Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Osteoporosis?

VydorScope

By VydorScope
in Related Issues & Disorders

Recommended Posts

VydorScope Proficient
VydorScope
Posted

I was in a bad car accident in 1994, and somehow along the way I acquired all the actual films and radiologists reports from it. You know, the CAT scans and X-rays, etc. I finally got around to showing them to my doc, well faxed them over this am, and they called back 2 hours later and have me scheduled for a bone scan tomorrow at 3:45pm. Before getting the reports it was "I would like to get you screened for osteoporosis at some point, prbly early next year..." after getting them its now "come in tomorrow for the screening". :o

Would have been nice had the docs at that time mention to us the fractures in my spine that are mentioned in this report. My doc's down here in TN are so much more caring then what I have seen up there. I got the impression from my doc that she could have diag'd celiac disease back in '94 had she been my doctor then! Think of all the damage and trouble I could have been spare... then again I probably would not have listen at that age LOL. Teenagers are immortal! LOL

I hope that osteoporosis is not an issue with me, but if it is , anyone know anything about the treatment?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lauren M Explorer
Lauren M
Posted

I have osteopoenia, but I'm only 24. I was on a prescription level Calcium supplement for awhile. I know I am due for another bone scan, and if things get worse I assume that I'll need to go on Actonel or Fosamax. I've heard about some not-so-great side effects with these drugs however, and I'm sure your doctor will be able to counsel you on your best options. Until then - do what I do (if you can tolerate it): lots of yogurt, and Rainbow Light calcium with D.

Good luck, let me know what your doctor decides to do.

- Lauren

key Contributor
key
Posted

Where do you live in TN? I live in Knoxville, TN. Just curious. What is your health like now?

Monica

VydorScope Proficient
VydorScope
Posted
  • Author
Where do you live in TN? I live in Knoxville, TN. Just curious. What is your health like now?

Monica

As it says under my son picture on every post, Nashville :P:P

I guess slowly getting better hard to tell with this stupid cold I got :(

VydorScope Proficient
VydorScope
Posted
  • Author
I have osteopoenia, but I'm only 24. I was on a prescription level Calcium supplement for awhile. I know I am due for another bone scan, and if things get worse I assume that I'll need to go on Actonel or Fosamax. I've heard about some not-so-great side effects with these drugs however, and I'm sure your doctor will be able to counsel you on your best options. Until then - do what I do (if you can tolerate it): lots of yogurt, and Rainbow Light calcium with D.

Good luck, let me know what your doctor decides to do.

- Lauren

So treatment is calicum and vit d suppliments?

jenvan Collaborator
jenvan
Posted

vin-read this thread on osteo. scroll down to see posts and my experience with treatments etc:

Open Original Shared Link

VydorScope Proficient
VydorScope
Posted
  • Author
vin-read this thread on osteo. scroll down to see posts and my experience with treatments etc:

Open Original Shared Link

did your doc talk to you about options for treating your osteopenia? my mom had it. some docs may try and tell you to go on meds such as fosamax...but my rec is to not do so. since it is osteopenia and you are young, the drug will actually freeze your bone mass, so to speak, thereby freezing depletion, however it can also stop your chances of increasing your bone mass. instead of drugs initially, you can try other things to increase mass, limit alcohol and caffeine (which can deplete bones), start doing weight bearing exercises and begin taking a calcium supplement every day, if you aren't. docs wanted to put my mom on fosomax, she is in her 50s, and she refused. they told her she wouldn't reclaim any bone mass, esp. at her age...BUT she has been working out, lifting weights, taking a supplement, and has increased her bone mass, and is testing okay now. so, it can be done... there's my treatise on bones!!

Intresting, dunno if I can give up coffee! But I bascily dont drink, been years since my last "adult beverage", just not somthing I do much. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

well, maybe you could 'sneak' a decaf every once in a while. (since they still can have a measure of caffeine). but i'm not endorsing that! :) if you're like my dad, you won't give it up...he is supposed to give up coffee, has barret's espophagus etc., but for christmas he wanted a cappuccino maker. go figure!

VydorScope Proficient
VydorScope
Posted
  • Author
well, maybe you could 'sneak' a decaf every once in a while. (since they still can have a measure of caffeine). but i'm not endorsing that! :) if you're like my dad, you won't give it up...he is supposed to give up coffee, has barret's espophagus etc., but for christmas he wanted a cappuccino maker. go figure!

Decaf has liek 4mg of cafine, you get more from a hersey's bar. :P I might learn to like decaf...ugh! :(

tarnalberry Community Regular
tarnalberry
Posted

particularly for celiacs, magnesium is VITAL for bone formation, and most people don't get enough (healthy diet or not). most doctors overlook it as well. (there are studies - I use pubmed.com - that show that magnesium supplementation is more important, by far, than calcium supplementation in celiacs in order to increase bone density.) weight bearing exercise is also very important, as it provides the stimuli that tells the body to grow more bone than it takes down.

VydorScope Proficient
VydorScope
Posted
  • Author

Wonder how likly it is that I have osteoprosis. I have had cronic back pain as far back as I can remember... I hope its not likly! Last thing I need is another label! :mellow:

Nevadan Contributor
Nevadan
Posted

I was dx'ed w/ osteoporosis 5 yrs ago (@55 yrs old, male). At the time I was referred to an Endocrinologist who prescribed Calcitonin plus a 600mg calcium supplement. It improved my density by about 5% in one yr. At the end of the yr he thought perhaps Fosamax would do better, so he changed me to it and I've been taking it ever since along with the calcium supplement. However, I've had no further increase in bone density. As other posters have said, Fosamax can have some bad effects; it's a new drug so complications are probably not fully recognized(Actonel is in the same category). Plus once you take it, it is incorporated into your bones and remains there essentially forever. I now wish I had never changed to it. I would definitely advise asking your dr about Calcitonin and trying to avoid Fasamax.

Also I agree with Tarnalberry about magnesium being equally as important as calcium. There is also some studies that show zinc is also a key to denser bones.

George

VydorScope Proficient
VydorScope
Posted
  • Author

Well I got the bone scan today, should hear the results on Tuesday...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.