Opinions/reassurance Am I going mad?

[TeacherMum]

Hi. I’m new to the site and what a wonderful resource it is. I’m hoping those in the know would be able to share their opinion of my situation.

For as long as I can remember I’ve had bowel issues swinging from constipation to diarrhoea. Anyway I’ve had a big change in symptoms over last 2 months (lots of stomach pain, bloating, stick to the side of the pan pops sorry for the tmi) so much so that my GP suggested coeliac and I agreed to a blood test. Bloods were taken last Monday, results could be up to 3/4 weeks. At the same time they took bloods to run for all sorts and they showed increased CRP and ESR therefore inflammation. Was advised to repeat those bloods in 2 weeks, 1 week to go but I’d already started going gluten free in meantime as GP said blood test would be sufficient for diagnosis.

I think I was doing ok with it and generally felt better but then wham I woke at 5am this morning with a stabbing pain in my stomach, looser poo and then threw up bile. Phoned out of hours as I had my appendix removed in January and was worried it was related. They sent me to A&E. They repeated bloods and CRP had dropped from 33 to 27, which he attributed to going gluten free and ER doc suggested I’d unintentionally had gluten. Then I realised I had taken communion at church yesterday without even thinking. Is it possible to have such a reaction after being off gluten for 1 week? Or has the ER doctor just jumped on the bandwagon that my GP suggested? They sent me off with cocodamol and advice that I’ll just need to ride it out.

The only other thing noted in bloods was very low folate. So really what am asking do you fine folk think this sounds like ceoliac? I’m very anxious about the whole thing. 

Many thanks

TeacherMum

 

 

 

[cyclinglady]

6 hours ago, TeacherMum said:

Hi. I’m new to the site and what a wonderful resource it is. I’m hoping those in the know would be able to share their opinion of my situation.

For as long as I can remember I’ve had bowel issues swinging from constipation to diarrhoea. Anyway I’ve had a big change in symptoms over last 2 months (lots of stomach pain, bloating, stick to the side of the pan pops sorry for the tmi) so much so that my GP suggested coeliac and I agreed to a blood test. Bloods were taken last Monday, results could be up to 3/4 weeks. At the same time they took bloods to run for all sorts and they showed increased CRP and ESR therefore inflammation. Was advised to repeat those bloods in 2 weeks, 1 week to go but I’d already started going gluten free in meantime as GP said blood test would be sufficient for diagnosis.

I think I was doing ok with it and generally felt better but then wham I woke at 5am this morning with a stabbing pain in my stomach, looser poo and then threw up bile. Phoned out of hours as I had my appendix removed in January and was worried it was related. They sent me to A&E. They repeated bloods and CRP had dropped from 33 to 27, which he attributed to going gluten free and ER doc suggested I’d unintentionally had gluten. Then I realised I had taken communion at church yesterday without even thinking. Is it possible to have such a reaction after being off gluten for 1 week? Or has the ER doctor just jumped on the bandwagon that my GP suggested? They sent me off with cocodamol and advice that I’ll just need to ride it out.

The only other thing noted in bloods was very low folate. So really what am asking do you fine folk think this sounds like ceoliac? I’m very anxious about the whole thing. 

Many thanks

TeacherMum

 

 

 

Welcome! 

There are over 200 symptoms that can be attributed to celiac disease.  Unfortunately, they often overlap with other illnesses.  

Here is more information about testing, which usually includes taking biopsies from the small intestine.  

http://www.cureceliacdisease.org/screening/

 

[TeacherMum]

Hi.

Just a quick update in case anyone comess across this on a google search or whatever. I hated seeing the start of things like this and never knowing how it resolved.

Turns out I don’t have celiac disease and that all the pain and issues I was having was from an incomplete appendectomy. Surgeons had to fix that and due to the damage I lost part of my bowel.

So my advice would be make sure your doctor rules everything out and if something doesn’t feel right to you be persistent.

[cyclinglady]

Thanks for letting us know!  Never rule out celiac disease for life though.  It can develop at anytime.   Triggers are thought to be a virus, infection, or stress (e.g. surgery).  So keep that in mind if you get sick in the future.  

I am glad you are well!