Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test question


twointow

Recommended Posts

twointow Newbie
(edited)

Questions in bold...

How long do i need to be eating gluten b4 testing? I have been having a lot of potentially unrelated issues that seem to be neurlogic in nature so I am seeing a neurologist. He says my symptoms are most consistent with MS but that has been ruled out already so he is unsure of the source. He is doing a laundry list of tests to try to find the source of my symptoms. Among them is a Gliaden antibody serum test, I was gluten-free for a few months (suspecting gluten sensitivity), went off for about a month due to financial constraints, returned to it for about a week then was told to eat normally for Gliaden antibody serum test (when I asked about it after a quick net search and it mentioned being related to celiac testing). Can the gliadin antibody serum test diagnose or indicate potential celiac or am I barking up the wrong tree? Does going gluten-free for a week affect the timetable at all on how long I need to keep gluten in my diet? I really don't want to do a normal diet any longer than I absolutely have to because whether its gluten or not SOMETHING that is removed when I am gluten-free is making a difference. TMI but for one my tummy is a hot mess and my poo is urgent, frequent, quite upleasant and cloudy. This is just one example but its a major one because it just about keeps me homebound. So any info is greatly appreciated.

Edited by twointow
Corrections.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
1 hour ago, twointow said:

Questions in bold...

How long do i need to be eating gluten b4 testing? I have been having a lot of potentially unrelated issues that seem to be neurlogic in nature so I am seeing a neurologist. He says my symptoms are most consistent with MS but that has been ruled out already so he is unsure of the source. He is doing a laundry list of tests to try to find the source of my symptoms. Among them is a Gliaden antibody serum test, I was gluten-free for a few months (suspecting gluten sensitivity), went off for about a month due to financial constraints, returned to it for about a week then was told to eat normally for Gliaden antibody serum test (when I asked about it after a quick net search and it mentioned being related to celiac testing). Can the gliadin antibody serum test diagnose or indicate potential celiac or am I barking up the wrong tree? Does going gluten-free for a week affect the timetable at all on how long I need to keep gluten in my diet? I really don't want to do a normal diet any longer than I absolutely have to because whether its gluten or not SOMETHING that is removed when I am gluten-free is making a difference. TMI but for one my tummy is a hot mess and my poo is urgent, frequent, quite upleasant and cloudy. This is just one example but its a major one because it just about keeps me homebound. So any info is greatly appreciated.

A gluten challenge before a celiac antibodies testing requires about weeks of a gluten-containing diet.  It is only 2 to 4 if a person proceeds to an endoscopy to obtain intestinal biopsies.

Open Original Shared Link

I  would ask for a full celiac antibodies blood panel and not just the one you mentioned.  There is a reason there are several celiac antibodies tests — not everyone  tests positive to all of them and some people test negative to all of them.    In that case, an endoscopy should be ordered if celiac disease is strongly suspected.  

Open Original Shared Link

GFinDC Veteran

Yep, about 12 weeks eating gluten for the blood antibody testing.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748

    ChrisMary
    Newest Member
    ChrisMary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.