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Celiac Journey

Lpratt43

By Lpratt43
in Coping with Celiac Disease

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Lpratt43 Newbie
Lpratt43
Posted

Hey everyone! I’ve been on this celiac/food journey for over 2 years now. My mindset has been that I’m not going to be obsessive over going out to eat. Now I will go and order from the gluten-free items and let the staff know that I have celiac. Mostly I will only go where I know people or I will simply eat salad. The other night I went to a local Mexican restaurant. I had corn tortillas and cheese ? a corn taco and rice and beans. The next day at work my left flank started hurting out of nowhere. It progressively got worse and is still hurting 3 days later.

At first I thought it was something wrong with my kidneys and got several tests ran. The only thing that was a little high was a liver enzyme but other than that everything was normal. I swear I’m unable to eat out anymore. I have ‘silent’ celiac and dermatitis herpetiformis. Has anyone else had back/kidney pain with possibly being glutened

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ravenwoodglass Mentor
ravenwoodglass
Posted

Yes. It seems those antibodies can cause inflammation and discomfort just about anywhere. I hope this passes for you soon. If your pain gets worse do head back to the doctor.

Ennis-TX Grand Master
Ennis-TX
Posted

I get aches randomly a few days later...normally shoulders, lower back, legs. But this used to my "Normal"...I am a bit numb to pain due to nerve damage, so I only notice a dull deep bruised feeling, and trouble moving said muscles. Unsure if inflamation, magnesium or other vitamin/mineral deficiencies.

BTW eating out is something most of us avoid, 100% gluten free places are your best bet, other places choose stuff that would be hard to gluten....rice and beans, and tortillas are easy to get glutened. Beans can have CC, Mexican rice if in a hurry they will add flour to thicken it faster, and tortillas...can either be skillet/tortilla skillet heated or used one of those warmers. If they heated it up on a skillet or griddle...they probably use the same one for flour as corn. (if it was a bit hard dry, or browned this was the case, soft, moist and hot the used a warmer and a microwave. Call it paranoid but I grew up in a Mexican family.

cyclinglady Grand Master
cyclinglady
Posted

I am not sure your current issues are celiac related.  I do not have DH, but I would assume that your DH rash would emerge indicating that you have been exposed to gluten.  Our fellow members who suffer with DH are comparable to “carnaries in a mine shaft”.  They actually can “see” the results of a gluten reaction.  I also realize that DH has the ability to seemingly flare at will and it is speculated that can take months or years for antibodies to exit the skin once deposited.  (I wish more studies could be done on celiacs who are recovering and please forgive me as I do not have DH and am not very knowledgeable about this subject).  

During the past two years have you had DH outbreaks?  If you have celiac disease and it manifests as DH, I would not say you are a silent celiac.  Maybe I am not understanding your post.  

In any case, I agree with the other posters that celiac disease can impact your kidneys.  It is known to be systemic.  Whether or not you are in an active celiac flare is unknown. Perhaps your doctor can re-run a celiac blood panel to help determine if you are dietary compliant if your rash is not active.  

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