Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Very Pleasant, But Help! Pleasee..


romeo77

Recommended Posts

romeo77 Rookie

hey there, im from sydney australia... im 18 years old and i was diagnosed about 6 weeks ago...

i was doing really well , wasnt gaining weight back, but felt pretty good overall...

but theres so much paranoia and anxiety hitting me because of some of my symptoms of the late...

this is gross , but i need to get it off my chest... im having a cereal that has HEAPS of muesli and oats and grains etc..

and when i have this cereal on certain days, my stool is different!!.... i can see HEAPS of parts of the cereal throughout my stool.... and some parts are dark and some parts are light coloured....

i know its so friggin disgusting!!! please dont discard my post cos of this ,trust me im hygenic as hell. !!!:)

but yeh , on other days when i have the cereal its normal...... is this a bad thing?? could it be that the cereal is no good for me cos it cant absorb the oats & muesli etc????

please help ASAP

thankyou anyone who can help me.. :)

dan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Dan--Personally, I would stay away from the oats. I dont trust oats, even though some doctors say we can have them. Oats made me ill before I knew anything about celiacs. I dont believe we can have them. Have you checked your cereal--does it contain barley malt? Barley doesnt normally cause a reaction in me, but it is still a gluten we MUST stay away from. I helped my daughter make some "Puppy Chow" a Christmas treat she loves and the cereal has barley in it. I did not eat any of it, but somehow I think I got some in me, I had a nasty tummyache yesterday afternoon--I havent had one in a long time. Just be careful of the cereals..ok. Deb

jerseyangel Proficient

Hi Dan--Yea, I would not eat that cereal any more. Period. Like Deb, oats made me sick years before I had a DX. Not terribly, but enough to not want to eat them. You have not been DX for that long, and you have to be careful to eat simply so that your intestines have a chance to heal. For breakfast, you might choose fruit, rice bread toast, cream of rice, eggs, that kind of thing. Even a tiny amount of a gluten containing food will keep you from healing and actually cause further damage. If you need more ideas for foods, you can search here or you can PM me. As soon as you get all the gluten out, you will begin to heal--and it will get easier the longer you do it.

jenvan Collaborator

Dan-definitely nix the cereal. Know that is does take a while to recover and for your intestines to heal though, and you have only been on the diet for a short time. So, even if you are 100% gluten-free, you may still have 'odd' stools. PS--Take a deep breath and don't be anxious. Most people make mistakes initially, as the diet is pretty complicated...so be patient with yourself and ask for help and seek our resources when you need them--like books, a local support group etc.

KaitiUSA Enthusiast

Trust me we talk about everything on here so it's quite alright lol. Alot of oats are contaminated but besides that some even react to pure oats. I for one stay away from them. I recently had a problem with something labeled gluten free so ate it and then looked over it and it had oats...well I got sick. So stay away from that...it sounds like you were doing pretty well until that hit you.

If you need help with anything feel free to email me :)

tarnalberry Community Regular

Yep, I'm afraid you'll have to ditch the cereal. besides oats, check it for barley malt.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,078
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.