Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vision Issues


Cathylinds

Recommended Posts

Cathylinds Rookie

Has anyone experienced headaches and kalidescope vision after going gluten and dairy free.  I was diagnosed with celiac at the end of June and the headaches and vision problems started about three weeks ago 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cristiana Veteran

Hi Cathylinds

Have you suffered from any type of migraine before?

I seem to have had all sorts through the years.  Pain and nausea, often starting in my neck, then auras both eyes, and after going gluten free a rapid improvement, only to get what they think is an aura in my right eye when I peer at black and white print which started after about a year of being gluten free.  Oh - and I'm now getting the pain and nausea ones back that start in my neck (which I attribute to hormones/peri.)  

 

 

 

 

Cathylinds Rookie

I had vision migranes once or twice I had trouble seeing far away but now I can’t see close up 

cristiana Veteran

Yes - seeing close up is what brings on my one eye aura.  I went to the doctors and the opticians and they seemed to think that as I am predisposed to migraines it was just another type.  I've had a few MRIs in the past but they didn't offer me one on this occasion.  Perhaps they felt as I was a migraine veteran I didn't need to have further tests, but as a hypochondriac as much as I hate seeing doctors and having tests I'd almost rather they had as I feel there is a bit of uncertainty about my latest diagnosis.  That said migraines are incredibly common.

How long do the visual disturbances last for?  I think auras typically last about 20 minutes don't they?

I think in your position I'd make an appointment with an optician or doctor and see what they think.  

tessa25 Rising Star

I used to get migraines regularly. They stopped as soon as I started taking magnesium.

 

cristiana Veteran
17 hours ago, tessa25 said:

I used to get migraines regularly. They stopped as soon as I started taking magnesium.

 

That's a great tip.  I've stopped taking it so I'll give it another try!

Posterboy Mentor

Cristiana,

Here is the research on Magnesium.

https://www.ncbi.nlm.nih.gov/pubmed/22426836

It is best taken ahead of a migraine. ..it doesn't work (as) well for acute cases.

But B-2 Riboflavin might.  It has a high degree of correlation to migraines and why taking a B-complex should help too!

A B-complex (B6,B12, Folic Acid) could also help your Homocysteine levels which can lead to eye problems too. . . especially the B-12.

This research summarizes these findings well.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4359851/

Here is a good livestrong article on B-12 possible connection's to migraines.

https://www.livestrong.com/article/268141-b12-migraines/

I hope this is helpful but it is not medical advice.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the grace of God,

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cristiana Veteran

Thanks so much, Posterboy!

 

tessa25 Rising Star

To be clear. I stopped getting migraines when I started taking magnesium daily.

posterboy and ennis are the experts on how much to take.

Posterboy Mentor

cristiana and tessa25,

Here is a good thread on the many benefits and the best form and frequency to take Magnesium.

Never double (2x) up a dose of Magnesium Citrate (to catch up on a tablet/capsule) if you forgot to take it at breakfast/lunch etc.)) or take it on an empty stomach and you should be fine.

Taking the more expensive Magnesium Glycinate will not flush the way Magnesium Citrate can.

Space it out either morning and evening (2x) or with each meal which ever is most convenient.

It really helps fatigue, cramps, produces vivid dreams and a steady movement for most people especially as the Magnesium Citrate form with meals.

Dreams will begin to become vivid too you in the first couple weeks after starting Magnesium Citrate/Glycinate a sign you are taking it a high enough dose to actively effect your body in a positive way.

I hope this is  helpful but it not medical advise.

As always “Consider what I say; and the Lord give thee understanding in all things” 2 Timothy 2: 7, this included.

How else can we learn if we don't consider what others have to say?

I learn soooooooo much by what others share and I truly hope this is helpful.

Posterboy by the grace of God,

  • 3 weeks later...
Teliac92 Newbie

Thank you for responding with this information. 

I was taking 500mg of magnesium for about a week but it did not help with my headaches. Is magnesium citrate different than magnesium? 

tessa25 Rising Star

I took magnesium oxide, because that's the only kind I can take. But I wouldn't recommend trying that route. Probably magnesium deficiency isn't your reason for headaches. It worked quickly for me.

  • 1 year later...
RD13 Rookie
(edited)

Hi - I have been diagnosed with celiac disease two months ago. I too am suffering from strange vision issues -- things don't seem solid to me sometimes. I have been to a few eye doctors, and most of them are of an opinion that I suffer from dry eyes. Is that common in celiac disease? I have been putting the recommended eye drops but have not felt any significant improvement tbh.

Edited by RD13
cyclinglady Grand Master
59 minutes ago, RD13 said:

Hi - I have been diagnosed with celiac disease two months ago. I too am suffering from strange vision issues -- things don't seem solid to me sometimes. I have been to a few eye doctors, and most of them are of an opinion that I suffer from dry eyes. Is that common in celiac disease? I have been putting the recommended eye drops but have not felt any significant improvement tbh.

It takes up to a year to heal from celiac disease as the learning curve for the gluten free diet is steep and other parts of the body, besides the small intestine, may be damaged.  Eye issues are common with autoimmune.  You might consider giving yourself more time to heal.  If not, see an ophthalmologist who knows about autoimmune issues.  

When I was diagnosed, I had a hard time seeing.  I almost did not pass the DMV eye test when I went for my driver’s license renewal and I was wearing brand new glasses!  Within a year or so, my eyes were better.  My prescription has continued to improve over the past six years. 

I do struggle with Ocular Rosacea, which is linked to my Hashimoto’s Thyroiditis and/or my autoimmune gastritis.  It ebbs and flows.  It can be made much worse with a gluten exposure.  

Since you have had your eyes examined a few times and doctors did not find anything specific, concentrate on healing from celiac disease.  It might be the root cause of your eye issues.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748

    Dorfor
    Newest Member
    Dorfor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.