Celiac disease?  Why is your face puffy?  There are so many reasons for a puffy face.  A gluten free first doesn’t fix everything 

plumbago Experienced
plumbago
Posted

I would be more inclined to help if you could reconcile your post from 7 years ago in which you stated you had been having facial swelling for one year.

Plumbago

Addy Rookie
Addy
Posted
  • Author

I never sent a post a year ago, I just found this website last night. I did get tested for an autoimmune disorder but it care back negative, but doctor told me my body was responding like a had the Celtic disease and he tested me for something else. I saw the sight mentioned that I may have this disorder, but it may show up negative. I got tested about 6 months ago. My face swelling and my sinuses are really bad too 

plumbago Experienced
plumbago
Posted
24 minutes ago, Addy said:

I never sent a post a year ago, I just found this website last night. I did get tested for an autoimmune disorder but it care back negative, but doctor told me my body was responding like a had the Celtic disease and he tested me for something else. I saw the sight mentioned that I may have this disorder, but it may show up negative. I got tested about 6 months ago. My face swelling and my sinuses are really bad too 

Apologies! It was from someone else, not you. I am so sorry.

Plumbago

RMJ Mentor
RMJ
Posted

Have you checked to be sure there is no gluten in your supplements and probiotics?

plumbago Experienced
plumbago
Posted

Again, apologies for the earlier comment of mine.

I really should not speculate (but I probably will!), however, one thing stood out to me in your original post was that you are trying, it seems, two things at once: B vitamins, probiotics, etc and the gluten free diet. In order to better notice the efficacy (or lack) of any remedy or thing you may try, would it be better to only do one thing at a time? I don’t know, really; i’m just asking. Also, from commenters here on this site, it seems that the effect of a gluten-free diet can really vary. For some, the difference is instantaneous, but for others, it can take months, even years.

I'm sure people will start to weigh in soon, and here is where I should not be speculating!. But it does seem like you are having an allergic reaction, and that you might need to start getting very very deliberate, disciplined, and methodical with your diet. Meaning, paring way down: eating, for example, only one or two things exclusively for a few days - just to see. Could it be the salt? Could it be low thyroid? Could it be fructans?

I have never heard of this before, but please do stay with us and let us know.

Plumbago

 

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Addy Rookie
Addy
Posted
  • Author

I know my vitamins are gluten free and I am always eliminating things from my diet 

I know my vitamins are gluten free and I am always eliminating things from my diet 

cyclinglady Grand Master
cyclinglady
Posted

I suggest getting tested for celiac disease if you suspect gluten could be an issue and have your doctor also test for a wheat allergy.    My facial swelling is due to allergic reactions and not celiac disease.  

Addy Rookie
Addy
Posted
  • Author

I’ve been tested for both and i have allergies, but nothing has ever made my face swell. My dr told me even though Celtic did not show up,I could still possibly have it that’s why he told me to go grain free 

Addy Rookie
Addy
Posted
  • Author

Oh I haven’t had a food allergy test 

cyclinglady Grand Master
cyclinglady
Posted

When my face swells, my tongue and eyes swell too.    So much that I can not speak well or even see.  Does this happen to you?  

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      Welcome to the forum, @Beagirl! What you are feeling is what we have all felt to one degree or another and we typically feel it more intensely when we already have a laundry list of health issues to work around. It's often the result of a sense of loss . . . of having to say goodbye to some good foods that we enjoy that may have been part of a shrinking list of things that are left that we still found pleasure in. And also for many it represents a social loss . . . not being able to accept dinner invitations from family and friends because you are unsure if they know how to cook gluten free . . . not being able to go out to just any restaurant with family and friends because their menu doesn't have gluten free offerings and if it it does, are they careful with regard to cross contamination issues?
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